Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@summertime4

Is anyone familiar with Morton neuroma of the foot?. I belong to the neuropathy group and chronic pain and didn't know where to ask this question and it is a very significant pain for me so if you can guide me please.

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@summertime4 I had Mortons neuroma and saw my podiatrist It was between my 2-3 toe He injected it and haven't had trouble since Dr. did say if it came back put foot on ice bag and it did work. I really haven't had any problems since then that was years ago.

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@lioness I thank you so much for your reply. I have been in great pain for over 8 months in my foot. My toes, my foot, my ankle up to my knee are swelling. The pain in my foot kept me from every day enjoyment which you might have read in some of my posts. I was diagnosed with lymphedema, chronic venus insufficiency, fibromyalgia. I was seen by 2 vein doctors who said that issue was not causing the pain but the swelling may be pushing on the nerve so lymphedema therapy. I have not had cancer or lymph node issues and they finally did a CAT scan and said lymph nodes not blocked. Foot still in pain. I was sent to a orthopedic surgeon by vein doctor and ortho doctor asks why I was there and eyes my painful swollen foot. Pain management does MRI on foot and ankle and shows mild osteoarthritis, small bone spure, small this that. I am told that shouldn't cause the swelling or that much pain. I will stop although there is more. I just get so upset. One morning I wake up in awful pain as usual and call my niece in tears and she takes me to ER in hospital.. They really couldn't do anything as I wasn't bleeding to death and I had pain meds, but did suggest a podiatrist outside of our hick town. I followed through and went last week and within 15 min and much touching and paining of my foot told me Morton neuroma. I said no to the shot. No more pain inflicted. He ut me on the 5 day steroid pack and within 3 and with a special pair of shoes I am able to stand. I have much fear now that the med pack is done and it hurts a bit and I don't think it will just stop because it is soooo inflamed after all this time and ding all the wrong things. The nerves are under my foot and in my toes and are affecting the entire foot and ankle and then the neuropathy decides to attack also. You think I am on the road to focus on dealing with the pain of the fibro and neuropathy? Sorry for such a long piece. I am so anxious just kind of waiting for this foot to drop.

Liked by lioness

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@summertime4

@lioness I thank you so much for your reply. I have been in great pain for over 8 months in my foot. My toes, my foot, my ankle up to my knee are swelling. The pain in my foot kept me from every day enjoyment which you might have read in some of my posts. I was diagnosed with lymphedema, chronic venus insufficiency, fibromyalgia. I was seen by 2 vein doctors who said that issue was not causing the pain but the swelling may be pushing on the nerve so lymphedema therapy. I have not had cancer or lymph node issues and they finally did a CAT scan and said lymph nodes not blocked. Foot still in pain. I was sent to a orthopedic surgeon by vein doctor and ortho doctor asks why I was there and eyes my painful swollen foot. Pain management does MRI on foot and ankle and shows mild osteoarthritis, small bone spure, small this that. I am told that shouldn't cause the swelling or that much pain. I will stop although there is more. I just get so upset. One morning I wake up in awful pain as usual and call my niece in tears and she takes me to ER in hospital.. They really couldn't do anything as I wasn't bleeding to death and I had pain meds, but did suggest a podiatrist outside of our hick town. I followed through and went last week and within 15 min and much touching and paining of my foot told me Morton neuroma. I said no to the shot. No more pain inflicted. He ut me on the 5 day steroid pack and within 3 and with a special pair of shoes I am able to stand. I have much fear now that the med pack is done and it hurts a bit and I don't think it will just stop because it is soooo inflamed after all this time and ding all the wrong things. The nerves are under my foot and in my toes and are affecting the entire foot and ankle and then the neuropathy decides to attack also. You think I am on the road to focus on dealing with the pain of the fibro and neuropathy? Sorry for such a long piece. I am so anxious just kind of waiting for this foot to drop.

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@summertime4 I'm glad to hear you got some relieve but since you have so much inflammation as you said you may have to get the injection as this goes to the problem where a pills go throughout your body but just my experience with pills versus injection that's why I let the Dr. do the inj. for me . My foot wasn't as swollen as yours so it may take more time for you .Tumeric and ginger as ice are anti inflammatroies I use almost daily. There are some ginger turmeric teas one is from Trader Joes. Or you can make your own. Wishing you the best

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Hello, I contacted the hospital a while ago for help for Adhesive Arachnoiditis. The response was a general one. I need help because my situation is getting worse and worse. The more that is done the worse you become. What I would like is someone in the medical profession who will acknowledge A.A.. It is an International Disease that is just about ignored. Funny, easily found on the internet. When I called I could not find the Dept's to speak with. Lots of transferring. There is no place that I know of that is doing research or trial. Would you have any information who I can contact? If not I understand.

