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James E Bruce
@arlenephoto

Posts: 6
Joined: Oct 02, 2018

Lewy Body Dementia with Parkinson

Posted by @arlenephoto, Thu, Oct 4 11:19pm

My husband has Lewy Bodies with Parkinson.

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Can Mayo Clinic give us more assistance than the doctors here, in the Palm Springs area? The information about this disease of Lewy Body has to better & more experienced than what he receives at Desert Oasis Medical. He was diagnosed March 2018.
My husband, "Semaja" has been spiraling downward with his movements and walking. He's in pain as soon as he stands-up and tries to move his legs/feet.
No one has mentioned or discussed his fall in 1991…. might have led to this disease.
It's only recently that one hears about this disease. People didn't discuss @Robin Williams death was a combination of Lewy Bodies and Parkinson. Now, @ted Turner announced that he has them, also.

@arlenephoto

Can Mayo Clinic give us more assistance than the doctors here, in the Palm Springs area? The information about this disease of Lewy Body has to better & more experienced than what he receives at Desert Oasis Medical. He was diagnosed March 2018.
My husband, "Semaja" has been spiraling downward with his movements and walking. He's in pain as soon as he stands-up and tries to move his legs/feet.
No one has mentioned or discussed his fall in 1991…. might have led to this disease.
It's only recently that one hears about this disease. People didn't discuss @Robin Williams death was a combination of Lewy Bodies and Parkinson. Now, @ted Turner announced that he has them, also.

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Hi, @arlenephoto. Welcome to Mayo Clinic Connect. I'm really sorry to hear that your husband has been spiraling downward with his movements and walking, as well as his pain.

Mayo Clinic does have expertise in Lewy Body Dementia. Here is some information about the disease, treatments and care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025.

You may also be interested in this Mayo Clinic Q&A on Lewy Body Dementia, https://newsnetwork.mayoclinic.org/discussion/new-international-guidelines-issued-on-dementia-with-lewy-bodies/.

If you'd be interested in having your husband seen at Mayo Clinic, you may request an appointment here: mayocl.in/1mtmR63.

Has anything helped so far with his pain, @arlenephoto?

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