Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@peach414144

Hello. You mention "nerve block". A month ago my neurologist gave me 6 nerve blocks (3 in each leg) 2 in each foot and 1 in each knee. Did not work. This procedure made the pain and swelling worse. Boy, did I suffer and still am. Sorry to complain but maybe this information can help to put together some information to be added to the rest of our post's. I am hanging in there and send my caring for all of us. Peach

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I had a bunch of injections to relieve pain. I got mine in my spine. They were as worthless as the teats on a boar pig. Maybe get four days of mild relief. I was offered a block of a different kind buy an anesthesiologist before a surgery. He put it in my hip and he said I would not feel any pain for 48 to 72 hours and then I'd have to start to use the medication that my surgeon gave me to take home. It didn't really affect me like a narcotic but it absolutely took all the pain away from my neck and other places I had pain. The surgery was in my neck but I was already a pain patient in a lot of other location period. By and large I think these ejection injections are a waste of time and medically dangerous.

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@wsh66

I had a bunch of injections to relieve pain. I got mine in my spine. They were as worthless as the teats on a boar pig. Maybe get four days of mild relief. I was offered a block of a different kind buy an anesthesiologist before a surgery. He put it in my hip and he said I would not feel any pain for 48 to 72 hours and then I'd have to start to use the medication that my surgeon gave me to take home. It didn't really affect me like a narcotic but it absolutely took all the pain away from my neck and other places I had pain. The surgery was in my neck but I was already a pain patient in a lot of other location period. By and large I think these ejection injections are a waste of time and medically dangerous.

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May I ask what medication the surgeon gave you that took all your pain away?
Thanks

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I'm not sure it was back in 2011 I believe it may have been Demerol. It didn't leave me high or woozy but the pain all over my body was gone for 2 days. It wasn't something they would do on a regular basis, too bad as I've said before many times if you're in pain and you expect to be in pain for the rest of your life look at getting a pain pump inserted into your body. Search wsh66 and read descriptions that I 've given.

Liked by clairecas

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I am catcatanzaro60 I have lived with Chronic pain for the last five years off and on. Chronic Pain will wreck your life. I was always on the Go ( Strong and Hyper) I did gardening as a volunteer for people with worst physical and mental disabilities. I always helped the less fortunate when I was living poor or middle income. When I started searching for pain medicine I was so much labeled. I was taught to go to the ER as an emergency Well around 40 yrs of age, I almost died from my doctors. They accidentally cut my colon, my bladder and kidney tube too. I had arthritis at age 27. And did not think much about it. Back then the only pain med that I was able to take and provide for my three girls was Vikes. Everything else made me feel drunk. So five years ago I told the doctors what I needed for pain. I was not a drug addict but treated badly. I was labeled too. I was so naive at the time. My experience with medication has scared me to death. I have applied for Disability which hurt my pride. Yes, I have pride. But the pain caused me so much pain, made my Depression and anxiety worse. The side effects of the medicine are scary to me. I have tried everything I can to make my life pain free without Drugs but it did not work. I still do PT at home, better nutrition knowledge, chiropractor and massages. Prayer and God have been the best options for me in my life. I hope that everyone will continue to search for the best med or life that will make us comfortable. When it comes to pot, it seems to help people but not everyone. Just like alcohol has cost us so much pain and money. However, it is still used all over the world. Cigarettes are now unsociable due to Health costs. I used to compare Pot to Alcohol so I am confused about the new laws. Pot helps Bipolar people Pot helps people with anxiety. We have many options in America today. Just my thoughts God Bless! This site has been such a blessing to me I hope my senior years will be the best.

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@karen00

Hi Ronnie, what did you find out about your fall? I can’t remember if you gave me the final diagnosis. I just wanted to write – thinking about you!
How is your day? We started off rainy, but now have blue skies with puffy clouds. I’ve given up hope of any more snow this winter. We were lucky to get 7 inches! (I live near Raleigh, NC). I’m having a very rough day considering how pretty it is outside. The pain is unbelievable. I now have been diagnosed with neuropathy in my feet and legs. I need to see a neurologist because every medicine that I know of, that is used for this, I can’t take for 1 reason or another. The diagnoses keep piling on! That’s life….Karen

