Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@nurseheadakes

What a cutie…I have read all of your postings and agree that anyone who depends on narcotics and analgesics of any kind will be having a great deal of problem getting them now. Since last year when the federal government handed down new rules for physicians and pharmaceutical companies on how to distribute these prescription drugs, all states now have the opportunity to regulate them. In this article by Harvard Health – you can read about what is becoming an increasingly difficult road for everyone. It's like the one child in your class that does a dumb thing and the entire class is punished for his deed. There are so many deaths from the overuse on the streets of these drugs – the wrong people with the wrong use of the drugs with the wrong outcomes that are driving the present situation. Too many deaths in other words. There doesn't promise to be an end any time soon.
https://www.health.harvard.edu/pain/what-new-opioid-laws-mean-for-pain-relief
As Ginger identified as well as this article made mention, seek to find alternatives to the drugs. They are ONLY a short term course for you. Your body will feel the effects of withdrawal from not having them but you will recover. Instead, use other means to gain control of your mental – pain gate – capacity in your brain. Your perception of pain begins in your brain and ends up where the pain is located. Pressure points – finding them and pressing them on your body will help to relieve and release some of the endorphins that your body naturally manufactures to relieve pain. You can find them as well as having a massage therapist do it for you. [If I have a simple stuffy nose, I press on either side of my nose, under my eyes, above my nose/eyes for a few seconds and release the sinuses ] Nodules build up with lactic acid and can cause pain. Releasing them and drinking water – will help to rid the body of this acid.

The other option that should be done is to write your Legislator in your district, state and government – and let them know this is an issue that plays havoc in your life. If they don't know their constituents are having problems with this issues, then they assume everything is fine, which it is NOT.
Here is the website https://www.usa.gov/elected-officials where you can find your state's representatives – so you can be a friend to your communities/ state and governor. Back home – all of my Reps knew me personally because I was writing and talking to them about issues from A-Z that directly and indirectly related to me as well as those who benefited the greater good. It's worth a shot because one never knows whats around the corner. Eloise

Jump to this post

Less than 5% of so called narcotic overdoses are from prescription meds though. The fenyenl that drug abusers overdose on is really hillbilly heroin. It is a homebrewed version. It was never made by a pharmaceutical company. But the overdose number are driven by heroin overdoses. Which the media labels as narcotics. Which gets turned into prescription meds by everyone. Then our leaders take the numbers and think they have to do big things to stop these. Well,if people want to get high. They're going to get high and overdose. You WILL Never stop that. They will invent a new way to get high. But alcohol kills hundred of thousands of more people. But no one stops that. Our leaders turn a blind eye on those numbers. Do you know alcohol kills more every year than what deaded in both world wars combined?? Yes,those number are correct. But no one gives a hoot about that. Sorry for the rant. But the twisted numbers drive me crazy. But yes us patients have to take care of ourselves. I have learn that keeping my mind busy is some of the best meds

REPLY
@tazscott

I will say that pain management doctors have really failed patients anymore. They spend all they're time worrying about narcotics and covering they're butts. They forget about true pain patients that have never abused meds once. I had a pain doctors a couple years ago that I had been a patient with him for years. I had been using morphine for over 30 years without one issue. With the FDA new guidelines came out he told all of his patients he was stopping all patients narcotics. And I mean every patients overnight. The most ridiculous thing I have ever seen. Thank goodness I have an awesome mayo doctor that doesn't get all involved into the media hype. I pray you find a truely caring doctor that will help you. Because being in pain 24/7 can wear on you so badly. And it wears on you mental health so much too. But we're all here to help if you need it

Jump to this post

Tazscott, how true you are. Just go through any of the differnent Threads and this is what you say. One of the news programs had an interesting item. They said our media makes the news! Five years from now you won't hear about all of this, it will be something else they drum up to attempt to scare us all!
Sundance
🙂

REPLY
@sundance6

Tazscott, how true you are. Just go through any of the differnent Threads and this is what you say. One of the news programs had an interesting item. They said our media makes the news! Five years from now you won't hear about all of this, it will be something else they drum up to attempt to scare us all!
Sundance
🙂

Jump to this post

Anything to sell a story. Lol

Liked by sundance6

REPLY
@lillee

this is her now Lillee

Jump to this post

@lillee Good morning hope you slept well .Since its been a week now with CBD I'm sleeping now .There are many good alternatives on here for you see what fits you now.I will say about Tramadol here in California I've been able to get a 90 day supply Dr knows I only take 1or 2 but like the rest of the country last time I had a refill I only got 21 it is said we are letting a bunch of idiots in Washington dictate to us who are in pain and not street users .For me. I have a O.D for my Dr and she is fine with what I do herbs vitamins and more magnesium as fibro people need more so I've found what works for me it's all in research is the beginning.

