Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@jkgraham393

I chickened out on the anterior fusion on July 17, 2019. I am now seeing a chiropractor who specializes in non- evasive decompression therapy. Have anyone found that successful?

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I had that surgery in 1995. Because of injury.. one of my most wise decisions… Be very careful..

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Hi, I´m Joan. Chronic Pain for many years, stemming from Arachnoiditis (finally diagnosed in 2010, though started in 1973 with spinal surgery). Early in the process it was thought PT was all I needed, but was not the case. Around 2010, with diagnosis, was at last put on pain meds (Gabapentin and Hydrocodone). Have tried other means to control awful and soul-destructive pain, mostly in back and legs, trying to taper from Hydrocodone. Last year was given two infusions of Ketamine in a clinical setting, but it was a horrible experience for me–never again. Now have a Medical Marijuana Government card (Florida), for tincture drops, but it has not really helped. Am at my wits end. Have appointment at Mayo next week, but made appointment for other condition and not sure will have ability to ask about Chronic Pain. Have been on Connect for a couple of months and find it VERY helpful. So, as time goes on, I find myself responding to more folks who need information. I know the difficulties of feeling so alone in all this. If I can be of help to anyone, will try.

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@joanmahon

Hi, I´m Joan. Chronic Pain for many years, stemming from Arachnoiditis (finally diagnosed in 2010, though started in 1973 with spinal surgery). Early in the process it was thought PT was all I needed, but was not the case. Around 2010, with diagnosis, was at last put on pain meds (Gabapentin and Hydrocodone). Have tried other means to control awful and soul-destructive pain, mostly in back and legs, trying to taper from Hydrocodone. Last year was given two infusions of Ketamine in a clinical setting, but it was a horrible experience for me–never again. Now have a Medical Marijuana Government card (Florida), for tincture drops, but it has not really helped. Am at my wits end. Have appointment at Mayo next week, but made appointment for other condition and not sure will have ability to ask about Chronic Pain. Have been on Connect for a couple of months and find it VERY helpful. So, as time goes on, I find myself responding to more folks who need information. I know the difficulties of feeling so alone in all this. If I can be of help to anyone, will try.

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Thanks

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@ken82

I had that surgery in 1995. Because of injury.. one of my most wise decisions… Be very careful..

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So your surgery was successful and you recommend?

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@joanmahon

Hi, I´m Joan. Chronic Pain for many years, stemming from Arachnoiditis (finally diagnosed in 2010, though started in 1973 with spinal surgery). Early in the process it was thought PT was all I needed, but was not the case. Around 2010, with diagnosis, was at last put on pain meds (Gabapentin and Hydrocodone). Have tried other means to control awful and soul-destructive pain, mostly in back and legs, trying to taper from Hydrocodone. Last year was given two infusions of Ketamine in a clinical setting, but it was a horrible experience for me–never again. Now have a Medical Marijuana Government card (Florida), for tincture drops, but it has not really helped. Am at my wits end. Have appointment at Mayo next week, but made appointment for other condition and not sure will have ability to ask about Chronic Pain. Have been on Connect for a couple of months and find it VERY helpful. So, as time goes on, I find myself responding to more folks who need information. I know the difficulties of feeling so alone in all this. If I can be of help to anyone, will try.

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@joanmahon, Good morning, What a marvelous offer……to help others. You have certainly demonstrated strength and perseverance.

Would you please tell me the contents of your tincture drops and the dosage you have tried. I have had several years of wading through the medical cannabis realm and results of rapid industry growth. I am now relatively secure with manageable pain every day unless I screw it up or the barometric pressure sinks.

