Waldenstrom macroglobulinemia (WM)

Posted by pysullivan @pysullivan, Mar 24, 2019

Anyone familiar with watch and wait of this cancer?

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia (WM), a type of non-Hodgkin lymphoma (NHL):

– Waldenstroms and amyloidosis https://connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis/

You might also be interested in this discussion:
– Non Hodgkin's Lymphoma- Watch & Wait Approach https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-watch-wait-approach/

I'm tagging other members @sstouten @azjulie @dcp45 who have also talking about Waldenstrom. While we wait for others to join in, PYSullivan, why don't you tell us a bit more about you? Have you been recently diagnosed with WM? I assume watch and wait is the proposed treatment option at the moment, correct?


My husband age 64 diagnosed last April 2018 with Waldenstrom with bone marrow biopsy, his main complaint was fatigue and did have a few episodes of numbing and tingling in fingertips occasionally, then in October he had an episode of severe headaches that were treated for a sphenoid sinus infection the edema was so bad along with headeaches they did an MRI/MRA of head which was normal, then they suspected Temporal Arteritis which they then did a bilateral biopsy that came back inconclusive, he was on a high dose of prednisone 60mg and has just weaned off as of March 1, he is still fatigued and now battling a URI, his Oncologist/Hematologist suggest treatment when his IGM level is 3,000 and his is 1600 now. He is frustrated with the not knowing and feeling so fatigued most days, he was always very active cycling, going to the gym etc.


Has anyone been diagnosed with this?


Hi @brewmaster, welcome to Connect. I moved your message to this existing discussion about Waldenstrom macroglobulinemia (WM) so that you could meet @pysullivan, whose husband also has WM.

Brewmaster, were you recently diagnosed? How are you doing?

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