Kelsey Mohring
@kelseydm
@kelseydm
Posts: 249
Joined: Feb 24, 2015
Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Liked by Kari Ulrich, Volunteer Mentor, lauren123, John, Volunteer Mentor, @parkerm ... see all
rwinney
@rwinney
@rwinney
Posts: 452
Joined: Apr 29, 2019
@lisash Ouch! How uncomfortable for you, and if it was me, I would be hesitant to do things in fear it will act up again, right? It sounds like maybe over time the injury has rubbed some nerves? Like @artscaping mentioned, perhaps a visit to urgent care would be in order to gain some relief. Being a caretaker is difficult enough, without having pain yourself. Have you tried any capsacin type heat producing creams/ointments, to give you some temporary ease?
Ginger
https://nervestra.com/alt/exclusive-report/?gclid=EAIaIQobChMI7dWo5PWu5QIVhM1kCh2BbgFbEAEYASAAEgJRJPD_BwE
Has Anyone Tried this?
Its Nervestra…I almost bought it, but thought I would run it through you guys since some of you have way more knowledge and insight than I do.
Thank you for any feed back.
Liked by Parus
https://nervestra.com/alt/exclusive-report/?gclid=EAIaIQobChMI7dWo5PWu5QIVhM1kCh2BbgFbEAEYASAAEgJRJPD_BwE
Has Anyone Tried this?
Its Nervestra…I almost bought it, but thought I would run it through you guys since some of you have way more knowledge and insight than I do.
Thank you for any feed back.
I am NOT SELLING, NOR AM I ADVERTISING THIS PRODUCT.
I know nothing about it, I am simply asking for any feedback from any of you about it.
Again, thankyou.
Liked by Jim, Volunteer Mentor, Parus
pfbacon
@pfbacon
@pfbacon
Posts: 226
Joined: Sep 24, 2018
Chris Trout, Volunteer Mentor
@artscaping
@artscaping
Posts: 780
Joined: Jul 11, 2017
Hi I am Shar
@sharlene, Good evening and welcome to Connect. I am not medically trained and cannot diagnose or recommend treatment that I have not experienced first hand. Personally, I live with small fiber neuropathy (SFN) and some form of pain or discomforted every minute of every day. I have suffered and I have learned, discovered and practiced options for controlling the pain.
I am happy to share with you and introduce you to other patients and mentors who would be a good match for your inquiries.
Would you please take a few minutes to tell me what health condition you are experiencing. Thank you and may you be safe and protected. Chris
Liked by Jim, Volunteer Mentor, Parus, Ginger, Volunteer Mentor
thomasesmom
@thomasesmom
@thomasesmom
Posts: 9
Joined: Mar 01, 2018
I haven't found anyone that wants to deal with my pain except for mentally and xercise. I'm contemplating moving to location where I can get medical marijuana or just be able to purchase it
legally without having to go through a doctor it seems that that's what they're pushing us to do good luck all I can do is pray for you too
Please UNSUBSCRIBE me from your Mailing list. Thanks
Kanaaz Pereira, Connect Moderator
@kanaazpereira
@kanaazpereira
Posts: 2414
Joined: Oct 09, 2016
Please UNSUBSCRIBE me from your Mailing list. Thanks
Hi @thomasesmom,
You can unsubscribe from groups, discontinue receiving emails or choose which ones you'd like to receive related to your interests in your Account Settings. See instructions here, https://connect.mayoclinic.org/get-started-on-connect/
The instructions include:
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Should you wish to start receiving notifications again, simply login again and set your notification preferences to receive only the emails you wish to receive.
Let me know if you have any questions.
Best regards.
