Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@migizii

This is a very interesting topic to me also as I am beginning to deal with fairly extensive feet pain, especially in one foot and I am not excited about the thoughts of the Lyrica, Gabapentin route. I cannot use CBD with THC as I am drug tested at work, but is there any effectiveness known for CBE oil or balm without it?

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@migizii I would suggest the CBD oil without the THC from CBDistillery.com That would be the ones that are not full spectrum, and are a bit cheaper than the ones that have the THC. I would at least get the 1,000 mg. bottle, or I doubt it will helop pain. I buy the 2500 mg. bottle, with the THC (less than .03%). The stuff works wonders for pain. Even better yet, is Kratom. If you want more info on Kratom, I would tell you exactly what to buy and where. Marvelous stuff. So much better than the doctor's pills. Good luck, Lori Renee

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@rwinney

Peggy,
If you don't mind me asking…why do you only take 1/2 tramadol? Doesn't sound like it causes side effects. Might a whole go father for your pain?
Just asking as my goal is to get off hydrocodone but exploring back up, safe, affordable options.

Thanks for any input.
Rachel

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to Rachel: I take 1/2 Tramadol because it is adequate, dulls pain without putting me to sleep. I've never taken a whole one but if 1/2 doesn't work sometime I will try a whole tablet. I take 1/2 of nearly everything (except anti-biotics as they are already weight-calculated) because I am small (115), medicine for an average 250 pound man would be too much for me. I seem to be more sensitive to medicines than other people. Some people in this support group are taking amounts of meds that would kill me but it works for them — we're all different. Peggy

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@pfbacon

to Rachel: I take 1/2 Tramadol because it is adequate, dulls pain without putting me to sleep. I've never taken a whole one but if 1/2 doesn't work sometime I will try a whole tablet. I take 1/2 of nearly everything (except anti-biotics as they are already weight-calculated) because I am small (115), medicine for an average 250 pound man would be too much for me. I seem to be more sensitive to medicines than other people. Some people in this support group are taking amounts of meds that would kill me but it works for them — we're all different. Peggy

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That's for sure Peggy! Glad it works for you. Smart thinking.

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@lioness

@pfbacon The website is http://www.baar.com the catalogue is in Cayce Care at Edgar Cayce. I like the tea they also have drops and a cream that is more then I can afford its 90.00 I'm going for a cup of tea now as the pain is starting to get bad.

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Thank you, Lioness … Peggy

Liked by lioness

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@rwinney Glad to hear hope you find relieve from it . You never know till you try . I does settle my nerves

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I know chronic pain is difficult. Seems for some there are no answers. I know a good day for me is a pain level of 5 and these are few and far between. I rarely mention pain to a doctor other than the pain specialist I see. Only so much can be done. Rest is up to me. Attitude has a lot to do with it and currently mine is sucky.

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@sharonmay7

Yes if anyone has ideas of how we can get the attention of higher ups… Please let us know !! Every time I here somethings about pain pills it is always negative. I bet there r more people helped then hurt! Sharonmay7

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I agree pain pills help more than hurt. Because of some corrupt people using their meds improperly, or other reasons, many people are deprived of pain meds they really need. I have several things wrong with me that have NO cure as of this time. I was getting by while I was on pain pills. My kidneys have started to slow down and my CPC took me off half of the pain meds I was using. Life is not as easy as it once was even with my ailments. New laws would not help me because of my kidneys, but a lot of people would be helped so much.

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@lillyanne

What is MFR? Myofascial release? How do you do it? I have fibromyalgia on top of my arthritis on top of Stage IV cancer (bones,joints,organs…).Is the Topricin the same minty cream you can get at the P.T? Thankyou. I just found out from this site my horrible leg pain might be caused also from the cancer causing my spine to collapse.

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@lillyanne @artscaping @lioness Cancer might be a deal breaker for MFR (myofascial release) because if there are cancer cells in the tissue that is being released, it may mobilize them and help cancer spread in your body. Put that question to an MFR therapist or a doctor who understands MFR, but that is what my MFR therapist has said previously. That is a choice that should be made with information from your doctor and if that is right for your health status. Lillyanne, I'm sorry you are going through all of this. I don't have any personal experience with cancer except for seeing a relative battling cancer and eventually it took her life. She was in a lot of pain, and a visiting nurse would give her injections for the pain. Cancer pain may not be helped with MFR. If the cancer is putting pressure on a nerve because a mass is growing, MFR probably would not change that. MFR is good for getting the body moving again as it should be moving and un-sticking the muscles that can get glued together. There was just a story about Olivia Newton-John on CBS Sunday morning about her stage 4 cancer, and her husband is growing cannabis on their property in California to be used to treat her pain which she said helps a lot. I have no experience with that either, but just wanted to pass on the information.

