Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@johnbishop

I just received an email from Mayo Clinic that was a special report on chronic pain that I thought I would share with the members in this discussion. I think it addresses a lot of questions I've seen and more.

Mayo Clinic Chronic Pain Report — Chronic pain – From living with pain to living your life:
https://mayocl.in/2IDALzR (PDF)

The email also included a link to the latest version of the book Mayo Clinic Guide to Pain Relief which I'm sure provides a lot of good information. I recently received a copy of the Mayo Clinic book 5 Steps to Controlling High Blood Pressure which I've just started reading to see if I can find some new stuff to work on besides the medications I take ☺.
https://order.store.mayoclinic.com/books/GNWEB22

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Thank you for sharing this with us

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@johnbishop

I just received an email from Mayo Clinic that was a special report on chronic pain that I thought I would share with the members in this discussion. I think it addresses a lot of questions I've seen and more.

Mayo Clinic Chronic Pain Report — Chronic pain – From living with pain to living your life:
https://mayocl.in/2IDALzR (PDF)

The email also included a link to the latest version of the book Mayo Clinic Guide to Pain Relief which I'm sure provides a lot of good information. I recently received a copy of the Mayo Clinic book 5 Steps to Controlling High Blood Pressure which I've just started reading to see if I can find some new stuff to work on besides the medications I take ☺.
https://order.store.mayoclinic.com/books/GNWEB22

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I was accepted into their 3 week chronic pain rehab program, but ended up being unable to attend because they do not take patients who are unable to participate in all aspects of the program. I had broken my foot and it has still not healed, so since I cannot do the physical maintenance portion of the program, they said I could call them when my foot is healed. I’m conflicted by this as chronic pain people have many barriers and this is one of them….ongoing or occasional acute issues.

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@migizii

I was accepted into their 3 week chronic pain rehab program, but ended up being unable to attend because they do not take patients who are unable to participate in all aspects of the program. I had broken my foot and it has still not healed, so since I cannot do the physical maintenance portion of the program, they said I could call them when my foot is healed. I’m conflicted by this as chronic pain people have many barriers and this is one of them….ongoing or occasional acute issues.

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@migizii So disheartening, isn't it, when our plans get waylaid? I wonder if there is an adjunct program that can be utilized or if the staff at the pain clinic was able to offer you any suggestions beyond "call us when you can"? How are you feeling beyond the disappointment?
Ginger

Liked by lioness

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@migizii

I was accepted into their 3 week chronic pain rehab program, but ended up being unable to attend because they do not take patients who are unable to participate in all aspects of the program. I had broken my foot and it has still not healed, so since I cannot do the physical maintenance portion of the program, they said I could call them when my foot is healed. I’m conflicted by this as chronic pain people have many barriers and this is one of them….ongoing or occasional acute issues.

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You do make a lot of sense to me. After all one who has chronic pain (as myself) sometimes the pain can be as bad as a broken leg. I look at it this way: A person who does not have chronic pain from a number of health issues cannot properly put themselves in the position of a chronic pain person. How can guidelines be adhered to when the information cannot be understood properly. The state of mind the patient in the study is in cannot be understood properly. And on and on. But we must keep trying. Good luck.

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@gingerw

@migizii So disheartening, isn't it, when our plans get waylaid? I wonder if there is an adjunct program that can be utilized or if the staff at the pain clinic was able to offer you any suggestions beyond "call us when you can"? How are you feeling beyond the disappointment?
Ginger

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They did not offer any alternative options. I asked about a therapy pool for the physical activity portion, but they said they don’t use this. It will be interesting to see how I am feeling after my foot issue resolves as “all this rest” is probably causing significant atrophy of many major muscle groups. Your question about how I’m feeling other than disappointment has me thinking, but nothing comes to mind…..I guess it all just seems too much sometimes….thanks so much everyone for listening.

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@migizii

They did not offer any alternative options. I asked about a therapy pool for the physical activity portion, but they said they don’t use this. It will be interesting to see how I am feeling after my foot issue resolves as “all this rest” is probably causing significant atrophy of many major muscle groups. Your question about how I’m feeling other than disappointment has me thinking, but nothing comes to mind…..I guess it all just seems too much sometimes….thanks so much everyone for listening.