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@karen00
Good Morning, Karen!
Sounds like you are a lover of snow. Guess when you don't have to live with much, you can enjoy it when you do get it. As a born and bred northerner, I've lived with snow all my life. Honestly, I don't miss it! I do love the look of a fresh new snow, but I hate the cold, wet and what it does to my body.
Do you have diabeties? Is that why you have neuropathy? I remember my mom developed that when she was going through chemo. It was bothersome at the beginning and then became painful. I did not know that you could take meds for it. Would massage or accupressure help?
As far as my back……when I went to the neurosurgeon for a check up, last week, I saw the PA. She said that the xrays looked the same as the ones I took a couple of months ago (for my regular post op check up). As a matter of practice, she always get a 2nd opinion from the actual surgeon. Well, I got a call from the PA saying that the doc wants an MRI. He seems to think there is more going on. I have new insurance, so now I have to wait for approval (didn't need it before). I hope to have the MRI next week. The PA will call with the results and at that time we will determine if I need to go back in for another exam (this time by the surgeon, I think).
My back has been giving me lots of pain. I think it is a combination of the arthritis, fall and the cooler temps and rain. Yesterday moring was really bad. Feeling better today. Hope you are, too!
Thanks for checking on me!
Isn't life interesting?
Ronnie

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@catcatanzaro60

I am catcatanzaro60 I have lived with Chronic pain for the last five years off and on. Chronic Pain will wreck your life. I was always on the Go ( Strong and Hyper) I did gardening as a volunteer for people with worst physical and mental disabilities. I always helped the less fortunate when I was living poor or middle income. When I started searching for pain medicine I was so much labeled. I was taught to go to the ER as an emergency Well around 40 yrs of age, I almost died from my doctors. They accidentally cut my colon, my bladder and kidney tube too. I had arthritis at age 27. And did not think much about it. Back then the only pain med that I was able to take and provide for my three girls was Vikes. Everything else made me feel drunk. So five years ago I told the doctors what I needed for pain. I was not a drug addict but treated badly. I was labeled too. I was so naive at the time. My experience with medication has scared me to death. I have applied for Disability which hurt my pride. Yes, I have pride. But the pain caused me so much pain, made my Depression and anxiety worse. The side effects of the medicine are scary to me. I have tried everything I can to make my life pain free without Drugs but it did not work. I still do PT at home, better nutrition knowledge, chiropractor and massages. Prayer and God have been the best options for me in my life. I hope that everyone will continue to search for the best med or life that will make us comfortable. When it comes to pot, it seems to help people but not everyone. Just like alcohol has cost us so much pain and money. However, it is still used all over the world. Cigarettes are now unsociable due to Health costs. I used to compare Pot to Alcohol so I am confused about the new laws. Pot helps Bipolar people Pot helps people with anxiety. We have many options in America today. Just my thoughts God Bless! This site has been such a blessing to me I hope my senior years will be the best.

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Dear catcatanzaro60: Yes, I do understand you as I am in pain 24/7 and am a bi-polar woman of (now) 81 years of age. I also have been mistreated for being a bi-polar person. The will to live is so much with me (and I guess with everyone) The pain can be a horror. How to deal with it overcomes me many times. Do not know how much longer I can hold out. Thinking of when I was in one of the Lifecare places and broke out of it to come back to my home I know that I will never go back. (Most of the problems ware caused by the family physician and PA.) The cruelties were with many of the patients, not just myself. Any which way, thinking of food has given me an appetite and what a good feeling it will be when I cater to myself by eating my choice of fat french fries (potatoes) and then almond pastaschio ice cream or whatever the flavor you enjoy. Of course this old lady cannot chew the nuts so she keeps them to the side and then crushes them with a clean hammer and then enjoys the taste Then to watch the television. There is an enjoyment even with the pain. Or whatever pleases you. To me, something is better than nothing. I do exercises lying down when watching the TV which is a good idea. So, please cater to yourself, love yourself as much as you can. And then I caress my beautiful dog and the sweet cat who brings me dead things. The animals do help us to help ourselves. Just feeding and caring for them does the body and mind good. With caring to all of us. Peach

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HI Peach. sure liked yoiur sharing with catcatanzaro…I think everyone on this site can really associate with you. Thanks again