May you have a pain free day. Chris

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@joanmahon

Hi, I´m Joan. Chronic Pain for many years, stemming from Arachnoiditis (finally diagnosed in 2010, though started in 1973 with spinal surgery). Early in the process it was thought PT was all I needed, but was not the case. Around 2010, with diagnosis, was at last put on pain meds (Gabapentin and Hydrocodone). Have tried other means to control awful and soul-destructive pain, mostly in back and legs, trying to taper from Hydrocodone. Last year was given two infusions of Ketamine in a clinical setting, but it was a horrible experience for me–never again. Now have a Medical Marijuana Government card (Florida), for tincture drops, but it has not really helped. Am at my wits end. Have appointment at Mayo next week, but made appointment for other condition and not sure will have ability to ask about Chronic Pain. Have been on Connect for a couple of months and find it VERY helpful. So, as time goes on, I find myself responding to more folks who need information. I know the difficulties of feeling so alone in all this. If I can be of help to anyone, will try.

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@joan I have been going to Mayo for years. At your first initial exam, no matter what condition it is for, they always ask me, “Is there anything else you’d like to mention?” Even if it’s unrelated to the condition you’re seeing them for, mention your pain. They will arrange for you to see someone for that.

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Thank you so very much, Jennifer. It´s always nice to receive recommendations from Mayo-experienced folks. So much appreciate your taking the time to mention this. Really do. Nighty night, Joan

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@artscaping

@joanmahon, Good morning, What a marvelous offer……to help others. You have certainly demonstrated strength and perseverance.

Would you please tell me the contents of your tincture drops and the dosage you have tried. I have had several years of wading through the medical cannabis realm and results of rapid industry growth. I am now relatively secure with manageable pain every day unless I screw it up or the barometric pressure sinks.

May you have a pain free day. Chris

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Hi Chris, will write tomorrow on this. Need to pull out the rather inaccessible file and am ready to hit the bed. Will definitelly get back to you. Tried two different companies, and received instructions from MM doc, but somehow just didn´t work for me. And big difference between the two types of tinctures….Talk tomorrow, ok? And thanks for your sweet note….

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Hi, I am Paulette and have fibromyalgia and chronic pain. So glad to have found this group.

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Hi, my name is Linda, I am signed in as linedancer

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Hi Linda, I read your postings only now. I suffered from RLS for many years but, at one point, read about certain OTC supplements that could help. And I tried them. The problem dissolved, and haven´t had the problem again.

If you search for "Supplements for Restless Leg Syndrome" you might get some good pointers. I think at the time it was about Vitamin C and E, and even Magnesium. Since I´ve resorted to so many Nutritional Supplements since then, I hesitate to "recommend" any specific ones. (Nor should we–everyone is so different!) Perhaps others on Mayo Connect could give their thoughts about nutritional supplements for RLS. It is such a frustrating condition. I also believe Trazadone might help you, but remember it can be addictive and is not usually for long-term use. Worth looking Trazadone up also. There is NEVER a prescription that doesn´t have a down-side. I would go with GOOD and reputable OTC supplements first. Good Luck, Linda.

Liked by jkgraham393

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@joanmahon

Hi Chris, will write tomorrow on this. Need to pull out the rather inaccessible file and am ready to hit the bed. Will definitelly get back to you. Tried two different companies, and received instructions from MM doc, but somehow just didn´t work for me. And big difference between the two types of tinctures….Talk tomorrow, ok? And thanks for your sweet note….

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haven´t forgotten, Chris…..been on computer several hours and brain is blacking out…..be back, I promise…..

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@waskofamily147

Hi, I am Paulette and have fibromyalgia and chronic pain. So glad to have found this group.

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@waskofamily147 Welcome to our group ,we aren't Dr.s but help with what we can. I'm Lioness or Linda and have fibromyalgia over 30yrs and have a lot or tools in my fibro box.

Liked by jkgraham393

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@lioness

@waskofamily147 Welcome to our group ,we aren't Dr.s but help with what we can. I'm Lioness or Linda and have fibromyalgia over 30yrs and have a lot or tools in my fibro box.

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Sorry lol

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Is anyone familiar with Morton neuroma of the foot?. I belong to the neuropathy group and chronic pain and didn't know where to ask this question and it is a very significant pain for me so if you can guide me please.

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