REPLY
@lillee

I am just so tired and it's hard but I got to find a way to help with my pain I have a 4 year old daughter she was my God daughter and I adopted her Ive had her over 3 years now I want to be better for her

Jump to this post

dea Lillie: Just because you have the heart, the tenderness to be a miracle for your daughter will help both of you. You have the best reason in the world to continue on. The love that is in your heart will be the greatest help you can have. With all the pain relieving medicines, the will power within you will win out. It will not be easy but you have already shown your beautiful heart to e a winner. And remember, we, all of us are with you and your daughter forever. Hang in there miracle woman. Peach

Liked by lioness

REPLY
@nurseheadakes

What a cutie…I have read all of your postings and agree that anyone who depends on narcotics and analgesics of any kind will be having a great deal of problem getting them now. Since last year when the federal government handed down new rules for physicians and pharmaceutical companies on how to distribute these prescription drugs, all states now have the opportunity to regulate them. In this article by Harvard Health – you can read about what is becoming an increasingly difficult road for everyone. It's like the one child in your class that does a dumb thing and the entire class is punished for his deed. There are so many deaths from the overuse on the streets of these drugs – the wrong people with the wrong use of the drugs with the wrong outcomes that are driving the present situation. Too many deaths in other words. There doesn't promise to be an end any time soon.
https://www.health.harvard.edu/pain/what-new-opioid-laws-mean-for-pain-relief
As Ginger identified as well as this article made mention, seek to find alternatives to the drugs. They are ONLY a short term course for you. Your body will feel the effects of withdrawal from not having them but you will recover. Instead, use other means to gain control of your mental – pain gate – capacity in your brain. Your perception of pain begins in your brain and ends up where the pain is located. Pressure points – finding them and pressing them on your body will help to relieve and release some of the endorphins that your body naturally manufactures to relieve pain. You can find them as well as having a massage therapist do it for you. [If I have a simple stuffy nose, I press on either side of my nose, under my eyes, above my nose/eyes for a few seconds and release the sinuses ] Nodules build up with lactic acid and can cause pain. Releasing them and drinking water – will help to rid the body of this acid.

The other option that should be done is to write your Legislator in your district, state and government – and let them know this is an issue that plays havoc in your life. If they don't know their constituents are having problems with this issues, then they assume everything is fine, which it is NOT.
Here is the website https://www.usa.gov/elected-officials where you can find your state's representatives – so you can be a friend to your communities/ state and governor. Back home – all of my Reps knew me personally because I was writing and talking to them about issues from A-Z that directly and indirectly related to me as well as those who benefited the greater good. It's worth a shot because one never knows whats around the corner. Eloise

Jump to this post

Dear Nurseheadaches. What a clear response. Going in-depth to show the way to help ones self with the pain. It is easy to learn from you. Keep it up. IT IS NOT EASY! Peach

REPLY

Thank you Ms Peach – I usually call it as it is since it comes from what I know or what I have learned by bumping along the hard way. Simple is as simple does. We can read a lot or be preached to about many things but if we can be given something that is simple and manageable for our daily lives – then that is something you and I can apply. It's practical. Life is too complicated to do anything that makes my brain hurt. Or for that matter – yours! Smile

REPLY
@nurseheadakes

Thank you Ms Peach – I usually call it as it is since it comes from what I know or what I have learned by bumping along the hard way. Simple is as simple does. We can read a lot or be preached to about many things but if we can be given something that is simple and manageable for our daily lives – then that is something you and I can apply. It's practical. Life is too complicated to do anything that makes my brain hurt. Or for that matter – yours! Smile

Jump to this post

And they can't take positive thoughts away from us also. We do,do for ourselves. I am very lucky my wife who's a nurse at mayo let's me do all my crazy hobbies. In turn keeps me distracted. Which in turn works as good as all the pain meds. I take. Have a great weekend. And my it be pain free.