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In fact it is listed under the National Organization for Rare Disorders (NORD). And I believe recognized under Neurology and seen in Radiology. Mayo has posted some research on it. Because there is no cure and is inoperable I believe it is mostly falling under Chronic Pain Management. Because only Pain Mgmt seems to deal with it. I will be having to mention it next week and will see if they have any leads for me. Personally I believe there is a connection between AA and NPH But dont quote me. Am not a doc. Living with both for years now is my only rationale. NPH has to do with problems with flow of CSF, and AA can cause obstruction of CSF. That’s the only connection I see but makes so much sense to me. Will see what Mayo evaluation tells me. Am open to all ideas that can help.

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@summertime4

Is anyone familiar with Morton neuroma of the foot?. I belong to the neuropathy group and chronic pain and didn't know where to ask this question and it is a very significant pain for me so if you can guide me please.

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@summertime4 Here is Mayo's information about Morton's Neuroma. Since this might involve tight tissue around the nerves, it's possible that Myofascial Release could help. Here is our discussion with lots of information in MFR.
https://www.mayoclinic.org/diseases-conditions/mortons-neuroma/symptoms-causes/syc-20351935
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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@jenniferhunter Thank you so much. I will go to that link very shortly but wanted to thank you right now.

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@summertime4

Is anyone familiar with Morton neuroma of the foot?. I belong to the neuropathy group and chronic pain and didn't know where to ask this question and it is a very significant pain for me so if you can guide me please.

Jump to this post

@summertime4 I have had surgery for them in 2012. My foot has numb areas now and some parts very sensitive and feels like being stuck with a needle. I had a recurrence of pain in 2016.. while walking it felt like I stepped on a sharp stone. Just like the first time. I got I don't know how many injections. I finally went to another town to see a different doctor. He ordered a mri and it showed another small neuroma. He suggested physical therapy. I got to the referral and unfortunately the young lady did not know much about foot therapy.. but she knew who did. A man that had helped me with many other times. I have known him now for 13 years… sometimes hard to keep up with where he works at. He has amazed me with his constant seeking of knowledge to help his patients. He did severals things but what helped me most was he used pins… similar to acupuncture and he attached a tens machine to them. A strange feeling. Pins were not painful. He also told me take any arthritis pain rub that works for me and to massage it into just the top of my foot nightly. (I use the equate version of aspercreme). I am not totally pain free, but I can walk and stand on my foot for a while now. I will have to do repeats of the therapy sometimes, but hopefully I can avoid another surgery.

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@fourof5zs

@summertime4 I have had surgery for them in 2012. My foot has numb areas now and some parts very sensitive and feels like being stuck with a needle. I had a recurrence of pain in 2016.. while walking it felt like I stepped on a sharp stone. Just like the first time. I got I don't know how many injections. I finally went to another town to see a different doctor. He ordered a mri and it showed another small neuroma. He suggested physical therapy. I got to the referral and unfortunately the young lady did not know much about foot therapy.. but she knew who did. A man that had helped me with many other times. I have known him now for 13 years… sometimes hard to keep up with where he works at. He has amazed me with his constant seeking of knowledge to help his patients. He did severals things but what helped me most was he used pins… similar to acupuncture and he attached a tens machine to them. A strange feeling. Pins were not painful. He also told me take any arthritis pain rub that works for me and to massage it into just the top of my foot nightly. (I use the equate version of aspercreme). I am not totally pain free, but I can walk and stand on my foot for a while now. I will have to do repeats of the therapy sometimes, but hopefully I can avoid another surgery.

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@fourof5zs Thank you How long did it take before it was decided to do surgery? How many shots did you have? Were they cortizone and did they hurt like really bad? I have neuropathy on top of this so I don't know if numbness is neuropathy or neuroma. All I know is pain.and swelling. Even at night when in bed. I am going back on gabapentin and pray that helps at least with the neuropathy. I wi be going for acupuncture soon.

