Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@johnbishop

Just saw this article in my newsfeed and thought the members in this discussion might find it interesting. I do take 1.5 oz daily of Manitoba Harvest Organic Hemp Seed Oil but not for pain.

CBD products, hemp oil may be helpful but more research is needed, Mayo Clinic review says
https://newsnetwork.mayoclinic.org/discussion/cbd-products-hemp-oil-may-be-helpful-but-more-research-is-needed-mayo-clinic-review-says/

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@johnbishop Hi John, thank you for the article. I must be the only person in the world who tried CBD oil and got no help. Maybe I wasnt taking a strong enough dose, but where do you get that info? I had no idea what strength or how much. It’s bewildering. ……..Karen

REPLY
@karen00

@johnbishop Hi John, thank you for the article. I must be the only person in the world who tried CBD oil and got no help. Maybe I wasnt taking a strong enough dose, but where do you get that info? I had no idea what strength or how much. It’s bewildering. ……..Karen

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Hi @karen00, I’m tagging @artscaping who I think I think may be able provide some answers for you.

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@karen00, @johnbishop This situation is disconcerting.
Let's tackle the dosage first. Cannabis products must show MG and the ratio of CBD to THC. In addition, if you are using a tincture there will be a dropper in the bottle and more and more I am seeing the mg printed on the side of the dropper just like in your kitchen measuring cup.

As to what dosage is right for you using a tincture distribution system…..that will depend on the time of day and whether you hold it under your tongue or blend it with your morning coffee. When the cannabis tincture is held under the tongue it passes through the porous membrane under the tongue. Results will be quick….10-15 minutes and will last about 3-4 hours. When you put your tincture dose in your beverage it will have to go through the digestive system. The results can begin to show within 45 minutes. If it has a second wind, more could be released. I haven't done this for a while but I remember this lasting about 3 hours.

So…now to the more difficult part. You need to have some help coming to a decision about the size of the dose. A couple of days ago, I actually counted the drops for a member so that she would understand. If you are using the dropper measurement that is easier.

For help with the amount to use, you need the help of one of the dispensary staff or a representative at the pain clinic or the pharmacy distributing it. The folks in the dispensary want to get it right so you will appreciate their service and trust their products. Let's say it is morning…..and you want to start off with a relatively pain-free day. You might choose a 1/4 dropper of 1:1 CBD/THC or a 1/2 dropper of 2:1 CBD/THC. You will be encouraged to start with less if this is your first experience and with less if you are testing a new product. Also, your body adjusts to the cannabis just like all other medications so you will need to up the dose at a later date. One company is now offering Cannabis "flights". There is a link below.

I think you will be seeing some better measuring options. I am happy to help with any questions you may have. My cannabis journey is about 4 years now. I have a pretty fail-safe system. A day with only cannabis for pain, the growing pain of small fiber neuropathy (SFN).

I am also going to attach a link to the current publication of Leafy. It is quite informative. I do want to respond to your statement about…."Am I the only one who isn't helped by CBD?"

The cannabis industry is in a boom stage. Organization, labeling, and information are left for later. Right now the dispensaries have to meet all of the regulations, maximize their inventory, never run out, and provide a positive customer experience. What also happens is that folks dose themselves with the wrong product, eg. Hemp Oil, and learn later that there isn't enough cannabidiol in the Hemp derivative. So….wrong product. The placebo effect also jumps in. Folks who don't want to be left out of the rising popularity of cannabis…..sort of makeup or embellish their results. Wrong purpose.

https://honestmarijuana.com/hemp-oil-vs-cbd-oil/

Thank you for stepping up and shouting it out………"this isn't working for me". We will be here for you. Chris

REPLY

@artscaping You have done a great service for many people who are confused about CBD and cannabis products. Your information is timely and given in such a way we can all understand. Thank you for your input!
Ginger

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@briansr

It’s an honor to find a group of people that have been, and are still going
through, what we all face 24/7. I’m getting worse but a lot of this startup
group have alot more problems than myself. Let’s try to grow this group
into one large enough to let our “FRIENDS” in Washington know that we are
indeed human beings and could use some representatives in D.C. to open
their minds and hearts to the millions that suffer daily with very little
to look forward to. I want to write, a novel, book, articles to whoever we
can reach. I just need some ideas. Do you suppose there is a pain monthly
magazine. LOL briansr

