Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

I'm so sorry to butt into this conversation but does this really work for you because if it does I would like to get a dose of that to how much do you take how many times a day and how do I know what I can take and what the side effects might be I'm sorry for asking so many questions and I'm sorry for getting involved in your conversation but I'm in so much pain today I can't walk and I'm hurting so bad that all I do is cry all day so I read your blog and I just I'm interested

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@jimhd

@1prettymess

I feel I need to say something about opioids and antidepressants. They don't make a person"euphoric". I've been taking both for a long time, and I definitely have never experienced anything that is close to euphoria.

If a person who has chronic (also called clinical or major) depression is taking an antidepressant, the medication helps to level out the mood. Bipolar depression and bipolar disorder are another subject. Medication helps to make the mood swings that go from dark depression to a hyper, manic high, level out so the downs don't go as far down and the high doesn't get to a manic episode.

I've been taking a fairly low dose of morphine sulfate contin for several years now, specifically for the neuropathy pain, and it has helped take the edge off the pain. I stopped taking it yesterday because I started a new medication that seems to be helping a lot. My hope is that the Imipram will treat the pain enough so I can get off opioids. I've willingly taken it because it's the only medication that has treated my pain without unacceptable side effects.

Just wanted to add my two cents worth.

Jim

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Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine once, it gave me a blinding headache and put me to sleep – no euphoria that's for sure. I have had codeine cough syrup and codeine tablets, I take 1/2 the recommended dosage and go right to sleep – no euphoria with that either. I can take 1/2 of a Tramadol during the day, it doesn't make me sleepy or any kind of high, just dulls the pain so I can get on with my life. Lori, I will also ask doc if I can try the lowest dose of digestible CBD oil possible. I had a terrible reaction to pot (in the 70's) and I don't know which ingredient in the pot caused it. I tried the cbd cream, did nothing. Lioness, I have been to the Edgar Cayce Center in Virginia Beach, I will look online for their cbd tea. Anything is worth trying – the condition is advancing so quickly in me that my prescriptions are constantly changing. It's wearing me out – it's a full time job just keeping track of all my medicines and when they are due. Humana Insurance just started requiring patients to make 4 trips to the pharmacy to pick up Tramadol – they will only pay for 7 tablets at a time. Peggy

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@pfbacon

Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine once, it gave me a blinding headache and put me to sleep – no euphoria that's for sure. I have had codeine cough syrup and codeine tablets, I take 1/2 the recommended dosage and go right to sleep – no euphoria with that either. I can take 1/2 of a Tramadol during the day, it doesn't make me sleepy or any kind of high, just dulls the pain so I can get on with my life. Lori, I will also ask doc if I can try the lowest dose of digestible CBD oil possible. I had a terrible reaction to pot (in the 70's) and I don't know which ingredient in the pot caused it. I tried the cbd cream, did nothing. Lioness, I have been to the Edgar Cayce Center in Virginia Beach, I will look online for their cbd tea. Anything is worth trying – the condition is advancing so quickly in me that my prescriptions are constantly changing. It's wearing me out – it's a full time job just keeping track of all my medicines and when they are due. Humana Insurance just started requiring patients to make 4 trips to the pharmacy to pick up Tramadol – they will only pay for 7 tablets at a time. Peggy

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Peggy,
If you don't mind me asking…why do you only take 1/2 tramadol? Doesn't sound like it causes side effects. Might a whole go father for your pain?
Just asking as my goal is to get off hydrocodone but exploring back up, safe, affordable options.

