grandson 8yrs old has had colitis since 3yrs old, now facing prospect of surgery, as he has been on steriods for to long, Anyone who has child of this age, to share information…..we are in Ca with Drs in Roseville pediatric center
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@jjob73, welcome. I moved your question to this existing discussion about UC:
– Ulcerative colitis – worried about medications https://connect.mayoclinic.org/discussion/ulcerated-colitis/
I did this so you can easily connect with fellow members like @mauionmymind @dval @ejlouboutin16 @baz10 @ssin20 @johnson53rl who are dealing with ulcerative colitis and talking about medications. I'll also tag @trying1975 @candrgonzalez who have experience with autoimmune conditions and taking Xeljanz (tofacitinib).
Did your doctors explain why they think your response to Xeljanz (tofacitinib) may not be as good this time?
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It’s started off well until my insurance made me go down to the 11 mg ER pills. Not as effective as the 10 mg original pills. Hopefully it works again.
My Dr said it “ might be hard to catch lightning in a bottle “ twice. Meaning since it worked then had to take a lower dose it might not work as well again.
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