Liked by jkgraham393

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@summertime4

@fourof5zs Thank you How long did it take before it was decided to do surgery? How many shots did you have? Were they cortizone and did they hurt like really bad? I have neuropathy on top of this so I don't know if numbness is neuropathy or neuroma. All I know is pain.and swelling. Even at night when in bed. I am going back on gabapentin and pray that helps at least with the neuropathy. I wi be going for acupuncture soon.

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@summertime4 I had the surgery in 2012. My memory is about shot… so much other stuff has happened in between then and now. .. a lot of anesthesia that caused some memory loss. My best guess is 4-6 injections over about 3 month period… I think they were DEPO-MEDROL (methylprednisolone acetate), but not positive. Most of them not painful. It got to where I could barely walk a few feet. If I had known about physical therapy back then I would have tried it before surgery. It took about six months to recover from surgery. After surgery for such and such time you cannot put any weight on your foot and then it is like 10 minutes allowed so many times a day. Sitting with foot elevated is just no fun. I had to use my recliner and a couple of pillows under my leg.. I slept in my recliner for a while. I am a get up every 30 minute and move around person.. hard for me to sit still.

With this last neuroma I had more injections than I can remember over about a 9 month period .. with promises of an mri ordered from my podiatrist… before I gave up and went to a orthopedist that gave me the worst injection ever.. so gave up on him and found a very good podiatrist in another town. (it pays sometimes to ask friends for recommendations… especially a nurse)

No more injections… just getting to the correct physical therapist. In addition to the pins with tens machine attached he also used some torturous looking tools to help stretch out the muscles that had tightened with the pain. I had already had some numbness in my outer side of foot from a herniated disc in my back in 1993. My middle toe has no feeling except for the very tip.. really weird. The rest if my foot I feel. Sometimes I have the pin and needle sensation throughout my foot.. especially if I forget to put the cream on the top of my foot at night. I plan on keeping up the PT as needed and a and surgery as long as possible.

Liked by jkgraham393

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Hi,
I’m only 41 years old mom with 2 daughters who has finally after years of being used has a pin cushioned been diagnosed with chronic pain, idiopathic small fiber neuropathy, inflammatory neuropathy, depression and anxiety. I have suffered from pain the last 5 years on my own until I found a MD who believed me that I was in so much pain and I couldn’t do anything with my daughters, go to the park to play and there question was why I couldn’t be like the other moms. I didn’t know how to answer that question, now I’m getting help, but my husband and I just lost our jobs and no health insurance. Just has I was getting things in order we lost our insurance. I’m on Lyrica which so expensive, pain medication, anxiety, etc. where do to turn to because Lyrica I need to ween off of? Just too expensive anyways that is my story and they still don’t know where the neuropathy is coming from, oh, on to of it, I have RLS.

Liked by jkgraham393

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@2013pain

Hi,
I’m only 41 years old mom with 2 daughters who has finally after years of being used has a pin cushioned been diagnosed with chronic pain, idiopathic small fiber neuropathy, inflammatory neuropathy, depression and anxiety. I have suffered from pain the last 5 years on my own until I found a MD who believed me that I was in so much pain and I couldn’t do anything with my daughters, go to the park to play and there question was why I couldn’t be like the other moms. I didn’t know how to answer that question, now I’m getting help, but my husband and I just lost our jobs and no health insurance. Just has I was getting things in order we lost our insurance. I’m on Lyrica which so expensive, pain medication, anxiety, etc. where do to turn to because Lyrica I need to ween off of? Just too expensive anyways that is my story and they still don’t know where the neuropathy is coming from, oh, on to of it, I have RLS.

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@2013pain Welcome to Mayo Connect. We are glad you found us. We are not doctors here, nor can we diagnose. We do offer our support, experiences and knowledge to fellow patients and caregivers, covering a wide range of topics. I am glad that your conditions were finally diagnosed, but so sad to hear about the loss of income and insurance. Is there a county facility that you can go to? Have you checked with the MD you found, to get his suggestions on where to turn to? Have you checked with the manufacturers of Lyrica to see if they have a program you can qualify for?I hope you will come back and let us know how things turn out. Will you do that? We care here.
Ginger