Liked by Parus

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Hi my name is Carol, also known by summertime 4 in the depression and anxiety group. I don't know why I didn't just say Carol. Well anyhow I am Carol. Real name. I have been in pain for 5-6 years, maybe more. I have back issues and leg issues. Need new knees. I was diagnosed with fibromyalgia along with osteoarthritis. I have a pain management doctor who has ordered MRI's and various xrays. He knows I hurt. I have been taking percocet for 4 years. It has gotten me through alot of pain, but never takes it completely away, but does help me function. I have always had depression issues and anxiety. When the anxiety flares so does the pain. Percocet helps with the osteoarthritis pain but de nada for fibromyalgia. Gabapentin didn't seem to help so my primary care prescribed Elavil. Elavil is an old time antidepressant and is given for fibromyalgia pain. It is helping me sleep at night without severe pain. Then the anxiety wakes me up. My husband died a year ago on Jan. 7, 2019 and the anxiety is off the charts even when I think I have it together. I am taking 0.2 mg of Klonopin at night. A low dose because I want off. Maybe I can't. I also have my medical marijuana card and have used a variety of products. A tad too much THC and I get anxious. I am using just CBD oil in the evening and is a tremendous help in falling asleep. Seems to be a cycle of pain and anxiety. I want to also stop percocets. As I write that I have to laugh. I had several errands to run and was in and out of my car. By the time I came home I am was in so much pain I took one. My legs are swollen, y thumbs are swollen and the pain was awful. It has subsided some since I took the medication and I will lie down for a bit. I try to stay active. I do pool therapy 2 times a week. Weather permitting I walk my dog or maybe it is he walks me. I also try to keep humor, but sometimes I just want to cry. I feel there is more going on with my body than these issues. I am a young 73 but feel an old 100. I have a 2 year old great grand daughter that stays with me quite often. Sometimes when she leaves, along with missing her and her Momma, I am beat with pain. I look forward to be in this group and I will offer anything that might help someone else. Thank you.

Liked by Parus, lioness, Tairree

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You mentioned medical marijuana. Watch out for Vaping pens that contain cannabis indica in the 60 to 80% THC range. This particular strain of marijuana will give the average person who doesn't suffer from anxiety and anxiety attack. I know from where of I speak. Please be careful love and blessings. It's also good that the Percocet does not completely take your pain away because as long as you don't take your pain away completely you won't get high, if you don't get I you're much less likely to get addicted. I've been using pain drugs for 20 years now. The best thing I can do for myself is deal with depression because nothing fires up my pain like depression. Love and blessings.

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@summertime4

Hi my name is Carol, also known by summertime 4 in the depression and anxiety group. I don't know why I didn't just say Carol. Well anyhow I am Carol. Real name. I have been in pain for 5-6 years, maybe more. I have back issues and leg issues. Need new knees. I was diagnosed with fibromyalgia along with osteoarthritis. I have a pain management doctor who has ordered MRI's and various xrays. He knows I hurt. I have been taking percocet for 4 years. It has gotten me through alot of pain, but never takes it completely away, but does help me function. I have always had depression issues and anxiety. When the anxiety flares so does the pain. Percocet helps with the osteoarthritis pain but de nada for fibromyalgia. Gabapentin didn't seem to help so my primary care prescribed Elavil. Elavil is an old time antidepressant and is given for fibromyalgia pain. It is helping me sleep at night without severe pain. Then the anxiety wakes me up. My husband died a year ago on Jan. 7, 2019 and the anxiety is off the charts even when I think I have it together. I am taking 0.2 mg of Klonopin at night. A low dose because I want off. Maybe I can't. I also have my medical marijuana card and have used a variety of products. A tad too much THC and I get anxious. I am using just CBD oil in the evening and is a tremendous help in falling asleep. Seems to be a cycle of pain and anxiety. I want to also stop percocets. As I write that I have to laugh. I had several errands to run and was in and out of my car. By the time I came home I am was in so much pain I took one. My legs are swollen, y thumbs are swollen and the pain was awful. It has subsided some since I took the medication and I will lie down for a bit. I try to stay active. I do pool therapy 2 times a week. Weather permitting I walk my dog or maybe it is he walks me. I also try to keep humor, but sometimes I just want to cry. I feel there is more going on with my body than these issues. I am a young 73 but feel an old 100. I have a 2 year old great grand daughter that stays with me quite often. Sometimes when she leaves, along with missing her and her Momma, I am beat with pain. I look forward to be in this group and I will offer anything that might help someone else. Thank you.

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I applaud you for your strength, your determination, and your courage. Stay vertical.

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@tompet

Hi, my name is Tommy and I have several chronic diseases. I am not living in the US and am moving from Singapore back to my home country Sweden. I was first sick in 2001 in Sweden and got wrong diagnose and disability pension in 2004. In 2005 I moved to Singapore and the climate made it a lot better so I started working and cancelled my disability pension. But it got worse and I haven’t been able to work for some years and I got help from the health care system here after ending up in the emergency.

