Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@rwinney

Thank you for your reply. Unfortunately, my body challenges me with something as simple as walking, driving, getting up and down my stairs, stirring food in a pot and squeezing a tube of toothpaste. Don't get me wrong, I do persevere and push through as much as I can even if it's just making a bed, its movement. Neuropathy is throughout my body, unfortunately.

I appreciate thinking outside the box. Does your machine provide a technique similar to myofacial release?

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@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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@donfeld

I am not familiar with that at all but all I know is if you're interested just look up PMC or doctor Pawluck in regards this treatment and he has a number of ideas about what the machine could do and cannot do as I just found that it's very good for neuropathy with diabetics. It is helping me and I can only say what I could feel but if you go to buy one check with me first cuz I have much better prices than he can offer but he is the guru of pemf. Just Google his name and it should come up. Anybody listen go and learn about this treatment because it can help you but it's out of the box it's not FDA-approved doctor Doan will tell you about it because it's not covered under insurance. My doctor at the Mayo said it can't hurt it could only help. And that's the first honest opinion I've gotten

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Amen to that!

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@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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Thank you. Yes, we are! 😉

Liked by guga

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@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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@lioness I also used the Topricin cream. I have neuropathy in my legs and feet and also have fibromyalgia. My sister recommended this cream and I am very pleased. I use each evening on my legs and feet. It helps so much, even with the numbness. I ordered it from Amazon (of course). My sister orders directly from the site and says they always have sales.

Liked by lioness, rwinney

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@rwinney

I did start on tramadol originally when I wasn't diagnoses properly and it did not help me. However, with my lidocaine infusions providing a percentage of relief, maybe it would be enough to balance it out. Hydro does now except on some occasions.

Curious if anyone has tried both and can compare Tradol vs. CBD/thc??

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They are two different purposes and Tramad is one we to stop someday.

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@jimhd

@guga

I think I'll save your post about all of the back, hip, pelvis, and leg pain, and read it when my pain level is up. It will make my pain feel insignificant. I know from experience how painful back pain can be.

I have collapsed on the lawn and deck steps and in the house when out of the blue my right leg suddenly turns to jello. It's pretty scary. I'm fortunate that it hasn't injured me.

I was 55 when I had to retire and start living on Social Security with disability. Medicare has been a Godsend for me. Blue Cross premiums were crazy high. If you're on Medicare, you should be seeing a health professional who will advocate for you, to begin treating your pain. ER shouldn't be your only source of pain medication.

I'm very pleased with the team of doctors who treat me – my PCP, neurologist, pain specialist, orthopedist and various others. When I retired we moved from a tiny town (population 247) that was 3 hours from medical services to a place where I can see just about any kind of doctor within 50 miles. Are doctors accessable to you? Is your PCP happy to refer you to specialists? I know that not all of them want to do that.

When you see your doctor, be sure to be clear about your level of pain. I make a list of things to talk about because if I don't, I remember 2 or 3 things after I leave the clinic. It never fails!

I write in a journal every night, and I rate my day on a scale of one to ten. For depression, ten would be the best day in my life. For pain, it usually fluctuates, so I write the range, from 4-8 or 2-5. The doctors always ask me how the pain has been, and I can tell them what the range has been.

It sounds like a lot of surgeries would be required to treat your spinal problems. Is that something you would consider? Have your doctors talked with you about your options? Do you have access to a physical therapist? Sorry for all the questions. I guess I'm just most. I'm impressed with your will to keep moving. I hope that you soon will find some relief.

Jim

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Thank-you for mentioning a daily pain/depression journal. That's exactly what I need at this stage in my pain.

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@lorirenee1

@pfbacon Hi. Glad to help. I get the CBD salve from anandahemp.com They sell only one salve, so that is the one! It is about $25.00 I get the cbd drops that I put in the dropper from cbdistillery.com I get the 2500mg. drops, that do have the minimum dose of .03% THC. I find that these drops are quite relaxing, and take pain away. Both companies are very reputable, and ship products to your home. Let me know if you need anything else….. Lori Renee

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Thanks so much everyone for the helpful advice😊😊😊

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@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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What is MFR? Myofascial release? How do you do it? I have fibromyalgia on top of my arthritis on top of Stage IV cancer (bones,joints,organs…).Is the Topricin the same minty cream you can get at the P.T? Thankyou. I just found out from this site my horrible leg pain might be caused also from the cancer causing my spine to collapse.

