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luserm1
@luserm1

Posts: 13
Joined: Sep 15, 2017

Autoimmune hepatitis*

Posted by @luserm1, Sep 15, 2017

Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis?

REPLY

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

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Hello John, thank you for the information. I was recently diagnosed with stage 4 cirrhosis and autoimmune hepatitis. However, on my last visit to my GI doctor, he told me wanted to a second opinion on whether the autoimmune hepatitis should be treated aggressively or just monitored. Additionally, he was not certain that it is autoimmune hepatitis. Consequently, I have an appointment to see another liver specialist. In the meantime he preferred not to add or change the medication he put me on. I’ve been on 10 mg of Prednisone for close to a month. I’m also a type 2 diabetic but my blood sugar has been fairly controlled. The last AIC was 6.4 though I’m working to bring it down. I’ve made dietary changes, and have started to take turmeric due to its anti inflammatory properties to aid with the cirrhosis.
I’ve also seen an Infectious Disease doctor to rule out Hepatitis B because there was some doubt as to whether I had this or not. Though it was ruled out, this doctor recommended me to yet another liver specialist because he thought that based on my blood work and biopsy results, autoimmune hepatitis may be the diagnosis.

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Hello @luserm1, thank you for the update. It’s great that you are working on lowering your A1C. It’s one of my struggles also although I don’t have diabetes. My A1C has been around 5.4 to 6.0 for the past few years and I have been working to get it lowering but it is a struggle.

Hopefully your upcoming appointment with another liver specialist can help determine the best treatment. Can you keep us updated?

John

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Hi @luserm1 – I’m tagging some fellow Connect mentors and moderators who may be able to offer more information on your question. @dawn_giacabazi @kdubois @kariulrich @vdouglas do you have any information that you can share?

John

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Does anyone know anything about Mayo Clinic Biobank. I mailed in my info and neverheard anything. I cannot even get anyone on the phone at mayo jax.  It's very weird.

Hi @soccerchick, I participated in the Mayo Clinic Biobank through the Rochester Mayo Clinic. It was my understanding that they just take samples, etc. and use the information anonymously for research. Here’s their info on the Mayo Clinic website:
http://www.mayo.edu/research/centers-programs/mayo-clinic-biobank/for-participants

John

I completed the questionnaire way back a couple of years ago. I called to see if they received it,but no luck. I have not been asked to do a blood sample yet. I am not sure the procedure or process . I read the info you sent. Thanks . I guess I just have more specific questions than just general ones. Thanks again for your help

@soccerchick

I completed the questionnaire way back a couple of years ago. I called to see if they received it,but no luck. I have not been asked to do a blood sample yet. I am not sure the procedure or process . I read the info you sent. Thanks . I guess I just have more specific questions than just general ones. Thanks again for your help

Jump to this post

Have you tried the phone numbers on the link? I would also try emailing them if you have not done that already. When I filled out the questionnaire awhile back, guessing more than 2 years ago I got the impression I was never going to hear from them unless they needed more samples. If you are trying to get genetic info, the Genes for Good program at the University of Michigan might be another avenue although it takes 2 to 3 months to get the results…still waiting for mine. They will let you download the raw genetic data from the spit test sample after it’s processed and I found out their are a few labs that you can send the raw data to for about $10 and they will tell you what it all means. Here’s the link if you are interested:

https://genesforgood.sph.umich.edu/

John

Not genetic. General info.

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

I certainly will once I’ve seen the other two specialists. I should have more information by the end of September.

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Unfortunately no, not yet. I’m still waiting and trying to do my own research.

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Hello @luserm1, Welcome to the Mayo Clinic Connect. I hope we can help you with the answers you are looking for.
I am not familiar with cirrhosis but you mentioned your A1C is 6.4 (mg/dl). That is a very controlled blood sugar for a Diabetic, good job! I would just say be careful trying to get it lower as you may experience hypoglycemia which is pretty scary, as you may already know. Are you monitoring your blood sugars closely while taking the prednisone as it is know to cause high blood sugar. Short term high blood glucose is not usually life threatening but if you try too hard to keep your level down you may go too low and they can be.

I would stress for you to monitor your glucose closely while on the prednisone and let your Dr. know if your numbers go extremely high. The benefits of taking prednisone -vs- changes in your blood gluecose will be weighed.

If I may ask what are your morning glucose levels?

@johnbishop

Hello @luserm1 – Welcome to Mayo Connect. We are glad you found us. Connect is a good place to share your health concerns, ask questions and learn what others are doing for similar health concerns. I have no medical training or background but I do have an autoimmune disease – polymyalgia rheumatica (PMR). I take turmeric supplements to help with the inflammation and think it helps some. When I’m trying to find as much out as I can about a supplement, drug or treatment I will use Google Scholar (https://scholar.google.com/) which is great for finding research information. I did a search on your question – Is it beneficial to use turmeric for cirrhosis caused by autoimmune hepatitis? and it returned quite a few links that may be of interest to you.

https://scholar.google.com/scholar?hl=en&q=Is+it+beneficial+to+use+turmeric+for+cirrhosis+caused+by+autoimmune+hepatitis&btnG=&as_sdt=1%2C24&as_sdtp=

Can you share a little information about yourself and what you are doing for treatment now? It might be helpful for other Connect members with similar health concerns.

John

Jump to this post

Hi and yes, Prednisone can elevate blood sugar so I’m concerned about that but my morning readings range from 103-131…depending hiw late in the day the day before. I try to eat dinner before 6 or at the latest 7pm. Later than that, no matter what I eat will give me higher readings of 105.

@luserm1 – I was once diagnosed with autoimmune hepatitis by my GI after completing many blood tests for various liver diseases. I do not have the other issues that you describe.
My liver function numbers were not normal was why I had to undergo the testing. When I began treatment for autoimmune hepatitis (AIH), I was also treated with prednisone. I seem to recall that there were liver biopsies involved, also. When my GI was not convinced that I had AIH ( because no positive results were coming from prednisone treatment) he referred me to the next level of care – liver specialist. Additional test was able to determine the accurate diagnosis.
Your GI is doing the right thing to make the referral for you to be seen by liver specialist.
I hope you are feeling well. Let me know if you have any questions for me.
Rosemary

@rosemarya

@luserm1 – I was once diagnosed with autoimmune hepatitis by my GI after completing many blood tests for various liver diseases. I do not have the other issues that you describe.
My liver function numbers were not normal was why I had to undergo the testing. When I began treatment for autoimmune hepatitis (AIH), I was also treated with prednisone. I seem to recall that there were liver biopsies involved, also. When my GI was not convinced that I had AIH ( because no positive results were coming from prednisone treatment) he referred me to the next level of care – liver specialist. Additional test was able to determine the accurate diagnosis.
Your GI is doing the right thing to make the referral for you to be seen by liver specialist.
I hope you are feeling well. Let me know if you have any questions for me.
Rosemary

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@luserm1 – I believe your GI is correct to make no med changes for now. The liver is affected by everything that goes into your body.
Rosemary

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