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Hi Everyone, My name is Cricket1 and I hope everyone is having a tolerable day. I have been dx with 3 autoimmune diseases and many spine problems. I spend half of my days trying to lessen my pain and the other half trying to take care of house, husband and dogs. Been in bad pain since 1015 and used to be able to take pain meds to help me through the day. My kidneys are not functioning properly and I was taken off half of my pain pills. My days are back to being so painful. I have gone into pretty deep depression because I can't even take care of myself. I am trying so hard to stay on top of my emotions because even my stress can cause a breakout of my Leucocytoclastic Vasculitis. I guess that is why I am here.

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@briansr

It’s an honor to find a group of people that have been, and are still going
through, what we all face 24/7. I’m getting worse but a lot of this startup
group have alot more problems than myself. Let’s try to grow this group
into one large enough to let our “FRIENDS” in Washington know that we are
indeed human beings and could use some representatives in D.C. to open
their minds and hearts to the millions that suffer daily with very little
to look forward to. I want to write, a novel, book, articles to whoever we
can reach. I just need some ideas. Do you suppose there is a pain monthly
magazine. LOL briansr

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Brian and all: Right now, the states are all making different laws about medicines, so our governors are the people to write to. We can't let politicians continue practicing medicine without a license – they are botching it. I commit to writing to 2 governors this weekend, asking them to help real patients get medicine – and I will address envelopes, put stamps on them, and take them to the post office. It's not enough for me to compose a letter on my computer then not get around to sending it. Peggy

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@cricket1

Hi Everyone, My name is Cricket1 and I hope everyone is having a tolerable day. I have been dx with 3 autoimmune diseases and many spine problems. I spend half of my days trying to lessen my pain and the other half trying to take care of house, husband and dogs. Been in bad pain since 1015 and used to be able to take pain meds to help me through the day. My kidneys are not functioning properly and I was taken off half of my pain pills. My days are back to being so painful. I have gone into pretty deep depression because I can't even take care of myself. I am trying so hard to stay on top of my emotions because even my stress can cause a breakout of my Leucocytoclastic Vasculitis. I guess that is why I am here.

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Hi there and welcome! So glad you found Mayo Connect because it is a supportive, comforting place to come. I'm very sorry to hear of your pain and obstacles.

I was just reading about managing the psychological aspects of pain, which is found in a Small Fiber Neuropathy book that I own and often refer back to. Pain is pain no matter the diagnosis.

You know how when medicine is all you seem to have, not many people surrounding you can truly relate and you continue to not know what else to do?

This book shares various ways and beliefs to retrain your brain through Cognitive Behavioral Therapy, Acceptance and Commitment Therapy, Mindfuness-based Therapy and a new one I just learned about is Eye Movement Desensitization and Reprocessing! Wow!!! It's not for everyone but desperate times can call for desperate measures.

I wish you all the best in learning through this forum. There are plenty of great people who will listen, care and share.

Best of luck to you in your journey.
Rachel

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@lorirenee1

@migizii I would suggest the CBD oil without the THC from CBDistillery.com That would be the ones that are not full spectrum, and are a bit cheaper than the ones that have the THC. I would at least get the 1,000 mg. bottle, or I doubt it will helop pain. I buy the 2500 mg. bottle, with the THC (less than .03%). The stuff works wonders for pain. Even better yet, is Kratom. If you want more info on Kratom, I would tell you exactly what to buy and where. Marvelous stuff. So much better than the doctor's pills. Good luck, Lori Renee

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Thank you for the information!

Liked by lioness

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@rwinney

Hi there and welcome! So glad you found Mayo Connect because it is a supportive, comforting place to come. I'm very sorry to hear of your pain and obstacles.

I was just reading about managing the psychological aspects of pain, which is found in a Small Fiber Neuropathy book that I own and often refer back to. Pain is pain no matter the diagnosis.

You know how when medicine is all you seem to have, not many people surrounding you can truly relate and you continue to not know what else to do?

This book shares various ways and beliefs to retrain your brain through Cognitive Behavioral Therapy, Acceptance and Commitment Therapy, Mindfuness-based Therapy and a new one I just learned about is Eye Movement Desensitization and Reprocessing! Wow!!! It's not for everyone but desperate times can call for desperate measures.

I wish you all the best in learning through this forum. There are plenty of great people who will listen, care and share.

Best of luck to you in your journey.
Rachel

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…one more simple thought…if you are able, keep a journal and just keep writing! Write what scares you, maddens you. Write what you worry about, what you hold out hope for. Try to write about something each day that brings a smile to your face even through your pain. It has worked for me and I hope it works for you.

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I have been having severe back pain since June. I apparently have bulging discs in my back and would like to hear from other people who have successfully dealt with this.

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@rwinney

…one more simple thought…if you are able, keep a journal and just keep writing! Write what scares you, maddens you. Write what you worry about, what you hold out hope for. Try to write about something each day that brings a smile to your face even through your pain. It has worked for me and I hope it works for you.

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@rwinney Those are some good suggestions I am going to start to journal again I haven't in over a year but will start I do mindfulness meditation and do find this helps . Thanks for the reminder

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