It has taken time and the first diagnose was that my knees was worn out and that I had multiple polyarthritis and was put in a wheelchair. I got physiotherapy in warm water and it has helped me a lot. Now I am diagnosed with fibromyalgia, arthritis, chronic sinusitis and chronic pelvic pain syndrome as my prostate and urine bladder gives me problems. On top of that my left lung is collapsing, I have Meckel’s Diverticulum (a pocket on the colon) and when they examined that, colonoscopy, they found the beginning to colon cancer. At this time it was benign but they could not see the whole colon clearly and want it to be done again in Sweden. Like that wasn’t enough I also had a heart attack 26 August last year with following surgery and in the middle of November I was back to hospital with heart problems. My heart was beating to slow and irregular. Tomorrow I will be admitted for a sleep study as I suffer a lot from insomnia.

I also have an abusive marriage and starved so I lost 25 kg and was diagnosed with malnutrition. Thankfully I got help from the social welfare so I could at least eat one meal a day. I am very thankful for the help I have got here in Singapore; they have done a lot for me. After several years of struggle in court I finally got help from legal aid and am getting a divorce from my wife and can return to my home country. I have tried to leave before but my wife has stopped me and now I have to leave because I will lose my PR because of the divorce.

But I have nowhere to go. I am going back to a place I have lived before but because of the refugee situation in Sweden there is no housing available. Even the health care system is trying to make it hard for me to come there. I have a daughter and grandchildren there and my daughter is helping me but fighting with the bureaucrats is horrible. I just have to go there and just hope they will help me otherwise I will end up on the street without health care. The catch 22 is that I can’t stay with my daughter because then they will say I don’t need help. The Swedish system is for refuges not for helping returning citizens. And they misdiagnosed me before. I hope I at least can refill my medications as I am not allowed to take everything with me into the country and I so badly need a wheelchair. Hope I can get help with it.

Sorry for writing so long but I am in a lot of pain and the situation is desperate so I need all the input I can get. Thank you.

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May God bless you. Prayers for you Cat

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Hello, my name is Tairree. I suffer chronic pain and really have a rough time just making through a day sometime. I pray and have faith that I will find a way to be able to continue to take care of myself and live alone. Actually contimplating a device incase I have an issue to contact help. God Bless all on this site. And thanks for letting me participate 😊

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@summertime4

Hi my name is Carol, also known by summertime 4 in the depression and anxiety group. I don't know why I didn't just say Carol. Well anyhow I am Carol. Real name. I have been in pain for 5-6 years, maybe more. I have back issues and leg issues. Need new knees. I was diagnosed with fibromyalgia along with osteoarthritis. I have a pain management doctor who has ordered MRI's and various xrays. He knows I hurt. I have been taking percocet for 4 years. It has gotten me through alot of pain, but never takes it completely away, but does help me function. I have always had depression issues and anxiety. When the anxiety flares so does the pain. Percocet helps with the osteoarthritis pain but de nada for fibromyalgia. Gabapentin didn't seem to help so my primary care prescribed Elavil. Elavil is an old time antidepressant and is given for fibromyalgia pain. It is helping me sleep at night without severe pain. Then the anxiety wakes me up. My husband died a year ago on Jan. 7, 2019 and the anxiety is off the charts even when I think I have it together. I am taking 0.2 mg of Klonopin at night. A low dose because I want off. Maybe I can't. I also have my medical marijuana card and have used a variety of products. A tad too much THC and I get anxious. I am using just CBD oil in the evening and is a tremendous help in falling asleep. Seems to be a cycle of pain and anxiety. I want to also stop percocets. As I write that I have to laugh. I had several errands to run and was in and out of my car. By the time I came home I am was in so much pain I took one. My legs are swollen, y thumbs are swollen and the pain was awful. It has subsided some since I took the medication and I will lie down for a bit. I try to stay active. I do pool therapy 2 times a week. Weather permitting I walk my dog or maybe it is he walks me. I also try to keep humor, but sometimes I just want to cry. I feel there is more going on with my body than these issues. I am a young 73 but feel an old 100. I have a 2 year old great grand daughter that stays with me quite often. Sometimes when she leaves, along with missing her and her Momma, I am beat with pain. I look forward to be in this group and I will offer anything that might help someone else. Thank you.