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Hello briansr, I too have severe chronic pain, Adhesive Arachnoiditis. Severe damage to the spine, nerves and more. I have been trying to get some attention in the field of rare diseases. "NORD" is a good place for people to start. I contacted NORD for help contacting the right people, they told me about Acting FDA Commissioner, Norman E. "Ned" Sharpless [last name has a ring to it] He was a keynote Speaker this year's Rare Diseases & Orphan Products. He is a physician and scientist. He will be going to Washington this fall for a 2 day discussions, advanced tech., rare diseases. I will be contacting him in hopes he can guide me in the rt. direction for opening the door to the right people in Wash. NORD is a great site if patients need information or help. My experience has been a positive one including always emailed a reply. If a group of us and others you may know can join the fight to get to Washington, DC..

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@gingerw

@artscaping You have done a great service for many people who are confused about CBD and cannabis products. Your information is timely and given in such a way we can all understand. Thank you for your input!
Ginger

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@gingerw, Thank YOU Ginger!….I try to stay on top of the industry from a patient perspective. There is sooooo much information and it is outdated just about the time you read and absorb it. If this content is valuable…then I will continue. Happy day….Chris

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@karen00

@johnbishop Hi John, thank you for the article. I must be the only person in the world who tried CBD oil and got no help. Maybe I wasnt taking a strong enough dose, but where do you get that info? I had no idea what strength or how much. It’s bewildering. ……..Karen

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@karen00 Hi Karen, I’m sure there many others who have not been helped by CBD. I am one of them. It has not helped the nerve pain in my arm and hands. I tried three different brands of CBD oil. The last one I purchased at a pharmacy. It was very potent and very expensive. All it did was make me feel spacey. I know of people with arthritis who have been helped by CBD oil, but it doesn’t help everyone.

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@patrick17

@karen00 Hi Karen, I’m sure there many others who have not been helped by CBD. I am one of them. It has not helped the nerve pain in my arm and hands. I tried three different brands of CBD oil. The last one I purchased at a pharmacy. It was very potent and very expensive. All it did was make me feel spacey. I know of people with arthritis who have been helped by CBD oil, but it doesn’t help everyone.

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Hi Patrick
The same cbd has done nothing for my nerve pain 5 months later.

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@kimspr3

Hello briansr, I too have severe chronic pain, Adhesive Arachnoiditis. Severe damage to the spine, nerves and more. I have been trying to get some attention in the field of rare diseases. "NORD" is a good place for people to start. I contacted NORD for help contacting the right people, they told me about Acting FDA Commissioner, Norman E. "Ned" Sharpless [last name has a ring to it] He was a keynote Speaker this year's Rare Diseases & Orphan Products. He is a physician and scientist. He will be going to Washington this fall for a 2 day discussions, advanced tech., rare diseases. I will be contacting him in hopes he can guide me in the rt. direction for opening the door to the right people in Wash. NORD is a great site if patients need information or help. My experience has been a positive one including always emailed a reply. If a group of us and others you may know can join the fight to get to Washington, DC..

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@kimspr3 I'm glad to hear someone is getting information from NORD. I have an ultra-rare kidney disease [less than 50 in the world ever diagnosed with it], and they can offer me nothing.
Ginger

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@patrick17

@karen00 Hi Karen, I’m sure there many others who have not been helped by CBD. I am one of them. It has not helped the nerve pain in my arm and hands. I tried three different brands of CBD oil. The last one I purchased at a pharmacy. It was very potent and very expensive. All it did was make me feel spacey. I know of people with arthritis who have been helped by CBD oil, but it doesn’t help everyone.

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@patrick17 Hi Patrick!! Thank you so much for taking the time to write. It does make me feel better to know I’m not the only one! I’m sorry about your nerve pain. How long have you had it? I have rheumatoid arthritis, osteoarthritis, and fibromyalgia. Pain definitely affects my moods & relationships. I wish there were better answers……..Karen

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@karen00

@johnbishop Hi John, thank you for the article. I must be the only person in the world who tried CBD oil and got no help. Maybe I wasnt taking a strong enough dose, but where do you get that info? I had no idea what strength or how much. It’s bewildering. ……..Karen

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Hi Karen
It didnt help my nerve pain either
Took it for 4 months strongest dose

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@gingerw

@kimspr3 I'm glad to hear someone is getting information from NORD. I have an ultra-rare kidney disease [less than 50 in the world ever diagnosed with it], and they can offer me nothing.
Ginger

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Hi Ginger, I don't understand why they have no information, guidance for you. May I try with your permission? name of you disease? I feel so bad.

