Blood Cancers & Disorders Support Group

Have recently been diagnosed with above cancer and currently receiving Rituximab, Dexamethasone, Bortezomib. Still early in treatment cycle but no response yet. IgM continues to...

I was diagnosed this week with WM. No symptoms except persistent anemia and periodic breathlessness. I had a bone marrow biopsy which confirmed IgM, free...

I'm 40yr old male, just been recently diagnosed with Waldenstrom macroglobulinemia, I have no symptoms. I'm going to start chemo in a few weeks, what...

Anyone familiar with watch and wait of this cancer?

Hello everyone hope you’re all well 😊 I’ve been experiencing for long term 1/2 years of sever pain in my stomach and recently worse my...

Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer....

61 year old Male in otherwise great health. Eat well, athletic non-smoker... very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to...

Has anyone else been diagnosed with MGUS (I had M spike) and then Waldenstroms Macroglobulinemia with MYD88 gene mutation (after undergoing bone marrow biopsy -...

Hello---I have been a watch and wait MGUS patient and now my oncologist believes I have WM due to lab tests, spleen, etc. Had a...

Hi to all on this group. I was diagnosed with jak 2 and mgus in 2016 and then Waldromstrom Macroglobulinemia(WM) in august 2019. The hematology/oncology...

My dad has had this diagnosis for years. He is 86 years old. He Was treated with “infusions” forever…idk the name of med. Recently however..a...