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Autoimmune Diseases Support Group

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Discussions (150)
Clinical trials sjogrens & other autoimmune disorders
I’m relatively newly diagnosed. Cevilemine & Plaquenil . Too early to tell if Plaquenil will work. Cevilemine, inconsistent & works too well for the sweating...
Support Group: Autoimmune Diseases
Last active: Nov 23, 2023
I have Sjogrens and dryness is progressively getting worse.
My question ….. is anyone here taking Pilocarpane. I would like to know about this medication. Trying to get more knowledge before asking the Dr....
Support Group: Autoimmune Diseases
Last active: Feb 9, 2025
Can anyone help?
I was diagnosed 15 years ago with fibromyalgia, Depression, and anxiety disorder. I recently was diagnosed with an autoimmune disease., a Vitamin D Deficiency and...
Support Group: Autoimmune Diseases
Last active: Mar 22, 2024
Sjogrens Syndrome - Dry eyes - intensive pulsed light
anyone with Sjogrens Syndrome tried intense pulsed light treatment to improve the dry eye symptom? I would like to try
Support Group: Autoimmune Diseases
Last active: Jun 13, 2019
Sjogerns and oral hyaluronic acid supplementation
Does anyone take oral hyaluronic acid for their Sjogerns symptoms? I take 125 mg for joint health and have noticed if I don’t take it...
Support Group: Autoimmune Diseases
Last active: Jun 30, 2023
Is anyone involved in the RSLV-132 clinical trial for Sjögren’s.
Is anyone involved in the RSLV-132 clinical trials for Sjögren’s Disease. If offered the opportunity, would you participate?
Support Group: Autoimmune Diseases
Last active: Apr 27 7:53pm
Question about Sjogrens and discomfort in legs. Also skin feels itchy
I have Sjogrens and have not had too many problems until lately. Achy legs, itching, and at times extreme heat, much like a hot flash,but...
Support Group: Autoimmune Diseases
Last active: Apr 30, 2023
I think i have sjogrens-no formal diagnosis, lots of symptoms.
Hello to all you brave warriors.Ive had 10 spine surgeries and a SI joint fusion. 25 yrs into this nightmare. very severe pins /needles, severe...
Support Group: Autoimmune Diseases
Last active: Apr 15 10:27am
Small Vessel Vasculitis Granulomatosis & Sjögren’s syndrome
Is there are group for small vessel vasculitis granulomatosis and Sjögren’s syndrome and Churgg Strauss? These are all autoimmune conditions that I’ve been recently diagnosed...
Support Group: Autoimmune Diseases
Last active: Sep 3, 2022
Sjögren’s Syndrome: how do you manage the symptoms?
Hi I see a rheumatologist next week for sjorgens syndrome. Last summer a sinus doctor I saw mentioned it to me and recommended I see...
Support Group: Autoimmune Diseases
Last active: Apr 5 10:29am
I have S.F.N. and Sojgrens pain moving bowels
By my rectum is painful when trying to move my bowels, involves S 1 L-2 L-3 My Pain Management DR. Wants to give me an...
Support Group: Autoimmune Diseases
Last active: Feb 1, 2025
Anyone else have Cogan's Syndrome?
I have recently been diagnosed with both Sjogren's Syndrome AND a rare autoimmune condition called Cogan's Syndrome. I'm trying to manage the Sjogren's symptoms and...
Support Group: Autoimmune Diseases
Last active: 6 days ago
Do you use CBD and/or THC for pain/inflammation from RA or Sjögrens?
I have both of these autoimmune diseases. I have seen a few posts from others who use CBD or THC. can any share about this?...
Support Group: Autoimmune Diseases
Last active: Sep 1, 2022
Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes
I have tried pilocarpine on two occasions. The side effects were unbearable, cold sweats to the point of shivering, then hot sweats that left me...
Support Group: Autoimmune Diseases
Last active: Feb 13 1:06am
No “meat” on the bottom of my numb feet.
My feet are numb and it gets worse in the late afternoon. This weekend my feet also hurt a lot and I had trouble walking....
Support Group: Autoimmune Diseases
Last active: Mar 2 2:44am
Positive ANA Questions
Hello. I have just received a positive ANA result. I had two patterns indicated. Nucleolar Pattern, 1:80, and Dense Fine Speckled Pattern, 1:320. My provider...
Support Group: Autoimmune Diseases
Last active: Sep 27, 2025
Autoimmune illness and small fiber neuropathy
Greetings, I was diagnosed over a long period of searching for reasons for a wide range of symptoms with Lupus/Sjogren’s Syndrome, and Small Fiber Neuropahy....
Support Group: Neuropathy
Last active: May 28, 2024
Are gastroparesis and EPI related?
I was diagnosed with Exocrine Pancreatic Insufficiency a few months ago. Tried Creon, which seemed to help, but can’t afford refill. Still awaiting AbbVie’s decision...
Support Group: Pancreatic Disorders
Last active: Nov 26, 2025