Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Hello All, my name is Tom. I suffer from chronic rectal pain on my left side for years. I've been told it's bursitus or a tear. It cannot be fixed due to the location behind nerves. It feels like someone is pushing on a big bruise 24/7/365. Thus I'm seeing a pain doctor who is excellent.

Besides the rectal issue I'm having terrible left leg pain
I wake up 2 to 3 times a night due to the pain. Also when I wake up my left hand is numb. I'm seeing a neurosurgeon tomorrow which I'm guessing is going to say my lower back is causing the pain.

Does anyone in this social platform have chronic rectal pain?

Thanks for reading and wishing all a pain free day.

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Hi, cronic pain from military 29 year career, 15 implants sums it up. For the past 12 months Ive had 6 R hip revisions and and am to have a Girdlestone procedure, mostley because of multiple hospital bacterial issues. Im told that the pain associated with this procedure wont be much different than what Im currently experiencing – by the way I have a surgically fractured femur stem with a prosthesis that has rotated and might have a broken element, so my pain is excruchiating. How do you cope with over months when my 3 weeks are brain numbing?

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@moemoe

Hi, cronic pain from military 29 year career, 15 implants sums it up. For the past 12 months Ive had 6 R hip revisions and and am to have a Girdlestone procedure, mostley because of multiple hospital bacterial issues. Im told that the pain associated with this procedure wont be much different than what Im currently experiencing – by the way I have a surgically fractured femur stem with a prosthesis that has rotated and might have a broken element, so my pain is excruchiating. How do you cope with over months when my 3 weeks are brain numbing?

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, if you think you're going to be in pain from multiple sources for the rest of your life I would recommend looking into an implanted pain pump. It goes in your abdomen with a catheter up your spine and delivers very small doses of Narcotics directly to the nerves and deals with almost pain anywhere in your body. We're talking about drugs on the order of two to four milligrams of Dilaudid every 24 hours. Drugs delivered this way are 300 times more potent than those delivered by mouth. That's not the right way to say it there not more potent the 300 times more effective. You don't have the problems with addiction you don't have the problems with side effects, somnolence, you never get high, it's just the best thing you're ever going to find to put pain behind you. I still live with pain I am disabled by pain because my pain lights up when I walk so I don't walk very far but prior to getting the pump I was taking huge doses of Narcotics which were totally ineffective. I feel like I found the answer. Where are you located?

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Hi Kelsey, Nice to meet you. I am Lori Renee, and I have peripheral neuropathy. Thought I would join this group to learn and help people in pain. We could use support from others!

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I fell and damaged my ribs. Fortunately for me I have very good bones. I suffer from RA, Afib,and chronic pain. When my dog knocked me down last week,. Now this is a story for another time. I went to ER by ambulance. I am 76. They sent me home after x Ray's. No breaks. But lots of pain. They refused me and pain med. My blood Pressure is usually very very normal 128 over 76. It climbed to 150 in ER and today I am 180 over 80. There is no exceptions on pain meds for seniors. What to do. Now my primary gave me Tylonol with codeine. Enough for 3 days..

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@lorirenee1

Hi Kelsey, Nice to meet you. I am Lori Renee, and I have peripheral neuropathy. Thought I would join this group to learn and help people in pain. We could use support from others!

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I have neuropathy and it is fairly well controlled buy Lyrica and amitriptyline. If cost is a factor regular Neurontin could replace the Lyrica.

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@oregongirl

I fell and damaged my ribs. Fortunately for me I have very good bones. I suffer from RA, Afib,and chronic pain. When my dog knocked me down last week,. Now this is a story for another time. I went to ER by ambulance. I am 76. They sent me home after x Ray's. No breaks. But lots of pain. They refused me and pain med. My blood Pressure is usually very very normal 128 over 76. It climbed to 150 in ER and today I am 180 over 80. There is no exceptions on pain meds for seniors. What to do. Now my primary gave me Tylonol with codeine. Enough for 3 days..

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@oregongirl I'm so sorry you hurt your ribs thankfully they aren't broken but painful I'm sure Maybe ice will help to calm the inflammation and drinking Golden Milk also just rest till they get better Remember Ginger-Tumeric tea for inflammation also .Wishing you well.

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@oregongirl

I fell and damaged my ribs. Fortunately for me I have very good bones. I suffer from RA, Afib,and chronic pain. When my dog knocked me down last week,. Now this is a story for another time. I went to ER by ambulance. I am 76. They sent me home after x Ray's. No breaks. But lots of pain. They refused me and pain med. My blood Pressure is usually very very normal 128 over 76. It climbed to 150 in ER and today I am 180 over 80. There is no exceptions on pain meds for seniors. What to do. Now my primary gave me Tylonol with codeine. Enough for 3 days..

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I am so sorry about your rib pain. I am also sorry that our society has come to the point where people that are honestly hurt and in pain cannot get the pain medication they need. Please give us updates as to how you are doing.

