Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@kimspr3

Hi lkgraham, I would like to know if you had a good night sleep with Trazadone. Pain doesn't wake me. I will feel so good if I helped.

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I take Trazadone when I go to bed. It does help me sleep.

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I have taken Ambiem for many years without side effects. Recently I switched to Lunesta with good results!. The symptoms of both Lyme Disease and Fibromyalgia both include insomnia. My question, is why when this symptom occurs don't we take something to help.
The next time you are on the drug aisle in any store look and the # of running feet of sleep medicines there are.
We have become so hung up about taking medication that it is redicilus!!
Granted addition to them is real! But I feel the help outweighs the problem!
Every socicity in the world has some sort of addications. Weather it be Coco leaves in Peru, the world addicted to coffee. The world addicited to alchol, Jerry Epstien addidicted to sex.
We need to do what we fell will helps us, But as I found out we need to be aware of what some drugs do to us. Case in point was when I was given Gabapentin. I went into a Spiral. When I realized it and stopped it took a bit but I feel much better. It is up to us to be aware and listen to our body and it behavior.
Thanks,.
Sundance(RB)

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@sundance, Good morning. I so appreciate your post. A perfect example is both of us. My experience just flips yours. I had a heck of a ride with Ambien. Gabapentin doesn’t bother me as long as I take it at bedtime. Thanks for sharing and showing how unique our responses can be to medications and even treatments. Just imagine how difficult it is for our providers as they try to help their patients. Have a large dose of happiness today. Chris

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@sundance6 I have found that when my immune system is weakened the Lyme disease symptoms creep back in as well. The BCG treatments have everything on fire for now. It is a challenge.

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@sundance6 I am with you in regards to medications. Some medications help and allow us to have a better quality to our life. I am thinking of myself right now. I have much pain. I have neuropathy, fibermyalgia and serious foot and back issues. Al very painful and over the counter medications did not offer relief. About 6 years ago my pain management doctor prescribed percocet. I had refused this medication many times, but one time after a very painful month I agreed. I began taking the pills on an as needed basis. I was diagnosed with neuropathy several months ago, but knew I had long before the doctors ordered the nerve conduction test. My pain management doctor increased the mg of the percocets and I am trying to take one before extreme pain hits and usually 3 times a day. I also have my medical marijuana card and and trying to find the right combination so I can decrease the other pain med. That being said my point is. I suffered for so long because I was afraid of addiction, walking the streets looking for drugs and all the things that can happen with opiod addiction. This compounded with the fact that I was an addiction counselor for 28 years. Here I am taking a narcotic and searching for the perfect weed. I ca go to the grocery store by myself, have fun with my grand daughter and great grand daughter and feel a little better about life. So is taking this medication making me a bad person or one doomed to robbing stores, etc. I pray not. I went for my yearly checkup today with my dermatologist. She is an older lady, like me and when I told her I take percocet for pain I thought she might call the percocet police. It makes me think about women who are fighting to refuse medication to help with labor pain. Does experiencing horrendous pain make you a better parent and your child another Einstein. I do not take the drug abuse epidemic lightly. I have seen it's ravish on body, soul and family I do however believe there is also good with bad.

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@artscaping

@sundance, Good morning. I so appreciate your post. A perfect example is both of us. My experience just flips yours. I had a heck of a ride with Ambien. Gabapentin doesn’t bother me as long as I take it at bedtime. Thanks for sharing and showing how unique our responses can be to medications and even treatments. Just imagine how difficult it is for our providers as they try to help their patients. Have a large dose of happiness today. Chris

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Thanks Chris and Happiness to you! Heading off to my Silver Sneakers Yoga class in a Bit! I HIGHLY SUGGEST IT TO ALL. IT DOES AMAZING THINGS TO THE BODY AND MIND!
Sundance (RB)