Thanks for any input.
Rachel

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@pfbacon

Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine once, it gave me a blinding headache and put me to sleep – no euphoria that's for sure. I have had codeine cough syrup and codeine tablets, I take 1/2 the recommended dosage and go right to sleep – no euphoria with that either. I can take 1/2 of a Tramadol during the day, it doesn't make me sleepy or any kind of high, just dulls the pain so I can get on with my life. Lori, I will also ask doc if I can try the lowest dose of digestible CBD oil possible. I had a terrible reaction to pot (in the 70's) and I don't know which ingredient in the pot caused it. I tried the cbd cream, did nothing. Lioness, I have been to the Edgar Cayce Center in Virginia Beach, I will look online for their cbd tea. Anything is worth trying – the condition is advancing so quickly in me that my prescriptions are constantly changing. It's wearing me out – it's a full time job just keeping track of all my medicines and when they are due. Humana Insurance just started requiring patients to make 4 trips to the pharmacy to pick up Tramadol – they will only pay for 7 tablets at a time. Peggy

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@pfbacon The website is http://www.baar.com the catalogue is in Cayce Care at Edgar Cayce. I like the tea they also have drops and a cream that is more then I can afford its 90.00 I'm going for a cup of tea now as the pain is starting to get bad.

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@rwinney

Peggy,
If you don't mind me asking…why do you only take 1/2 tramadol? Doesn't sound like it causes side effects. Might a whole go father for your pain?
Just asking as my goal is to get off hydrocodone but exploring back up, safe, affordable options.

Thanks for any input.
Rachel

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I am off of hydrocodone because you have to go to a I am off of hydrocodone because you have to go to a pain clinic in order to get that kind of medication course it's a full-blown opioid..i take Tramadol/APAP 325mg. According to the pharmacist a doctor can prescribe that on an ongoing basis because it doesn't qualify as a full-blown opioid

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I did start on tramadol originally when I wasn't diagnoses properly and it did not help me. However, with my lidocaine infusions providing a percentage of relief, maybe it would be enough to balance it out. Hydro does now except on some occasions.

Curious if anyone has tried both and can compare Tradol vs. CBD/thc??

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@elmay

Hello. I am a 71 year old woman who has dealt with fibromyalgia for most of my adult life. Fortunately, I have a physician who acknowledges and validates the pain. He has worked with me through the last 10 years to find the right level of medications without having me take more than I should. He has guided me toward appropriate exercise, yoga, massage, cognitive changes, and relaxation. In October, he wants me to take a class about dealing with chronic pain ( which the Mayo system is teaching).

Fibro is not my only challenge. I have had a headache since September of 2014. Botox has helped a little, but it never totally goes away. I have Sjogren’s and Raynaud’s syndromes and take Plaquenil for a high CL level. Last fall I began to lose my sense of taste. Now my tongue stings around the edges. I have GERD. My balance has gradually deteriorated. Neuropathy in my feet has certainly not helped that problem.

In spite of it all, I feel pretty lucky because I’m maintaining some quality of life. Lots of days are not so good, but then some good ones come along, and they really give me hope.

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I know that self-diagnosis is a dangerous thing, but I also know that those of us who suffer with unknown pain keep searching for the answer. Recently I read quite a lot about CSF Leakage, and I truly believe that is what is going on for me. Does anyone have first hand experience with cerebral spinal fluid leakage? I would love to hear from you about what symptoms brought you to the diagnosis. The more I read about it the more I find I have almost all the symptoms. I have an appointment with a neurologist on the 21st. I hope I can deal with the non-stop headache till then. I also hope he doesn't laugh at me for trying to be my own doctor. Please let me know what you know about this problem. Thanks

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@rwinney

I did start on tramadol originally when I wasn't diagnoses properly and it did not help me. However, with my lidocaine infusions providing a percentage of relief, maybe it would be enough to balance it out. Hydro does now except on some occasions.

Curious if anyone has tried both and can compare Tradol vs. CBD/thc??

Jump to this post

You should only take painkillers when you need it and the CBD is something you do everyday twice a day but there are other treatments as I mentioned before as anti-inflammatories and eating properly. You've got to get off the opioids and try and exercise as if you can keep moving that would really help. That pemf back that I just got sent to me as I've tried it in two days and I definitely feel better and I just started. I hope I'm not imagining it but this get your blood circulating and it Technologies been around for years, but doctors do not prescribe it cuz it's not FDA-approved and it's not covered by insurance Spirit you've got to think out of the box

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@rwinney

I did start on tramadol originally when I wasn't diagnoses properly and it did not help me. However, with my lidocaine infusions providing a percentage of relief, maybe it would be enough to balance it out. Hydro does now except on some occasions.