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@2013pain

Hi,
I’m only 41 years old mom with 2 daughters who has finally after years of being used has a pin cushioned been diagnosed with chronic pain, idiopathic small fiber neuropathy, inflammatory neuropathy, depression and anxiety. I have suffered from pain the last 5 years on my own until I found a MD who believed me that I was in so much pain and I couldn’t do anything with my daughters, go to the park to play and there question was why I couldn’t be like the other moms. I didn’t know how to answer that question, now I’m getting help, but my husband and I just lost our jobs and no health insurance. Just has I was getting things in order we lost our insurance. I’m on Lyrica which so expensive, pain medication, anxiety, etc. where do to turn to because Lyrica I need to ween off of? Just too expensive anyways that is my story and they still don’t know where the neuropathy is coming from, oh, on to of it, I have RLS.

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@2013pain I'm sorry you lost your insurance for all you need. I had to call manufacture one time when I was on Lyrica they gave me a discount card ,also there is GoodRx its a good card for medicines. I never used it so don't know how it works go to its website goodRx The Dr. may have samples . Even before my Cholesterol went generic I had to get a card from Astra Zeneca the manufacturer

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@fourof5zs

@summertime4 I had the surgery in 2012. My memory is about shot… so much other stuff has happened in between then and now. .. a lot of anesthesia that caused some memory loss. My best guess is 4-6 injections over about 3 month period… I think they were DEPO-MEDROL (methylprednisolone acetate), but not positive. Most of them not painful. It got to where I could barely walk a few feet. If I had known about physical therapy back then I would have tried it before surgery. It took about six months to recover from surgery. After surgery for such and such time you cannot put any weight on your foot and then it is like 10 minutes allowed so many times a day. Sitting with foot elevated is just no fun. I had to use my recliner and a couple of pillows under my leg.. I slept in my recliner for a while. I am a get up every 30 minute and move around person.. hard for me to sit still.

With this last neuroma I had more injections than I can remember over about a 9 month period .. with promises of an mri ordered from my podiatrist… before I gave up and went to a orthopedist that gave me the worst injection ever.. so gave up on him and found a very good podiatrist in another town. (it pays sometimes to ask friends for recommendations… especially a nurse)

No more injections… just getting to the correct physical therapist. In addition to the pins with tens machine attached he also used some torturous looking tools to help stretch out the muscles that had tightened with the pain. I had already had some numbness in my outer side of foot from a herniated disc in my back in 1993. My middle toe has no feeling except for the very tip.. really weird. The rest if my foot I feel. Sometimes I have the pin and needle sensation throughout my foot.. especially if I forget to put the cream on the top of my foot at night. I plan on keeping up the PT as needed and a and surgery as long as possible.

Jump to this post

@fourof5zs Thank you for the info. I am not planning on repeated cortisone shots. I know how painful they were in my knew and the foot and hand are bad. I may allow the predisone as I hear it is not bad and does help. He gave me the med pack which is predisone steroid and that helped sooo much but can't do that often. I also have neuropathy and am referred to physical therapy. I haven't started because I wanted to hear what the podiatrist had to say on Wednesday. I love water therapy. I am so tired of pain, swelling, cramps, crying, depression. Al on here know all about it. My sister suggested a cream for neuropathy pain and swelling and I ordered off of Amazon. It is Topricin. She says it works. It just arrived and I am going to try it. Has anyone used this cream? I will let you know how it works for me.

Liked by lioness, jkgraham393

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@summertime4

@fourof5zs Thank you for the info. I am not planning on repeated cortisone shots. I know how painful they were in my knew and the foot and hand are bad. I may allow the predisone as I hear it is not bad and does help. He gave me the med pack which is predisone steroid and that helped sooo much but can't do that often. I also have neuropathy and am referred to physical therapy. I haven't started because I wanted to hear what the podiatrist had to say on Wednesday. I love water therapy. I am so tired of pain, swelling, cramps, crying, depression. Al on here know all about it. My sister suggested a cream for neuropathy pain and swelling and I ordered off of Amazon. It is Topricin. She says it works. It just arrived and I am going to try it. Has anyone used this cream? I will let you know how it works for me.

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Water was the best therapy, so I would go to the lake when ever I could with my daughters. The only thing that I have noticed that is even a little bit noticeable is my food intake. No processed foods and sugar intake has to be extremely limited. If I could be in bed 24/7 that would help a lot but that’s not being realistic.

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