Liked by Ginger, Volunteer Mentor
Jim, Volunteer Mentor
@jimhd
@jimhd
Posts: 1478
Joined: Aug 10, 2016
Thanks, all of you. Jim, I will ask my doc about Imipram. I was given morphine once, it gave me a blinding headache and put me to sleep – no euphoria that's for sure. I have had codeine cough syrup and codeine tablets, I take 1/2 the recommended dosage and go right to sleep – no euphoria with that either. I can take 1/2 of a Tramadol during the day, it doesn't make me sleepy or any kind of high, just dulls the pain so I can get on with my life. Lori, I will also ask doc if I can try the lowest dose of digestible CBD oil possible. I had a terrible reaction to pot (in the 70's) and I don't know which ingredient in the pot caused it. I tried the cbd cream, did nothing. Lioness, I have been to the Edgar Cayce Center in Virginia Beach, I will look online for their cbd tea. Anything is worth trying – the condition is advancing so quickly in me that my prescriptions are constantly changing. It's wearing me out – it's a full time job just keeping track of all my medicines and when they are due. Humana Insurance just started requiring patients to make 4 trips to the pharmacy to pick up Tramadol – they will only pay for 7 tablets at a time. Peggy
Hi, Peggy. Humana is my supplemental prescription insurance, and I order almost exclusively from their mail order pharmacy – Humana Pharmacy. I no longer have to go to the doctor's office to pick up a paper prescription and go to the pharmacy and hand them the scrip. My doctors just order on their computers while I'm sitting there, and a 90 day supply is mailed. My controlled substance meds only come every 30 days, and I send the doctor a request for a refill online. It's a great improvement over the drama of making all the phone calls and trips to town and sit and wait at the doctor's office and the pharmacy.
Jim
Liked by Ginger, Volunteer Mentor
Jim, Volunteer Mentor
@jimhd
@jimhd
Posts: 1478
Joined: Aug 10, 2016
Hello, my daughter (10) is newly diagnosed CRPS (chronic regional pain syndrome) right ankle and has not walked since Juky 2019. Trying to find her pain relief & treatment options.
Hi, @dmac5 I've seen CRPS mentioned from time to time but I really know nothing about it. What doctors is she seeing? How is a diagnosis of CRPS made? It sounds painful, and I surely feel for her and you. I have small fiber peripheral neuropathy with pain pretty much in my feet and ankles, and tingling and pins and needles up to me knees.
Finding treatment and medications can be an arduous task, to say the least. It has been for me. Has she found anything that gives her some relief?
There may be a discussion about CRPS here at Mayo Connect. I'll try to find out. Welcome to Connect. It's been a significant part of my support system for several years. I hope you find some answers soon.
Jim
Liked by dmac5
Jim, Volunteer Mentor
@jimhd
@jimhd
Posts: 1478
Joined: Aug 10, 2016
Hi, @dmac5 I've seen CRPS mentioned from time to time but I really know nothing about it. What doctors is she seeing? How is a diagnosis of CRPS made? It sounds painful, and I surely feel for her and you. I have small fiber peripheral neuropathy with pain pretty much in my feet and ankles, and tingling and pins and needles up to me knees.
Finding treatment and medications can be an arduous task, to say the least. It has been for me. Has she found anything that gives her some relief?
There may be a discussion about CRPS here at Mayo Connect. I'll try to find out. Welcome to Connect. It's been a significant part of my support system for several years. I hope you find some answers soon.
Jim
@dmac5 I found a discussion by going to the home page and typing CRPS in the search box. It has been active for two years, so you might get some ideas by browsing through the posts.
Best of luck.
Jim
lioness
@lioness
@lioness
Posts: 5256
Joined: Jan 09, 2018
Hi, Peggy. Humana is my supplemental prescription insurance, and I order almost exclusively from their mail order pharmacy – Humana Pharmacy. I no longer have to go to the doctor's office to pick up a paper prescription and go to the pharmacy and hand them the scrip. My doctors just order on their computers while I'm sitting there, and a 90 day supply is mailed. My controlled substance meds only come every 30 days, and I send the doctor a request for a refill online. It's a great improvement over the drama of making all the phone calls and trips to town and sit and wait at the doctor's office and the pharmacy.
Jim
@jimhd Glad to hear this about Humana I'm starting in Jan. and want my Rx ,perscriptions, sent from the mail order . So they have there own is it hard to set up I had another one but had to jump throw hoops to set it up .
Jim, Volunteer Mentor
@jimhd
@jimhd
Posts: 1478
Joined: Aug 10, 2016
@jimhd Glad to hear this about Humana I'm starting in Jan. and want my Rx ,perscriptions, sent from the mail order . So they have there own is it hard to set up I had another one but had to jump throw hoops to set it up .
How did you sign up for the Humana policy you have? If you have an agent, they could walk you through it. If you want to you can go online to your current account and look up the prescription mail order pharmacy. If you need help, I can help you figure it out. Obviously I'm not employed by Humana. In fact I'm not employed by anyone.
Jim
@karen00
@rwinney Hi Rachel, thank you for the note. We will keep each other posted on our journey, right?
Liked by rwinney