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@migizii Do you have access to a therapy pool where you are now, or a similar thing, to help you? Please be gentle on yourself. We care.
Ginger

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@gingerw

@migizii Do you have access to a therapy pool where you are now, or a similar thing, to help you? Please be gentle on yourself. We care.
Ginger

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I do have access but have to be given the okay from my doctor to be at least somewhat weight bearing before I can use it. I have another recheck on the 21st and I’m hoping, maybe he will let me walk in the boot with crutches support. Then, I could probably use the pool. I also have a consult scheduled on July 11 at Mayo. Maybe somebody will figure out the way to get my foot healed🤞

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@migizii

I was accepted into their 3 week chronic pain rehab program, but ended up being unable to attend because they do not take patients who are unable to participate in all aspects of the program. I had broken my foot and it has still not healed, so since I cannot do the physical maintenance portion of the program, they said I could call them when my foot is healed. I’m conflicted by this as chronic pain people have many barriers and this is one of them….ongoing or occasional acute issues.

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Mayo has a 10 week class that you only meet once a week. You do not have to do any physical movement in the class. Dr. Joan Cronin instructs the classes on Mondays. I did the class and it's truely a great class. Please give it a try. It does teach most of the same thing as the rehab program. You can truely benefit from that class. And Joan is incredible. If you have a hard time get through to her let me know. I can give you her personal email or numbers

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Hi, I'm Evelyn! Just joining today. I have chronic pain due to inflammatory arthritis (probably psoriatic), osteoarthritis, and fibromyalgia. I'm hoping to learn something from other members in this group. Thank you in advance!!

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@pollywolly

Hi, I'm Evelyn! Just joining today. I have chronic pain due to inflammatory arthritis (probably psoriatic), osteoarthritis, and fibromyalgia. I'm hoping to learn something from other members in this group. Thank you in advance!!

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@pollywolly Welcome to connect We try to give people our experiences with our problems. We aren't Dr,s but have a lot of experience . I'm Linda ,lioness , I have osteoarthritis, fibromyalgia and a lot of back problems. I'm going for an injection tomorrow for back. But what helps me is ginger-turmeric tea this is anti inflammatory tea taste good also get it at Trader Joe,s . Also ice is anti imflammatory . I use a Tens Unit on my stiff mucsles a Tens relaxes them You can research it . I also use more magnesium then ordinary people without fibro. Research says we need more and I can attest to this. Dr. has me on Meloxican for arthritis . I just had a bout of pain all over so Dr. gave me the sliding scale of Prednisone . I hope others will chime in and give you what helps them. We are all different so we have to find out what works for us. Glad you here hope you post again . Our group is supportive and just like to talk .

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@tazscott

Mayo has a 10 week class that you only meet once a week. You do not have to do any physical movement in the class. Dr. Joan Cronin instructs the classes on Mondays. I did the class and it's truely a great class. Please give it a try. It does teach most of the same thing as the rehab program. You can truely benefit from that class. And Joan is incredible. If you have a hard time get through to her let me know. I can give you her personal email or numbers

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Thanks for this information…..could you send my the phone or email information? I don’t know how feasible this would be given the distance but definitely worth considering. Thanks so much!

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@pollywolly

Hi, I'm Evelyn! Just joining today. I have chronic pain due to inflammatory arthritis (probably psoriatic), osteoarthritis, and fibromyalgia. I'm hoping to learn something from other members in this group. Thank you in advance!!

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Welcome to the club.

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@tazscott

Mayo has a 10 week class that you only meet once a week. You do not have to do any physical movement in the class. Dr. Joan Cronin instructs the classes on Mondays. I did the class and it's truely a great class. Please give it a try. It does teach most of the same thing as the rehab program. You can truely benefit from that class. And Joan is incredible. If you have a hard time get through to her let me know. I can give you her personal email or numbers

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Is there a digital download or DVD to share in this class from out of state?

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@bevo

Is there a digital download or DVD to share in this class from out of state?

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Dr. Cronin does have DVD that she hands out in classes for the different subjects that they teach.

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@lioness

@pollywolly Welcome to connect We try to give people our experiences with our problems. We aren't Dr,s but have a lot of experience . I'm Linda ,lioness , I have osteoarthritis, fibromyalgia and a lot of back problems. I'm going for an injection tomorrow for back. But what helps me is ginger-turmeric tea this is anti inflammatory tea taste good also get it at Trader Joe,s . Also ice is anti imflammatory . I use a Tens Unit on my stiff mucsles a Tens relaxes them You can research it . I also use more magnesium then ordinary people without fibro. Research says we need more and I can attest to this. Dr. has me on Meloxican for arthritis . I just had a bout of pain all over so Dr. gave me the sliding scale of Prednisone . I hope others will chime in and give you what helps them. We are all different so we have to find out what works for us. Glad you here hope you post again . Our group is supportive and just like to talk .

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Thanks so much Lioness! I am hoping to get some tips, etc., and some information about others' experiences. Thanks for the welcome to the group!

Liked by lioness

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