Curious if anyone has tried both and can compare Tradol vs. CBD/thc??

Jump to this post

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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@elmay

I know that self-diagnosis is a dangerous thing, but I also know that those of us who suffer with unknown pain keep searching for the answer. Recently I read quite a lot about CSF Leakage, and I truly believe that is what is going on for me. Does anyone have first hand experience with cerebral spinal fluid leakage? I would love to hear from you about what symptoms brought you to the diagnosis. The more I read about it the more I find I have almost all the symptoms. I have an appointment with a neurologist on the 21st. I hope I can deal with the non-stop headache till then. I also hope he doesn't laugh at me for trying to be my own doctor. Please let me know what you know about this problem. Thanks

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Hello

The only thing I can attest to is a fluid leak after my spinal tap that left me with a spinal headache. I've been debilitated by migraines and in and out of urgent care for such but, this headache was very distinctive! Ended in ER receiving a blood patch and was good there after.

Wishing you all the best for a diagnosis.
Rachel

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@lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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I am not sure what kind of doctor you talkin about but he's a God sent for you because I don't know any doctor that would give that many pills at one time without having a problem with the law. They are highly regulated and in fact when you sent it to the pharmacy it's got to be signed and all this is sent to the DEA. That's why I'm taking this Tramadol which is under 50 well under in order to not be regulated and so he can prescribe it without a problem. I checked with the pharmacy in that is 100% all right but if I went to Tramadol 60 or hydrocodone I would have a problem with any doctor that I know of. Your thoughts

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@lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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Thank you for your insight. It's helpful.

Liked by lioness

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@donfeld

I am not sure what kind of doctor you talkin about but he's a God sent for you because I don't know any doctor that would give that many pills at one time without having a problem with the law. They are highly regulated and in fact when you sent it to the pharmacy it's got to be signed and all this is sent to the DEA. That's why I'm taking this Tramadol which is under 50 well under in order to not be regulated and so he can prescribe it without a problem. I checked with the pharmacy in that is 100% all right but if I went to Tramadol 60 or hydrocodone I would have a problem with any doctor that I know of. Your thoughts

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@donfeld I,ve heard this before I only know that in 05 I fractured my back at work and this was the med that my orthopedic Dr. gave me at that time . My Dr. knows this and she is fine in prescribing it for me At first she had to fax the script in then I had to take it to the pharmacy now I just call for a refill I'm very fortunate to be able to get it as all those years it was the only thing that gave me relieve. I'm sorry you cant get it . TramadolHCL is 50mg has been since 05 never higher at first I was on 6 a day then decreased myself with Dr. permission to only 1 now . Even Vicodin at one point I was worried about addiction but he told me as long as I take it as He ordered I wouldn't get addicted . I don't take that anymore.

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@donfeld

You should only take painkillers when you need it and the CBD is something you do everyday twice a day but there are other treatments as I mentioned before as anti-inflammatories and eating properly. You've got to get off the opioids and try and exercise as if you can keep moving that would really help. That pemf back that I just got sent to me as I've tried it in two days and I definitely feel better and I just started. I hope I'm not imagining it but this get your blood circulating and it Technologies been around for years, but doctors do not prescribe it cuz it's not FDA-approved and it's not covered by insurance Spirit you've got to think out of the box

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Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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@rwinney

Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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I am not familiar with that at all but all I know is if you're interested just look up PMC or doctor Pawluck in regards this treatment and he has a number of ideas about what the machine could do and cannot do as I just found that it's very good for neuropathy with diabetics. It is helping me and I can only say what I could feel but if you go to buy one check with me first cuz I have much better prices than he can offer but he is the guru of pemf. Just Google his name and it should come up. Anybody listen go and learn about this treatment because it can help you but it's out of the box it's not FDA-approved doctor Doan will tell you about it because it's not covered under insurance. My doctor at the Mayo said it can't hurt it could only help. And that's the first honest opinion I've gotten

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