REPLY
@tazscott

Distraction is a huge part. Keeping very busy is a huge help. Don't get caught in that pain circle. Truely finding things that keep your mind in other places is a huge help. Hobbies,riding motorcycles,your favorite car rides. If your doing something that absorbs your mind. Your not thinking of pain. And dioframic breathing can be super useful during very bad days too. There are free apps for your phone and computer to teach you how to do it. Don't blow it off. It truely works. I know it sounds crazy. But I have lived with terrible pain for 37 years after 2 helicopter crashes. I wouldn't share if it didn't work. Stretching a couple times a day helps in the long run too. You will feel worse at first. But stick with it.

Jump to this post

@tazscott…. I agree. Distractions, or enjoyable activities that you get caught up in make a painful day pass much more pleasantly. Make a short list of 3 or 4 activities that incite your creativity, are productive, or include others into your day. Choose one to put effort into. Painfilled days quickly pass when we fill our time with enjoyable activities. Plus, when we produce…baking, music, sewing, helping others…we have purpose. It's easier to do nothing. But what have we to show for our time? Nothing. How satisfying is that? Believe me…if it moves…MOVE IT! If you don't, it's true, you WILL lose it.

I speak as one who has many serious pain issues. I take low dose pain meds. Minimal relief, but I am grateful. The less I focus on me, the more I value life. Even on days I'm feeling like crap….suffering greatly. When the most I can do is pull one of my many littles (grandkids) on my lap and look at picture books and listen to their chatter….on those miserable days, I smile and so do my kids! We create good memories despite the beast. Don't let the beast run you. If you do, it takes over. We all know there are people suffering more than us. Yet they keep on keeping on. So can we.

Chronic severe pain has a way of stealing all our joy, all our energy if we let it. One may say "yeah, but you don't have MY awful pain." I know pain. Awful pain. Not talking about small stuff. But because I want to do more than exist, I must make the effort to distract myself so the daily beast is secondary instead of the daily main event. I want to live, not merely exist. And I wish that for others. Blessings JMJ

REPLY
@jmjlove

@tazscott…. I agree. Distractions, or enjoyable activities that you get caught up in make a painful day pass much more pleasantly. Make a short list of 3 or 4 activities that incite your creativity, are productive, or include others into your day. Choose one to put effort into. Painfilled days quickly pass when we fill our time with enjoyable activities. Plus, when we produce…baking, music, sewing, helping others…we have purpose. It's easier to do nothing. But what have we to show for our time? Nothing. How satisfying is that? Believe me…if it moves…MOVE IT! If you don't, it's true, you WILL lose it.

I speak as one who has many serious pain issues. I take low dose pain meds. Minimal relief, but I am grateful. The less I focus on me, the more I value life. Even on days I'm feeling like crap….suffering greatly. When the most I can do is pull one of my many littles (grandkids) on my lap and look at picture books and listen to their chatter….on those miserable days, I smile and so do my kids! We create good memories despite the beast. Don't let the beast run you. If you do, it takes over. We all know there are people suffering more than us. Yet they keep on keeping on. So can we.

Chronic severe pain has a way of stealing all our joy, all our energy if we let it. One may say "yeah, but you don't have MY awful pain." I know pain. Awful pain. Not talking about small stuff. But because I want to do more than exist, I must make the effort to distract myself so the daily beast is secondary instead of the daily main event. I want to live, not merely exist. And I wish that for others. Blessings JMJ

Jump to this post

@jmjlove Your words, along with those of @tazscott mean a lot to me, especially today. Distraction is good when pain or stress of any kind rears its head. Doing for others, "getting out of your own way" focuses your energy away from the negatives. I find journaling, and writing/talking to my pain helps to take away the force it would like to have.relying on low-dose pain meds [Tylenol and CBD only] keeps me aware of the pain but not a slave to it. Our cat senses my discomfort and presents herself often, for a cuddle or simple scratch on her tummy. She glues herself to me in bed.
Ginger

Liked by lioness, jmjlove

REPLY

How True you both are! I have two dogs and a cat. When you think you are at your wits end they are there to help you! They are our Kindered Spirts that are meant to add Joy and Love to our Lifes!
Forcing your self to get out of your hole is also so important. However short it may be. A simple 30 minute drive. Observe what you pass! Stop for a moment and just listen and smeell can bring Great Joy!
Sundance