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@summertime4

@sundance6 I am with you in regards to medications. Some medications help and allow us to have a better quality to our life. I am thinking of myself right now. I have much pain. I have neuropathy, fibermyalgia and serious foot and back issues. Al very painful and over the counter medications did not offer relief. About 6 years ago my pain management doctor prescribed percocet. I had refused this medication many times, but one time after a very painful month I agreed. I began taking the pills on an as needed basis. I was diagnosed with neuropathy several months ago, but knew I had long before the doctors ordered the nerve conduction test. My pain management doctor increased the mg of the percocets and I am trying to take one before extreme pain hits and usually 3 times a day. I also have my medical marijuana card and and trying to find the right combination so I can decrease the other pain med. That being said my point is. I suffered for so long because I was afraid of addiction, walking the streets looking for drugs and all the things that can happen with opiod addiction. This compounded with the fact that I was an addiction counselor for 28 years. Here I am taking a narcotic and searching for the perfect weed. I ca go to the grocery store by myself, have fun with my grand daughter and great grand daughter and feel a little better about life. So is taking this medication making me a bad person or one doomed to robbing stores, etc. I pray not. I went for my yearly checkup today with my dermatologist. She is an older lady, like me and when I told her I take percocet for pain I thought she might call the percocet police. It makes me think about women who are fighting to refuse medication to help with labor pain. Does experiencing horrendous pain make you a better parent and your child another Einstein. I do not take the drug abuse epidemic lightly. I have seen it's ravish on body, soul and family I do however believe there is also good with bad.

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Summertime you more than anyone sees addiction! But you also understand the bennifits of medication. So much of what the Media puts out is about what happens on our streets every day! The niddles found in parks and playgrounds. Yes there seems to be young people who don't understand the dangers and OD. Old people to!
An example of what the media does to us. I consider myself pretty astute about these kind of things.
A couple of years ago my wife came down with a mysterious infection. After two days of it she wanted to go to ER. After an hour of her realing in pain after haveing been given Morphine. The Dr. came in and said they were going to giver her Fentynal. I was taken back but didn't say anything. She was on it the rest of the days and days after in ICU.
I'm not sure she would have made it without it. Two years later, 1. she dosen't even remeber being on it! 2. She is not addicted to it or any other Ohpiod!
We need to learn to understand and listen to our bodies. They are amazing Healers.
Thanks,
Sundance(RB)

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@migizii

Chronic migraines, through my experiences (the last 50+ years), have taken many winding roads. I have tried numerous natural and pharmaceutical approaches. Presently, they are stable with quarterly injections of Botox, preventative medication, abortive medication, a gluten free diet, and absolutely no alcohol. I believe doctors make their best guesses when it comes to this chronic illness, especially in the realm of naturally-based interventions. Regular massage for years used to be very beneficial, along with current, gentle forms of exercise. I even tried the Diamond Clinic’s diet for a year with no positive outcome for me, but I believe it must be successful for many to publish it for migraines.

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Good morning Migizii.
You mention "Regular massage". Could you please tell me what kind of massage?
Thank you very much for answer. I am feeling better this days.
Wishing good.
Vradi

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My wife has had arachnoiditis for over 25 years. Our HMO doctor referred her to the HMO Pain Clinic. This will be the 5th pain clinic she is sent to. It's like Molikai, i.e. doctors are afraid of her and don't know what to do. Sort of like putting her on the Island with others who have the same condition. It's what they did to lepers in Hawaii.. She wants to die so badly but loves the grandchildren so much and they adore her.. She was on Meperidine and it's now off the market. IT was the only med that helped her live reasonably and now? We've been married for 48 years and are still intensely in love and care for each other always. We see the pain clinic doc on Wednesday and we both feel sick to our stomachs. Her story is a horror and too long to discuss. She needs the Demerol which helps enough to hang in there. The HMO will not provide it. She is allergic to everything else. I heard the Mayo deals with it without fear but, again, we are stuck with the HMO we can afford. She is on palliative care because hospice only deals with short term death. When she dies, I call the morgue. What can we do? What can we say?

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Dear cozy, You touched me so deeply, I want to die, I have nothing left. My four pets, [children] I don't want to leave. They give me a purpose in life. They love me comfort me. Oh the wonderful doctors, they give you their diagnosis, "FAILED LAMINECTOMY" Around the world are diagnosed with that but the real diagnosis is Arachnoiditis or Adhesive Arachnoiditis which I have. It upsets me terribly about HMO's Government controlled insurance. There is a site NORD, American Chronic Pain Association, Rare disorders, non-profit, self-help organization providing assistance, hope to individuals with chronic pain. They may be able to guide and help you. Is she on Palliative care at home? What is so important is she knows how much you love her. Many do not realize how important that Word The word, love, could save a life. Hydromorphone [Dilaudid} Perhaps contacting your Congressman, Senator's sometimes they do help, can't hurt to try. In your situation they may help.

