Blood Cancers & Disorders Support Group

I get periodic bulletins via email from Patient Power that track what Big Pharma is researching for MPN patients. Looks like a vaccine approach may...

Hi everyone. I’m 70, diagnosed with ET in June, 2022, and JAK 2 positive. I’m only taking 2 low-dose aspirin a day because my platelets...

I have just recently been diagnosed with JAK 2 positive ET and I am only 48. Coming to terms with the “c” word has been...

I have had a diagnoses of ET for 13+ yrs. I started with 1 Hydrea 3X's a week and am now on 500 mg. 3...

Awaiting a return message from my chemo after a big spike in my LDH on at my regular blood check this month. All other results...

I am a 73 year old very active woman who was recently diagnosed with Essential Thrombocythemia by having a high blood platelet in a CBC...

I’m posting because honestly I’m scared. I was diagnosed w/ET/Jak2 in March. My current treatment only consists of 2 baby aspirin a day currently with...

Hi, this is, almost, an embarrassing topic. It was in May, 1 year ago, that my primary Dr and I saw my first high platelet...

I had a bone marrow biopsy on July 8, 2025, which confirmed my CALR ET. My highest platelet count was 987. I've started taking 500mg...

I have had ET JAK2 pos x 2 yr plts around 500 taking 2 baby asa daily. My Plts jumped to 702 and I was...