REPLY

Heft my out of yourself is valuable I took our new oh remodeled train today it's been under remodeling since January forgot about Me and pain I also made homemade 15 bean soup and bread pudding so bad a productive day

REPLY
@jmjlove

@tazscott…. I agree. Distractions, or enjoyable activities that you get caught up in make a painful day pass much more pleasantly. Make a short list of 3 or 4 activities that incite your creativity, are productive, or include others into your day. Choose one to put effort into. Painfilled days quickly pass when we fill our time with enjoyable activities. Plus, when we produce…baking, music, sewing, helping others…we have purpose. It's easier to do nothing. But what have we to show for our time? Nothing. How satisfying is that? Believe me…if it moves…MOVE IT! If you don't, it's true, you WILL lose it.

I speak as one who has many serious pain issues. I take low dose pain meds. Minimal relief, but I am grateful. The less I focus on me, the more I value life. Even on days I'm feeling like crap….suffering greatly. When the most I can do is pull one of my many littles (grandkids) on my lap and look at picture books and listen to their chatter….on those miserable days, I smile and so do my kids! We create good memories despite the beast. Don't let the beast run you. If you do, it takes over. We all know there are people suffering more than us. Yet they keep on keeping on. So can we.

Chronic severe pain has a way of stealing all our joy, all our energy if we let it. One may say "yeah, but you don't have MY awful pain." I know pain. Awful pain. Not talking about small stuff. But because I want to do more than exist, I must make the effort to distract myself so the daily beast is secondary instead of the daily main event. I want to live, not merely exist. And I wish that for others. Blessings JMJ

Jump to this post

Well,well said. Hope you have a great weekend

REPLY
@gingerw

@jmjlove Your words, along with those of @tazscott mean a lot to me, especially today. Distraction is good when pain or stress of any kind rears its head. Doing for others, "getting out of your own way" focuses your energy away from the negatives. I find journaling, and writing/talking to my pain helps to take away the force it would like to have.relying on low-dose pain meds [Tylenol and CBD only] keeps me aware of the pain but not a slave to it. Our cat senses my discomfort and presents herself often, for a cuddle or simple scratch on her tummy. She glues herself to me in bed.
Ginger

Jump to this post

Oh my,you are so right about cats and dogs. If it was for both of them I would have proably done something bad in the past. Mine are incredible therphy for me. Along with my many hobbies

REPLY
@tazscott

Oh my,you are so right about cats and dogs. If it was for both of them I would have proably done something bad in the past. Mine are incredible therphy for me. Along with my many hobbies

Jump to this post

@tazscott….Lived on 2 different farms, 24 years total. Raised goats, sheep, rabbits, pigs, ducks, geese, chickens, cats and dogs. Every single birthing season was sheer delight for me. Every baby born gave me a thrill. Actually, sheep shearing, fence building, the daily egg search, milking, breeding, producing our own foods, buying and selling fine animals, haying season, picking veggies, canning salsa, well…I LOVED all of it!

After a very large cerebellar stroke, and 2 years later a fast growing aneurysm requiring the removal of 2 ribs and one of my neck muscles in a 71/2 hr. surgery at University of Michigan, I am now unable to work on farm, so sold it to son. Broke my heart, but happy son will carry on and keep it in the fam. Turned out perfectly because it was time to move north to care for 88 year old father. Much change, but worth it to make sure father gets the care he needs. The demands on me I volunteered for so not complaining. The shift in focus was very good for me. Now it's not all about me, my farm, my kids, their kids…..now it's all about my poor dad. He has terrible dementia, rheumatoid, but in good health despite his issues. He has taken a few headers over the last few months, so our major concern is his safety. This focus takes me out of my me zone and into providing loving care for the man who raised me. Nothing like being needed to deflect self focus and babying ones self. This has been a gift of sorts and I'm grateful for it. It's funny, but even if you've had issues with a parent…while caring for them, your love grows beyond measure.

Anyway, lots of words to say we all need a focal point in our lives, otherwise our focus is too often solely on how we feel. It's easy to do. Done it myself, but it doesn't take a genious to see that if we set our sights outside of our personal sufferings, we actually, without realizing it, begin to deal with our issues much better. They become secondary in our lives. I've a feeling you too have discovered that. And many others, here, too. JMJ

Oh! Most important to me is cultivating my Faith, hopefully making a more charitable and generous person out of this broke down old warhorse.

REPLY
Please login or register to post a reply.