PMR and RA
I am a 53 year old woman. About 7 years ago, I started having hip pain, elbow pain, neck pain, and shoulder pain. I was having trouble sleeping, exercising hurt, and made my legs feel very weak. My PCP sent me to a Rheumatologist. My Sediment level, and CRP were very high, and I had a positive Rheumatoid Factor.
I had multiple radiographs taken, and RA was ruled out. I was then diagnosed with PMR. I was started on Prednisone. The higher dose of Pred helped with some of the pain, but not all of it, and I was still struggling. When I weaned down to 5mg., I stayed on that dose for about 4 years. Still really struggling with pain, and I was worn out.
I ended up moving, and seeing a new Rheumatologist. I was having so much pain that I could hardly function. My Sediment, and CRP were again very elevated, even on the 5 mg of Prednisone.
I had a CT scan of my hips, and spine. I found out I had scoliosis in two places in my back, and degenerative disc disease. I was also diagnosed with RA, taken off Pred, and put on a cancer drug.
I stayed in constant pain, and struggled for a few more months. Per my PCP, I decided to get a second opinion. I went to my 3rd Rheumatologist, and was diagnosed with Fibromyalgia. He took me off all meds, and put me on Cymbalta. He said I did not have PMR, or RA. Again I struggled for months in so much pain, and started having some shortness of breath, and my eyes were staying bloodshot. I went back to see my PCP, My Sediment level, and CRP were very elevated. I also had a Chest CT with dye.
The chest CT was normal. I was put on Doxycycline for a possible Viral infection, and back on a Prednisone pack.
I am currently on 5mg of Prednisone, and 60 mg of Cymbalta. And, in pain.
My PCP sent a referral to Duke, and I have an appointment in March, which is the soonest they can get me in. I am hoping they can give me a diagnosis, and maybe help me with pain relief, so I can live the active life I use to live.
Any suggestions, or advice?