Mayo Clinic Connect
My husband has Lewy Bodies with Parkinson.
Liked by James E Bruce
Can Mayo Clinic give us more assistance than the doctors here, in the Palm Springs area? The information about this disease of Lewy Body has to better & more experienced than what he receives at Desert Oasis Medical. He was diagnosed March 2018.
My husband, "Semaja" has been spiraling downward with his movements and walking. He's in pain as soon as he stands-up and tries to move his legs/feet.
No one has mentioned or discussed his fall in 1991…. might have led to this disease.
It's only recently that one hears about this disease. People didn't discuss @Robin Williams death was a combination of Lewy Bodies and Parkinson. Now, @ted Turner announced that he has them, also.
Liked by Teresa, Volunteer Mentor, Lisa Lucier, Connect Moderator, James E Bruce
Jump to this post
Hi, @arlenephoto. Welcome to Mayo Clinic Connect. I'm really sorry to hear that your husband has been spiraling downward with his movements and walking, as well as his pain.
Mayo Clinic does have expertise in Lewy Body Dementia. Here is some information about the disease, treatments and care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025.
You may also be interested in this Mayo Clinic Q&A on Lewy Body Dementia, https://newsnetwork.mayoclinic.org/discussion/new-international-guidelines-issued-on-dementia-with-lewy-bodies/.
If you'd be interested in having your husband seen at Mayo Clinic, you may request an appointment here: mayocl.in/1mtmR63.
Has anything helped so far with his pain, @arlenephoto?
Liked by Teresa, Volunteer Mentor
Thank you Teresa, I think at this time I need to learn more about his Parkinsons. His movement is my big concern at this time. I have been taking him to the VA clinic at this time. They seem to know so much more than the local doctors. The medication he is taking now has seemed to be helping with his Tremors and Twitching. My biggest concern, at this time, is his movement walking. It's so difficult standing and walking. Funny thing is,,, he does more for himself when I'm not around the house.
I always leave Healthy Meals and lots of food in the Refrig! That way I know, when he's hungry he gets up and EATS!
I have recently been taking him to the PT facility.
version 220.127.116.11.2.7Page loaded in 0.463 seconds