Autoimmune illness and small fiber neuropathy
I was diagnosed over a long period of searching for reasons for a wide range of symptoms with Lupus/Sjogren’s Syndrome, and Small Fiber Neuropahy. My question was this: Can anyone point to some good resources for sfnp and autoimmune diseases? I am a doctoral health scientist, but very little is showing up in my usual resources.
Briefly, I started out with an elevated right hemidiaphram that went away before the sniff test, but showed up more and more frequently until they were able to see it paralyzed/paresis on the sniff test. This can last from days to weeks to up to 5months one year, but it comes bask (so far). Lung capacity can drop from over 5L in the inspirometer to 3.5L with no warning. In trying to find answers hey did a skin biopsy which “was indicative of small fiber neuropathy”, but no clue as to why. Eventually as symptoms build up through the years (difficulty swallowing, heart palpitations, temperature regulation, dry eyes, dry mouth, prickle/burning pains in various locations, joint sinovitis, to name a few) they came down to Lupus and Sjögren’s syndrome. Symptoms have slowly progressed, getting worse year by year until I had to retire early from CDC. After this long journey, I am still looking for how all of these things impact each other and “work together”, but my doctors all look at their one piece of the puzzle. I appreciate any leads you could share.