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Good morning Carol, (summertime4) first off I like summertime4 best time of year sunshiny 🌞 warm. Second I’m sorry for your loss 😢 and sorry for all the pain you suffer. I do know how you feel, reading your post was like me talking about myself. I am bombarded with so many ailments makes me dizzy sometimes just trying to keeping up w/meds an stuff. But still try to stay positive, pray & have faith I will perservere. I did want to ask you have you ever tried Lyrica for your fibromyalgia ? If not you might consider. Seems to work best for me and my nerve issues and believe is also used for fibromyalgia. I am new to this site and today was my first day to post and begin to read some. Yours was first I read and wanted to reply. I hope you have a good day. God Bless You. Tairree

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@Hi Tairree and all those who responded to my post of yesterday. Tairree yes I can see the frustration from both of us. I smile about what you said about getting a think it's called a Life Alert. I was with friends yesterday and we were discussing the fact that my balance and pain sometimes frightens me because of the possibility of a fall. We talked about getting the "Red Button" thing around my neck. I joke, but I a seriously considering it. I think some of my anxiety at not is caused by fear. I am not afraid of someone breaking in. I am afraid that if something happens I cannot reach anyone. I was feeling very sorry for myself a few weeks ago when it snowed. I didn't hear or see anyone so , yup, I cleaned a path and cleaned my car and cried the entire time. Hated every one for not being here and blah blah. I afterwards, as I was driving down the road, thought wow if I fell in the snow no one would find me until Spring. That is probably not true, but it would be a few days. Of course no one thought I would want to venture out. I am 73 and they know me and they know when I want something I want it and do what it takes to get it. Al kidding aside. The pain is real. My thumbs hurt so much right now I keep them tucked under while typing. I have lived alone in the past for several years and had no problem. However, I was 23 years younger. You know I have been prescribed Lyrica and/or gabapentin. Not sure why I didn't stay with it. I may talk to the doctor tomorrow about trying it again. I have a question for the group members. Do you feel extreme pain when a fear or an anxiety comes over you. My body immediately feels like a fire inside. A feeling of burning from the inside out. When that begins I know I will be in pain and the anxiety and pain will take over my boy and mind. I just don't know if this is the way I have to live or is there something else going on that needs attention. I do see a psychiatric nurse and she has prescribed Effexor and the Klonopin. Thank you everyone. I did get to Church and the grocery this morning and am ready for a nap.

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@summertime4

@Hi Tairree and all those who responded to my post of yesterday. Tairree yes I can see the frustration from both of us. I smile about what you said about getting a think it's called a Life Alert. I was with friends yesterday and we were discussing the fact that my balance and pain sometimes frightens me because of the possibility of a fall. We talked about getting the "Red Button" thing around my neck. I joke, but I a seriously considering it. I think some of my anxiety at not is caused by fear. I am not afraid of someone breaking in. I am afraid that if something happens I cannot reach anyone. I was feeling very sorry for myself a few weeks ago when it snowed. I didn't hear or see anyone so , yup, I cleaned a path and cleaned my car and cried the entire time. Hated every one for not being here and blah blah. I afterwards, as I was driving down the road, thought wow if I fell in the snow no one would find me until Spring. That is probably not true, but it would be a few days. Of course no one thought I would want to venture out. I am 73 and they know me and they know when I want something I want it and do what it takes to get it. Al kidding aside. The pain is real. My thumbs hurt so much right now I keep them tucked under while typing. I have lived alone in the past for several years and had no problem. However, I was 23 years younger. You know I have been prescribed Lyrica and/or gabapentin. Not sure why I didn't stay with it. I may talk to the doctor tomorrow about trying it again. I have a question for the group members. Do you feel extreme pain when a fear or an anxiety comes over you. My body immediately feels like a fire inside. A feeling of burning from the inside out. When that begins I know I will be in pain and the anxiety and pain will take over my boy and mind. I just don't know if this is the way I have to live or is there something else going on that needs attention. I do see a psychiatric nurse and she has prescribed Effexor and the Klonopin. Thank you everyone. I did get to Church and the grocery this morning and am ready for a nap.

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@summertime4 God Bless your heart Please let your friends and family know your fears I am sorry you had to shovel. I wish I could have helped you. I try to get my mom to get one. She lives in Tennessee and me in Ohio. I worry about her all the time. She stays to her self a lot. She got a puppy last year. That puppy keeps her young! She is 75.

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