Autoimmune Diseases Support Group

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Comments (543)

I was diagnosed with GCA in July of 2019. Had all the symptoms and was waiting...

https://connect.mayoclinic.org/comment/680426/

Discussion: Adjusting to life with temporal arteritis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 13, 2022

I have a completely different set but I'm up to four; Graves, Celiacs, (I can't remember...

https://connect.mayoclinic.org/comment/677851/

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 5, 2022

I got diagnosed with SLE three months ago. Inflammation and pain are affecting me the most...

https://connect.mayoclinic.org/comment/677077/

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 2, 2022

Hello @kmb181, Welcome to Connect. I know it has to be difficult not getting any real...

https://connect.mayoclinic.org/comment/672163/

Discussion: PMR and RA

Support Group: Autoimmune Diseases

Posted: Jan 18, 2022

Kathryn, I have also been diagnosed with Dermatomyositis since 2018. Are you on statins for high...

https://connect.mayoclinic.org/comment/644627/

Discussion: Dermatomyositis

Support Group: Autoimmune Diseases

Posted: Oct 13, 2021

@athenalee and @joannemm30809 Here is a Ted Talk link. This really explains what everyone is going...

https://connect.mayoclinic.org/comment/643475/

Discussion: Does it seem like autoimmune diseases are on the rise?

Support Group: Autoimmune Diseases

Posted: Oct 8, 2021

Thank you, good suggestion. My auto immune diagnosis is CURRENTLY RA and fibromyalgia. Started with a...

https://connect.mayoclinic.org/comment/642091/

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 4, 2021

This must be so difficult for your son @abrown2 . It sounds like it could be...

https://connect.mayoclinic.org/comment/623622/

Discussion: Autoimmune Fatigue and/or Chronic Fatigue

Support Group: Autoimmune Diseases

Posted: Aug 5, 2021

Hello, i also have an autoimmune disease that was difficult to diagnose. Once an MRI was...

https://connect.mayoclinic.org/comment/612891/

Discussion: Is a rheumatologist who I should see about autoimmune conditions?

Support Group: Autoimmune Diseases

Posted: Jun 30, 2021

Hello @linda2114, Welcome to Connect, an online community where patients and caregivers share their experiences, find...

https://connect.mayoclinic.org/comment/611185/

Discussion: Can't get a definitive diagnosis

Support Group: Autoimmune Diseases

Posted: Jun 24, 2021

@oldkarl You have certainly been dealt with some difficult diagnoses. Have you developed any coping mechanisms...

https://connect.mayoclinic.org/comment/609393/

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jun 16, 2021

Hello @ellen307 I can imagine that this must have felt like a "rocky road" as you...

https://connect.mayoclinic.org/comment/607516/

Discussion: Myasthenia Gravis with Type 2 Diabetes

Support Group: Autoimmune Diseases

Posted: Jun 7, 2021

POSTED BY SOMEONE IN NEUROPATHY GROUP: I found this not too long ago. It's called the...

https://connect.mayoclinic.org/comment/606638/

Discussion: For anyone who can't find a diagnosis: Undiagnosed Disease Network

Support Group: Autoimmune Diseases

Posted: Jun 3, 2021

Hello @change25, I hope that your doctor does find a diagnostic label to put on all...

https://connect.mayoclinic.org/comment/600367/

Discussion: At a loss, multiple consultations still no answer...any idea?

Support Group: Autoimmune Diseases

Posted: May 8, 2021

I have been dealing with health issues for quite a long time. In November I had...

https://connect.mayoclinic.org/comment/182573/

Discussion: Food for Thought - Why so many Autoimmune Diseases?

Support Group: Autoimmune Diseases

Posted: Mar 27, 2021

Hello @welcome1, Welcome to Mayo Clinic Connect. I know it must be difficult having to wait...

https://connect.mayoclinic.org/comment/167629/

Discussion: Autoimmune hepatitis*

Support Group: Autoimmune Diseases

Posted: Mar 3, 2021

Hello @jamieray6812, I know it must really be difficult trying to find answers when you have...

https://connect.mayoclinic.org/comment/292534/

Discussion: Antisynthetase Syndrome: Anyone else?

Support Group: Autoimmune Diseases

Posted: Feb 18, 2021

Sue, I have several autoimmune diseases that were all difficult to diagnose and treat. And, the...

https://connect.mayoclinic.org/comment/87641/

Discussion: Undiagnosed and frustrated: RA? Lupus?

Support Group: Autoimmune Diseases

Posted: Jan 1, 2021

Hello @modens, Welcome to Mayo Clinic Connect. I know it must be difficult to cope with...

https://connect.mayoclinic.org/comment/317005/

Discussion: Cryoglobulinemia not caused by hepatitis or lymphoma?

Support Group: Autoimmune Diseases

Posted: Jul 23, 2020

@dorrielee In my family, we have a bundle of DNA issues, including Lupus, multiple myeloma, LECT-2,...

https://connect.mayoclinic.org/comment/313233/

Discussion: Lupus diagnosis need help

Support Group: Autoimmune Diseases

Posted: Jun 12, 2020

Polymyalgia Rheumatica (PMR)

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Post-COVID Recovery & COVID-19

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11 hours ago

Liver Diseases

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1 day ago

Fibromyalgia

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2 days ago

Lymphedema

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4 days ago