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Good evening @lillyanne, It appears that you have some significant medical challenges. MFR is a form of treatment that releases restrictions in the fascia in our bodies. Fascia is a layer of dense fibrous connective tissue that surrounds individual muscles and organs. This fascia has a high density of elastin fiber that determines its extensibility or resilience. When it loses its natural fluidity, it becomes tangled into tight layers that result in significant pain. MFR is a treatment that releases the restrictions and relieves the pain associated with them.

I just took a new person to observe the actual treatment today. She was amazed to find that it is not massage and requires exceptional training in order to find the restrictions and then use talented and well-trained hands to release the restrictions. She will be returning tomorrow for her first treatment.

There is already a discussion on Connect that has lots of information and introduces members to @jenniferhunter who is knowledgeable and helpful.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/?utm_campaign=search

You will also find a list of certified MFR therapists at the following location:
myofascialrelease.com

Please let me know of the particular questions you may have. May you be free of suffering and enjoy the day tomorrow. Chris

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@donfeld

You should only take painkillers when you need it and the CBD is something you do everyday twice a day but there are other treatments as I mentioned before as anti-inflammatories and eating properly. You've got to get off the opioids and try and exercise as if you can keep moving that would really help. That pemf back that I just got sent to me as I've tried it in two days and I definitely feel better and I just started. I hope I'm not imagining it but this get your blood circulating and it Technologies been around for years, but doctors do not prescribe it cuz it's not FDA-approved and it's not covered by insurance Spirit you've got to think out of the box

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What is pemf?

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@lioness

@rwinney Hi I have done both . The CBD,thc gave me headache and I didn't like the loopy feeling I got so I drink the hemp-chamomile tea from Baar its from the Edgar Cayce foundation A.R.E. My TramadolHCL is 50 mg and I only take it at night I can take it twice a day but don't need to . I haven't had any problems getting the prescription. Dr. gives me 90 at a time

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Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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@guga

Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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Hello. Thanks for your info. Isn't it awful….
the games we must play because of pain. I'm glad yours is somewhat under control.

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@guga

Tramadol has never taken the pain away from me and provides tons of insomnia I don't sleep for days I look like a walking zombie oh yeah I have taken 2.5 mg of a hydrocodone and that takes the edge off the pain and when it gets extremely painful I take one full tablet and it seems to work wonders at night in order for me to sleep I take Benadryl the hydrocodone is provided to me only for 5 days normally lasts about eight nine days I stretch it out as much as possible, since I try to deal with the pain as best as possible all on my own, it's only when his pain is so horrible that I can't take it anymore i run to the local emergency room and they give me five days worth and a pain shot and that seems to work for a good eight days and then it starts all over again the pain is never gone but at least I know I can control some of it

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It is quite obvious that your pain level is it higher than mine, but I've been there and I've come back out of it and don't ask me how it's just what I happen to have going for me. Just to give me an example as I sleep real well on tramadol and you don't so everybody's different and that's why we talk as we try to find the answers which are extremely difficult in today's day and age. We all need help and the pain does not stop different stages of moves in ways we can control. The exchange of ideas is the only thing we got going without more surgery and more injections which caused my AA. I'm just in a preventive mode now dealing with things that work give into me from Doctor tenant and other ideas that I'm using and therefore I feel myself getting stronger and I don't have the complete answer yet as I think nobody does. I pray for you and hope things get better.

Liked by rwinney

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@donfeld

It is quite obvious that your pain level is it higher than mine, but I've been there and I've come back out of it and don't ask me how it's just what I happen to have going for me. Just to give me an example as I sleep real well on tramadol and you don't so everybody's different and that's why we talk as we try to find the answers which are extremely difficult in today's day and age. We all need help and the pain does not stop different stages of moves in ways we can control. The exchange of ideas is the only thing we got going without more surgery and more injections which caused my AA. I'm just in a preventive mode now dealing with things that work give into me from Doctor tenant and other ideas that I'm using and therefore I feel myself getting stronger and I don't have the complete answer yet as I think nobody does. I pray for you and hope things get better.

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Knowledge is power. 💪🏼

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@lioness

@rwinney I have some neuropathy in my legs not feet and arms my more perplexing problem is from fibromyalgia and I found a cream that is for this and neuropathy . Topricin cream it settles the nerves down if this is your problem it may help you . Its hard to find not all drug stores have it . I have found it at CVS only otherwise you have to get it online . I don't know what kind of machine donfeld is talking about . I do on my self MFR massage that helps my legs. Keep fighting don't give up we are all pain warriors

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I ordered Topricin cream thru Amazon last night. Will give it a whirl! Reasonably priced and nothing to lose. Thanks!

Liked by lioness

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