I think i have sjogrens-no formal diagnosis, lots of symptoms.

Posted by Lorraine @lmill7, Apr 1 1:20pm

Hello to all you brave warriors.
Ive had 10 spine surgeries and a SI joint fusion. 25 yrs into this nightmare. very severe pins /needles, severe vertigo, migraines ( were daily) and now TSH 38. I can hardly stay awake. Circadian rhythm is way off. Feel drunk 24/7.
western med think a fusion cancels out pain. doing high dose D3-seems to help.
lots of alternative remedies to help severe nerve /muscle pain.
Looking for any info on central canal sensitivity too.

thanks n prayers for all💕🙏

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@lmill7, there are many discussions about Sjogren's and Central Sensitization. I recommend using Search at the top of any page to find discussion related to your questions. Here are a few to get you started:

- Sjogren’s Syndrome – Introduce yourself and meet others https://connect.mayoclinic.org/discussion/sjogrens/
- Sjogren's Syndrome? https://connect.mayoclinic.org/discussion/sjogrens-syndrome-1/
See all https://connect.mayoclinic.org/search/discussions/

Central Sensitization Syndrome
See this Mayo expert blog dedicated to CSS
- Chronic Pain & Symptoms Rehabilitation Blog https://connect.mayoclinic.org/blog/chronic-pain-symptoms-rehabilitation/

Discussions:
- Central sensitization syndrome and treatment? https://connect.mayoclinic.org/discussion/central-sensitization-syndrome-and-treatment/

See all: https://connect.mayoclinic.org/search/discussions/

REPLY

I have Sjogren's and have Crohn's which is in remission, thanks to Low Dose Naltrexone which my neurologist thinks is good for cronic pain. I take 2 mg daily (for Crohn's) have neuropathy with no pain. Take a look at it on the internet. If you think might help, give it a try.

REPLY
Please sign in or register to post a reply.