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@russy

I take Trazadone when I go to bed. It does help me sleep.

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If you have pain does Trazadone help. Helps me a lot.

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@artscaping

@sundance, Good morning. I so appreciate your post. A perfect example is both of us. My experience just flips yours. I had a heck of a ride with Ambien. Gabapentin doesn’t bother me as long as I take it at bedtime. Thanks for sharing and showing how unique our responses can be to medications and even treatments. Just imagine how difficult it is for our providers as they try to help their patients. Have a large dose of happiness today. Chris

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I really liked your "Have a large dose of happiness today"

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@kozykozon

My wife has had arachnoiditis for over 25 years. Our HMO doctor referred her to the HMO Pain Clinic. This will be the 5th pain clinic she is sent to. It's like Molikai, i.e. doctors are afraid of her and don't know what to do. Sort of like putting her on the Island with others who have the same condition. It's what they did to lepers in Hawaii.. She wants to die so badly but loves the grandchildren so much and they adore her.. She was on Meperidine and it's now off the market. IT was the only med that helped her live reasonably and now? We've been married for 48 years and are still intensely in love and care for each other always. We see the pain clinic doc on Wednesday and we both feel sick to our stomachs. Her story is a horror and too long to discuss. She needs the Demerol which helps enough to hang in there. The HMO will not provide it. She is allergic to everything else. I heard the Mayo deals with it without fear but, again, we are stuck with the HMO we can afford. She is on palliative care because hospice only deals with short term death. When she dies, I call the morgue. What can we do? What can we say?

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Dear @kozykozon , how I identify with every thing you posted earlier. I love my Grandchildren and my children so very much. And I live for the days that there is so little pain I forget what it is like to be in such a flare that it feels like I have been beaten.

I am in such a flare right now and can barely think straight. Trazodone used to help me greatly. My Rheumatology doctor has basically "fired" me. I don't have much left except to ask for a referral to our teaching hospital in Birmingham. UAB.

Love is all we need. To know we are loved. Sounds like you have that covered. God bless you.

Mamacita Jane

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@sundance6

I have taken Ambiem for many years without side effects. Recently I switched to Lunesta with good results!. The symptoms of both Lyme Disease and Fibromyalgia both include insomnia. My question, is why when this symptom occurs don't we take something to help.
The next time you are on the drug aisle in any store look and the # of running feet of sleep medicines there are.
We have become so hung up about taking medication that it is redicilus!!
Granted addition to them is real! But I feel the help outweighs the problem!
Every socicity in the world has some sort of addications. Weather it be Coco leaves in Peru, the world addicted to coffee. The world addicited to alchol, Jerry Epstien addidicted to sex.
We need to do what we fell will helps us, But as I found out we need to be aware of what some drugs do to us. Case in point was when I was given Gabapentin. I went into a Spiral. When I realized it and stopped it took a bit but I feel much better. It is up to us to be aware and listen to our body and it behavior.
Thanks,.
Sundance(RB)

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Hi,@sundance6, I agree with you 99.9% in everything you say! We are all different, and different meds will affect each one of us as our bodies adapt and change.

Gabapentin used to knock me out. Now, I have seemed to develop a tolerance for it. Yet it appears the only thing that helps when Fibromyalgia is raging.

Epsom Salts baths help tremendously. I take Magnesium tablets daily, but they are useless during a flair.

Here's hoping that we see a better say tomorrow!

Love and light to you.

Mamacita Jane

Liked by sundance6

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@kimspr3

If you have pain does Trazadone help. Helps me a lot.

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Yes, Trazadone does help pain I sleep through the night. Reason it's advised to take it before bed is because it makes you tired. Non-Addictive. Prescribed to me 100 mg but I have taken for a long time. I don't take it when I take the Traz. I waite about hour. I hope this can help you.

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