Hi, my dad has recently been diagnosed with WM. First things first; he told me 90% of his bone marrow was infected with the cancer. How severe would that be compared to other patients? He also falls into the high risk category. Has anybody here with WM fall into the high risk category as well?
Much thanks to all!
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Just wondering if anyone else with this diagnosis
Welcome to Connect, @dcp45.
I’d like to introduce you to @azjulie whose husband has Waldenstrom’s Macroglobulinemia. You may also be interested in this discussion thread.
– Waldenstroms and amyloidosis http://mayocl.in/2dOVhlz
DCP – is this a recent diagnosis for you? We look forward to getting to know you.
Thank you for the link.
I was diagnosed in early 2014 with Stage IVA lymphoplasmacytic lymphoma/Waldenstrom’s Macroglobulinemia with concomitant T-large granular lymphocyte leukaemia complicated by severe neutropenia
DCP – What treatments have you had or currently undergoing? Is the neturopenia managed by transfusions or G-CSF injections? Do you have to manage low red blood cell counts as well as the white blood cells?
@azjulie – how is your husband doing? What treatment is he having?
I was diagnosed with WM in 2015. As of yet, I am stable, no symptoms, no treatments. Every 3 mos. I get my labs done. Every 6 mos, I see my oncologist. Very slow growing. Some people never have treatments! Life goes on. Yes, I constantly live with the fact that I do have cancer, but I thank God every day for where I’m at.
I hope you and @dcp45 will connect. dcp also recently joined Connect.
66andcounting, with not having any symptoms, how was WM diagnosed for you?
Went in to my general practitioner for my yearly checkup. He called me back, wanting more labs. Something wasn’t right & he couldn’t put a finger on it. That was in January, 2015. I kept going back for still more labs. Finally in March, he called me & said he was referring me to a hematologist/oncologist. She was checking me for my severe anemia. One test led to another, till finally she did a biopsy. I still was not concerned. Then she called me in, asking me to bring my husband. That was June. I was shocked! Got a second opinion…same thing.
I was recently diagnosed with Waldenstrom Macroglobulinemia. My hematologist/oncologist will see me every 6 months for labs and office appointment. Till then no treatments. Just watching and waiting. I would like to hear from others with this diagnosis.
I am new here and recently diagnosed with Waldenstrom Macroglobulinamia. I would like to correspond with others who have this blood cancer to learn tips to deal with this condition.,
Just diagnosed with WM. Anyone on oral chemotherapy?