Blood Cancers & Disorders Support Group

I've been wondering if there are any stats on people who have lived the longest with ET and taking Hydrea? As I hit the 30-year...

Hello Everyone, I am 69 yo and I have had ET for 21 years. I am triple negative (NO JAK2, CALR, MPL ). I have...

I am 8 weeks into ET diagnosis. TX plan of 1000 mg HU and aspirin. Now platelets down to 350 but liver panel high and...

My doctor is suggesting I try Interferon instead of HU. I have Essential thrombocytosis Cal-R and have been on HU 1,000 M-F and 500 S...

I was diagnosed with ET 11 years ago and taking Droxia. My current script is 800 mg daily and an additional 200 3 times a...

I suffer with bone pain in my shins and toes. Dr says not ET or HU, just wondering if anyone else suffers from bone pain....

I am ET/Jak2 — 72 years oldDiagnosed July 2024HU 500mg dailyAre the following symptoms from the HU or ET itself:Lightheaded (feel a bit unbalanced/dizzyBrain fogItchyI...

I don't want to take Hydroxyurea to lower my high platelet count. Does anyone know of a food, vitamin, spice etc that will lower platelets...

I am 71, active, and in relatively good health. I have ET and VW's, my platelet numbers are around 520 with treatment (Jakifi). Im scheduled...

I was diagnosed with ET 2 1/2 years ago. I am on 500mg of Hydroxyuria a day and 1/2 a baby aspirin, and that keeps...

Hi, I continue to research and learn from others with ET. I am 57, and diagnosed this past year. Jak2 positive, ET. I may have...

Essential ThrombocytothemiaI had my last blood work on 9/25 and it was in the normal range. High end of normal but still in the normal...

Just was diagnosed and had a bone marrow biopsy yesterday. Going on Pegasys...anyone traveled this road before me? I'm 67 and new to all this,...

I currently have essential thrombocythemia with the JAK2 gene mutation. I currently take 500 mg of hydra seven times a week. I’m supposed to take...

I am new to Hydrea 500 mg daily for ET. I have taken it for only days. I am heading to a beach vacation for...

Hi all, I've suffered for many years with this MPN disorder, but it seems not many others have the same symptoms, so I'l posting this...

Have any of you been diagnosed with triple negative ET, ET early in life, or had it misdiagnosed for years before getting the accurate diagnosis?...

I am A soon to be 70 year old woman with ET, JAK 2. Since I am on HU (500 mg/day), sensitive to sun and...

Has anyone been living with,ET, jac2 mutation

Would like to connect with other farmers who have been diagnosed with ET. Feel great when there is tractor work to be done on the...