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@karen00

@johnbishop Hi John, thank you for the article. I must be the only person in the world who tried CBD oil and got no help. Maybe I wasnt taking a strong enough dose, but where do you get that info? I had no idea what strength or how much. It’s bewildering. ……..Karen

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Hello John, I live in NJ, my P.M.dr. ordered medication for me sadly it didn't work. Name of the Town & Country Compounding Pharmacy. They have consulting I received an email from them about CBD OIL. Today I will be receiving high dose pill form and sublingual. The owner has pain, very familiar with my condition, finally someone is. He starting me on the high does until my body adjusts and hopefully in time the lower doses will work. I don't live close so sent to me via FedX

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@eifeltower

Hi Karen
It didnt help my nerve pain either
Took it for 4 months strongest dose

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@eifeltower Hi Bonnie! Thanks for letting me know! I guess only the ones who had good luck with it were writing in so I never knew of anyone for whom it failed. Plus it’s expensive!!! I didn’t want to keep experimenting when it cost so much…. Karen

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@artscaping

@karen00, @johnbishop This situation is disconcerting.
Let's tackle the dosage first. Cannabis products must show MG and the ratio of CBD to THC. In addition, if you are using a tincture there will be a dropper in the bottle and more and more I am seeing the mg printed on the side of the dropper just like in your kitchen measuring cup.

As to what dosage is right for you using a tincture distribution system…..that will depend on the time of day and whether you hold it under your tongue or blend it with your morning coffee. When the cannabis tincture is held under the tongue it passes through the porous membrane under the tongue. Results will be quick….10-15 minutes and will last about 3-4 hours. When you put your tincture dose in your beverage it will have to go through the digestive system. The results can begin to show within 45 minutes. If it has a second wind, more could be released. I haven't done this for a while but I remember this lasting about 3 hours.

So…now to the more difficult part. You need to have some help coming to a decision about the size of the dose. A couple of days ago, I actually counted the drops for a member so that she would understand. If you are using the dropper measurement that is easier.

For help with the amount to use, you need the help of one of the dispensary staff or a representative at the pain clinic or the pharmacy distributing it. The folks in the dispensary want to get it right so you will appreciate their service and trust their products. Let's say it is morning…..and you want to start off with a relatively pain-free day. You might choose a 1/4 dropper of 1:1 CBD/THC or a 1/2 dropper of 2:1 CBD/THC. You will be encouraged to start with less if this is your first experience and with less if you are testing a new product. Also, your body adjusts to the cannabis just like all other medications so you will need to up the dose at a later date. One company is now offering Cannabis "flights". There is a link below.

I think you will be seeing some better measuring options. I am happy to help with any questions you may have. My cannabis journey is about 4 years now. I have a pretty fail-safe system. A day with only cannabis for pain, the growing pain of small fiber neuropathy (SFN).

I am also going to attach a link to the current publication of Leafy. It is quite informative. I do want to respond to your statement about…."Am I the only one who isn't helped by CBD?"

The cannabis industry is in a boom stage. Organization, labeling, and information are left for later. Right now the dispensaries have to meet all of the regulations, maximize their inventory, never run out, and provide a positive customer experience. What also happens is that folks dose themselves with the wrong product, eg. Hemp Oil, and learn later that there isn't enough cannabidiol in the Hemp derivative. So….wrong product. The placebo effect also jumps in. Folks who don't want to be left out of the rising popularity of cannabis…..sort of makeup or embellish their results. Wrong purpose.

https://honestmarijuana.com/hemp-oil-vs-cbd-oil/

Thank you for stepping up and shouting it out………"this isn't working for me". We will be here for you. Chris

Jump to this post

@artscaping Hey Chris!!! It means so much that you took the time to explain things to me. I do have to buy on line so I didn’t have someone to help last time. I did have an awful experience with the taste of it! I used it faithfully, but dreaded dosage time! I read somewhere that they have pills???? Obviously it would be slower acting, but could be an option. So thanks again for helping! I’ll probably be bugging you again……Karen

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