Advice for Amyloidosis with Waldenstrom's macroglobulinemia
61 year old Male in otherwise great health. Eat well, athletic non-smoker… very moderate drinker. Diagnosed with WM in 2017. IgM numbers too low to treat. However, having symptoms that include para nasal sinus disease, peripheral nephropathy, edema and fatigue… all lead to a diagnosis (bone marrow biopsy and other tests) of Amyloidosis in late 2021. Kideny's impacted and have proteinuria which seems to explain para nasal sinus problems and edema. Started on weekly 400MG dexamethasone and weekly infusions of Rituximab. In six weeks once dexamethasone is done, start bendamustine. Hemo Onco is a good one (although retiring soon). Says I will need a bone marrow transplant.
Need to talk to a specialist that can confirm this treatment protocol and offer advice.