Liked by vklittle61

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@harleymama

@teress221 I had two kidney surgeries. A couple of years later I developed chronic pain in my low back, sacrum, buttocks, hips and thighs. I've had two surgeries on my hip thinking that was the source of this new pain. After three years of therapy, injections, and testing, insurance change, having to change my therapist, etc. A fresh set of eyes and new perspective has come to light. The theory is that the kidney surgeries caused scar tissue and nerve entrapment, the source of my pain. I wonder if the chest tube caused the same perfect storm inside of you. The recommended treatment has been myofascial release. This is done with manipulative therapy. I had been getting a weekly (and extremely painful) deep tissue massage, but that's not what myofascial release entails. It's a very light touch. The first time I thought it was voodoo and what kind of quack is this. Laughingly I asked what I could expect over the next few days. She said I wasn't going to like her very well. Actually I HATED her over the next few days. I couldn't walk more than 90 seconds at a time. Then I got back to my baseline. While my husband was away from home for a vacation, I had my girlfriends over for a board game night. I spent the day cleaning my house and cooking and setting up card tables. By that night, I was having another flare in my pain. Back to 90 second walks again. I've seen this therapist a total of four times now. I can't believe how much improvement I've made since my first time!! One day last week and one day this week, I woke up with ZERO pain. Usually I toss and turn trying to get comfortable and when I can't take it any more I get up for the day. The first time I woke up with no pain, I literally thought I was dreaming. I was looking at my alarm clock thinking this is such a wonderful dream and I don't want to wake up, wishing myself back to sleep. Then my alarm went off and I realized I was awake! Of course my pain started up again once I was up and moving but what ecstasy to have those few moments after years of constant pain. I am a believer in this massage therapist! Problem is her availability. I only get in once every other week or so. There is an intensive program in Sedona AZ that I'm looking into. You get 3 hours daily of this therapy and it's 2-3 weeks long. I am so anxious for this pain to end and I am seeing a light at the end of the tunnel. I'm ready to sprint to the finish line! I am trying to figure out how I can make it work with my finances, insurance, and time off from work. If you haven't tried myofascial release therapy, find a John Barnes trained therapist and give it a few sessions. They should be able to tell you at the first session if they feel scarring and can help you. I mention John Barnes therapists because many massage therapists believe they're trained in myofascial release but it's not the same thing. I've received both. There's a difference. If you're close to Sedona, I've heard that you can book appointments for a single session instead of the intensive program.

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I have tried I think every thing when it first happened to me it was 17 yrs. Later that they said it was nerve damage I can't even stand for some one to touch me on my side it just so bad

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@teress221

I have tried I think every thing when it first happened to me it was 17 yrs. Later that they said it was nerve damage I can't even stand for some one to touch me on my side it just so bad

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I have CRPS. I was originally told by my surgeon that it was a problem with the nerves. When my doctor first touched my foot, I about jumped off the table.

Liked by rsnowflake

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I was diagnosed about 2 years ago now. After a broken ankle. The pain is unexplainable to any one else. I got a nerve blocker in my leg, it worked. But the disorder likes to move on to another part of the body. It went to my hand and arm , my hand was blue and purple, they call it mermaid skin, then it went atrophied. I tried gabapentin, then nerve blockers. They didn't work so I have a spinal implant now. It helped my arm amazingly and luckily they put in 2 leads, cause it jumped to my other arm. It's really hard, weather changes, stress all change how I feel each day. But medical marijuana has helped immensely. If its available go to a pharmacy and talk to them, there really knowledgeable. Talk to me any time. Ask any thing you want, or I'll just listen. Renee

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rsnowflake. Look into a pain pump. It's what I have and it doesn't matter where your pain locates itself, it gets it all for me. A tiny dose of narcotics goes directly to your spine bypassing your digestive tract. No side affects to deal with, nobody will think your a "drug seeker", as you have no access to the drugs in your pump. 2 to 3 mgs. per day of dilaudid is all it takes. it is 300 times more effective than oral meds. Won't make you tired or sleepy and it certainly won't get you high.

Question: do you use pot products that contain THC or are they denatured and how do you take it? I hear alot about this I'm not sure what the people who are getting relief are using. It gets it biggest rave reviews from folks in CA and CO. Thanks for helping me with this.

Stephen (wsh66)

Liked by rsnowflake

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@wsh66

rsnowflake. Look into a pain pump. It's what I have and it doesn't matter where your pain locates itself, it gets it all for me. A tiny dose of narcotics goes directly to your spine bypassing your digestive tract. No side affects to deal with, nobody will think your a "drug seeker", as you have no access to the drugs in your pump. 2 to 3 mgs. per day of dilaudid is all it takes. it is 300 times more effective than oral meds. Won't make you tired or sleepy and it certainly won't get you high.

Question: do you use pot products that contain THC or are they denatured and how do you take it? I hear alot about this I'm not sure what the people who are getting relief are using. It gets it biggest rave reviews from folks in CA and CO. Thanks for helping me with this.

Stephen (wsh66)

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This sounds like what I need so bad

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@vklittle61

This sounds like what I need so bad

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I'm right there with you. I live in Alabama, so I think I'm out of luck.

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@wsh66

rsnowflake. Look into a pain pump. It's what I have and it doesn't matter where your pain locates itself, it gets it all for me. A tiny dose of narcotics goes directly to your spine bypassing your digestive tract. No side affects to deal with, nobody will think your a "drug seeker", as you have no access to the drugs in your pump. 2 to 3 mgs. per day of dilaudid is all it takes. it is 300 times more effective than oral meds. Won't make you tired or sleepy and it certainly won't get you high.

Question: do you use pot products that contain THC or are they denatured and how do you take it? I hear alot about this I'm not sure what the people who are getting relief are using. It gets it biggest rave reviews from folks in CA and CO. Thanks for helping me with this.

Stephen (wsh66)

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Sometimes I use the vape pen with thc and cbd. It calms me down and definitely makes me just enough in a little high to forget about fairly constant pain. I also use capsules with thc and cbd because I have chronic respiratory problems and the Cbd helps with anti- inflammation. Its been very helpful. Good luck. If you want 2 talk or just need someone to hear other experiences. Renee

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