Ulcerative colitis - worried about medications

Posted by laura l @laural1, Aug 12, 2011

grandson 8yrs old has had colitis since 3yrs old, now facing prospect of surgery, as he has been on steriods for to long, Anyone who has child of this age, to share information…..we are in Ca with Drs in Roseville pediatric center

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@wendyw

I would like to know if other members have had kidney stones related to their ulcerative colitis?

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Hi Wendy,
I have ulcerative colitis but have not had any experience with kidney stones. I have had UC for about 33 years. Good luck to you with your treatment. I hope you are feeling better soon.

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anyone using Xeljanz for ulcerative colitis? side effects?

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@ejlouboutin16

So sometimes when I go to the bathroom, I get blood in my stool, some days it’ll be a lot the point of where it drips into the toilet, otherdays it just shows on the bathroom tissue. And I dont know if it’s just because i push too much, or if it’s because I sit for too long. I also get constant bloating, pressure problems, as well as watery stools, and less frequently, hard stools. But the bloating and pressure have been ongoing for years now, sometimes it makes me think that it could be a cause due to constant anxiety that I suffer from. If anybody has any possible idea as to what it could be let me know. Thank You.

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@ejlouboutin16 I have a similar problem. I am not sure where the blood comes from but I have coincidentally come to realize very recently (as in the last few weeks) that I either have lactose intolerance or IBD (Inflammatory Bowel Disease‎). From what I have been able to determine, with just lactose intolerance there is not generally blood in a person's stools which is why I now wonder about IBD. I plan to try to isolate what else other than lactose containing foods may be causing problems for me, and then I plan to make an appointment with a gastroenterologist.
I too have bloating and pressure.
I suggest you make an appointment with a gastro and try to get to the bottom of it. If you do, and if you find anything out, please let me know and I will do the same if I make it to the doctor. The doctor I would like to see is scheduling in September or October so I may have to settle for someone else.
JK

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@ejlouboutin16

So sometimes when I go to the bathroom, I get blood in my stool, some days it’ll be a lot the point of where it drips into the toilet, otherdays it just shows on the bathroom tissue. And I dont know if it’s just because i push too much, or if it’s because I sit for too long. I also get constant bloating, pressure problems, as well as watery stools, and less frequently, hard stools. But the bloating and pressure have been ongoing for years now, sometimes it makes me think that it could be a cause due to constant anxiety that I suffer from. If anybody has any possible idea as to what it could be let me know. Thank You.

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@contentandwell, I will try to see a doctor as soon I get health insurance back, so it could be at least a couple of months before I find anything. Inclusively, besides bloating, I tend to notice anal itching and even cramps in my case. So i personally hope that it’s just something as minor as IBD or fissure/hemorrhoids

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@ejlouboutin16

@contentandwell, I will try to see a doctor as soon I get health insurance back, so it could be at least a couple of months before I find anything. Inclusively, besides bloating, I tend to notice anal itching and even cramps in my case. So i personally hope that it’s just something as minor as IBD or fissure/hemorrhoids

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@ejlouboutin16 That's too bad that you need to wait to see the doctor. I do not have itching, and not really cramps, more of an upset stomach frequently when after eating dairy and something else that I have not yet isolated.
You may be confusing IBS with IBD. They are not the same. If you google IBS vs IBD you will find more information about both of them, but frankly, I find it sort of confusing. That's why I think I do need to see a doctor about it, so that he or she can sort it out and suggest what might help.
JK

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@ejlouboutin16

So sometimes when I go to the bathroom, I get blood in my stool, some days it’ll be a lot the point of where it drips into the toilet, otherdays it just shows on the bathroom tissue. And I dont know if it’s just because i push too much, or if it’s because I sit for too long. I also get constant bloating, pressure problems, as well as watery stools, and less frequently, hard stools. But the bloating and pressure have been ongoing for years now, sometimes it makes me think that it could be a cause due to constant anxiety that I suffer from. If anybody has any possible idea as to what it could be let me know. Thank You.

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@contentandwell I just hope, that it’s nothing cancerous, like I mean I’m just 21, but I just want to be sure

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@ejlouboutin16

@contentandwell I just hope, that it’s nothing cancerous, like I mean I’m just 21, but I just want to be sure

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@ejlouboutin16 I totally understand. That is a concern for me also, which is why it is important to get checked out by a gastroenterologist.
I have two different things that require an appointment with a gastro, but these days at the major medical centers the gastros specialize so much that I will need to go to two! One for my Barrett's Esophagus, and a different one for this.
JK

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@dval

Diagnosed with UC at 60. Was in remission 4 months with max dose of oral mesalamine; developed acute pancreatitis and had to discontinue. Terrified of biologics, but may be only resort left? Please share experiences…

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Hi. When I posted this, I thought space was limited and didn’t provide many details. I am a 62 year old female, diagnosed with UC 2 years ago. I have been on oral mesalamine, which worked for 3 months until I developed acute pancreatitis. Prior to that, I had been prescribed Canasa (suppositories), Uceris rectal foam, hydrocortisone (oral and rectal). GI doc is pushing ENTYVIO and I am terrified of possible side effects. I am in good health, never smoked, do not drink, eat a healthy diet and exercise regularly. I am about to make an appointment with integrative medicine doctors to try acupuncture and herbal treatments like aloe vera and Boswellia? Has anyone been on Entyvio or more natural things and have they helped? The fact that I developed pancreatitis from 8.4 G of mesalamine daily was frightening and GI doc said that was a rare side effect. This is a horrible debilitating disease and I just want my life back. Has anyone had good or bad results with their UC treatment? Thank you so much!

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@dval

Hi. When I posted this, I thought space was limited and didn’t provide many details. I am a 62 year old female, diagnosed with UC 2 years ago. I have been on oral mesalamine, which worked for 3 months until I developed acute pancreatitis. Prior to that, I had been prescribed Canasa (suppositories), Uceris rectal foam, hydrocortisone (oral and rectal). GI doc is pushing ENTYVIO and I am terrified of possible side effects. I am in good health, never smoked, do not drink, eat a healthy diet and exercise regularly. I am about to make an appointment with integrative medicine doctors to try acupuncture and herbal treatments like aloe vera and Boswellia? Has anyone been on Entyvio or more natural things and have they helped? The fact that I developed pancreatitis from 8.4 G of mesalamine daily was frightening and GI doc said that was a rare side effect. This is a horrible debilitating disease and I just want my life back. Has anyone had good or bad results with their UC treatment? Thank you so much!

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I don't have UC, but you might find a separate forum on the Mayo site just for IBD. Might find more help there. Hopefully a moderator will jump in and direct you to the right place. Sorry you are having these problems.

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@tiss

I don't have UC, but you might find a separate forum on the Mayo site just for IBD. Might find more help there. Hopefully a moderator will jump in and direct you to the right place. Sorry you are having these problems.

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Thank you for responding! I am searching a few sites to get information from people that have used the medicines out there for UC. It’s frustrating to say the least… So thank you for your input!

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@dval

Thank you for responding! I am searching a few sites to get information from people that have used the medicines out there for UC. It’s frustrating to say the least… So thank you for your input!

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Best of luck to you!

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@dval

Diagnosed with UC at 60. Was in remission 4 months with max dose of oral mesalamine; developed acute pancreatitis and had to discontinue. Terrified of biologics, but may be only resort left? Please share experiences…

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Thanks so much! I see my GI doc on Tuesday and I am armed with a list of questions and several clinical trials. 🤞

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