Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Hi, I'm Dawn, send I've had Cauda equina syndrome since 2010. Unfortunately I got mine through a lumbar patch after having meningitis. This condition is so very hard to live with. If any others newly diagnosed, maybe I can give you some words of encouragement.

Hello Peach,
I've had numerous nerve blockers done…only 1 worked. After that had to get spinal stimulator implant. It changed my life…..my weather changes and stress make it so much worse. Talk to a spinal surgeon who is also a pain specialist! Feel free to talk any time!!!!

@rsnowflake

Hello Peach,
I've had numerous nerve blockers done…only 1 worked. After that had to get spinal stimulator implant. It changed my life…..my weather changes and stress make it so much worse. Talk to a spinal surgeon who is also a pain specialist! Feel free to talk any time!!!!

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Thank you. I will do that after my cancer removal from the forehead 2 days ago pain subsides. Why did the surgeon make a 21/2 inch vertigal rather than a horizontal incision is beyond me. There was only a small round spot of the squamous cell removed. Vanity.

@peach414144

Thank you. I will do that after my cancer removal from the forehead 2 days ago pain subsides. Why did the surgeon make a 21/2 inch vertigal rather than a horizontal incision is beyond me. There was only a small round spot of the squamous cell removed. Vanity.

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Hi!
Did the doctor know what kind of cancer it was before the surgery and how deep it was?
I had literally a brown dot on my big toe. It was not oddly shaped or raised. It did not bleed and it did not hurt. If I didn't have regular pedicures, I wouldn't have known it was there. As a matter of fact, the dermatologist missed it during my exam. I pointed it out.
Anyway, I had it removed because the biopsy showed it was melanoma. It was hard to believe! This tiny dot (literally the size of the top of sharp pencil) got a 1-1/2 inch long by 3/4 in deep incision. Now I know with melanoma they have to find a clear margin. The margin is usually down under, not on top. Don't get me wrong, I am glad I found it and it was so small, but an incision of 1-1/2 inches on a toe is a lot.
To top it off, it was June and I was leaving for a week long vaca with my entire family at the beach. Oh well!!
Good luck and good health!
Ronnie
(GRANDMAr)

@grandmar

Hi!
Did the doctor know what kind of cancer it was before the surgery and how deep it was?
I had literally a brown dot on my big toe. It was not oddly shaped or raised. It did not bleed and it did not hurt. If I didn't have regular pedicures, I wouldn't have known it was there. As a matter of fact, the dermatologist missed it during my exam. I pointed it out.
Anyway, I had it removed because the biopsy showed it was melanoma. It was hard to believe! This tiny dot (literally the size of the top of sharp pencil) got a 1-1/2 inch long by 3/4 in deep incision. Now I know with melanoma they have to find a clear margin. The margin is usually down under, not on top. Don't get me wrong, I am glad I found it and it was so small, but an incision of 1-1/2 inches on a toe is a lot.
To top it off, it was June and I was leaving for a week long vaca with my entire family at the beach. Oh well!!
Good luck and good health!
Ronnie
(GRANDMAr)

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Thank you. The Mohs technique was used. The surgeon removes a layer and the remains go under a microscope to see if there is any more cancer there. If yes, then they remove more each time until it comes out clear. Then another plastic surgeon sews up the site. I was luck my squamos cell cancer was not to deep. It only took one time and then closure. Yes, my spot was also also but would not heal and then it started to hurt which is when I went to the dermatologist. This is usually done with a group of patients. A good way to handle en masse.

@grandmar

Hi!
Did the doctor know what kind of cancer it was before the surgery and how deep it was?
I had literally a brown dot on my big toe. It was not oddly shaped or raised. It did not bleed and it did not hurt. If I didn't have regular pedicures, I wouldn't have known it was there. As a matter of fact, the dermatologist missed it during my exam. I pointed it out.
Anyway, I had it removed because the biopsy showed it was melanoma. It was hard to believe! This tiny dot (literally the size of the top of sharp pencil) got a 1-1/2 inch long by 3/4 in deep incision. Now I know with melanoma they have to find a clear margin. The margin is usually down under, not on top. Don't get me wrong, I am glad I found it and it was so small, but an incision of 1-1/2 inches on a toe is a lot.
To top it off, it was June and I was leaving for a week long vaca with my entire family at the beach. Oh well!!
Good luck and good health!
Ronnie
(GRANDMAr)

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Yes, the doctor did know it was squmous cell cancer before the removal. Usually the creases on a humans forehead are horizontal which is why I question why the incision is vertical. I had a tiny round dot about the size of 1/8 of an inch.

@peach414144

Thank you. The Mohs technique was used. The surgeon removes a layer and the remains go under a microscope to see if there is any more cancer there. If yes, then they remove more each time until it comes out clear. Then another plastic surgeon sews up the site. I was luck my squamos cell cancer was not to deep. It only took one time and then closure. Yes, my spot was also also but would not heal and then it started to hurt which is when I went to the dermatologist. This is usually done with a group of patients. A good way to handle en masse.

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@peach414144 Boy peach at our age if it's not one thing it's two glad your healing o.k.

@peach414144

Thank you. I will do that after my cancer removal from the forehead 2 days ago pain subsides. Why did the surgeon make a 21/2 inch vertigal rather than a horizontal incision is beyond me. There was only a small round spot of the squamous cell removed. Vanity.

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@peach414144 The squamous cell cancer from my forehead looked like an eraser dot, but sunken in. Dermatologist was certain "it's just an old scar". I knew it wasn't. The resulting scar is horizontal, but I have no feeling across that part, cannot raise my eyebrow. I tell people it is an access point for my third eye ;))

Liked by Parus

@gingerw What a hoot!!! Third eye. Are you going to morph into a triclops? Is that a word?

@gingerw

@peach414144 The squamous cell cancer from my forehead looked like an eraser dot, but sunken in. Dermatologist was certain "it's just an old scar". I knew it wasn't. The resulting scar is horizontal, but I have no feeling across that part, cannot raise my eyebrow. I tell people it is an access point for my third eye ;))

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LOL…😁

@gingerw

@peach414144 The squamous cell cancer from my forehead looked like an eraser dot, but sunken in. Dermatologist was certain "it's just an old scar". I knew it wasn't. The resulting scar is horizontal, but I have no feeling across that part, cannot raise my eyebrow. I tell people it is an access point for my third eye ;))

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It is good to share. Now if after my affected area goes numb I will not be to worried. Thank you for sharing that. Right now my entire eye and below it is continuing to become more and m,ore black and blue and swollen.

@peach414144

It is good to share. Now if after my affected area goes numb I will not be to worried. Thank you for sharing that. Right now my entire eye and below it is continuing to become more and m,ore black and blue and swollen.

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@peach414144 The trauma of the surgery on the tissues was bound to cause that bruising and all. I was at work the next day, in the courtroom, with a huge pressure bandage on. I pasted smiley face stickers all over it, which made everyone smile. I recall having the massive headache, also, for about three days. What was most frustrating was keeping my face clean and no hair washing for a week.
Ginger

Liked by lioness

@gingerw

@peach414144 The trauma of the surgery on the tissues was bound to cause that bruising and all. I was at work the next day, in the courtroom, with a huge pressure bandage on. I pasted smiley face stickers all over it, which made everyone smile. I recall having the massive headache, also, for about three days. What was most frustrating was keeping my face clean and no hair washing for a week.
Ginger

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I was told and the instructions given to me said I could shower 24 hours after treatment. However, I have not washed my hair as yet and it is good to hear from you. I will not do so for a week. Thank you. Peach

My name is Mary Ann. My health problems began when my gynecologist implanted a bladder sling after I had my three children. I was sick for seven years before my urologist removed it. During that time I was given Levaquin for horrible hemorrhagic bladder infections caused by the sling. The medicine damaged my connective tissue causing over a dozen ruptures or tears. I tore the bottom of my right foot a little over a year ago. My foot was immobilized for months and I was diagnosed with CRPS. It has been terrible. After about five months, it spread from my right foot to the left foot and up my right side. I live in Alabama where medical marijuana isn't available. I travel nearly five hours to a neurologist and have seen several doctors locally. I feel like nobody knows what to do for me. I take three blood pressure meds, lyrica, cymbalta and Norco. I feel so miserable some days. My skin burns all over, every joint hurts, both feet throb if I'm up too long, my muscles hurt terribly and are very weak. I have tremors that get bad from just bathing and putting on my makeup. If I'm still for too long, my extremities get very cold and throb. I can't seem to remember things well and feel so isolated from the rest of the world. It helps a lot to read other people's stories. So sad though to know how many others suffer as well.

@gingerw

@peach414144 The squamous cell cancer from my forehead looked like an eraser dot, but sunken in. Dermatologist was certain "it's just an old scar". I knew it wasn't. The resulting scar is horizontal, but I have no feeling across that part, cannot raise my eyebrow. I tell people it is an access point for my third eye ;))

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@gingerw love that one

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