Speech Therapy can be very important for folks with PD, for 2 reasons

Posted by jatonlouise @jatonlouise, Feb 14 11:53am

There are 2 reasons why speech therapy is important for folks with PD.: : (1) Communication: PD can change your voice. Your speech may be so hoarse that people who hear it think you most certainly had begun smoking in utero. While they can't imagine the logistsics of pulling that off, they can't imagine another way to explain it. And if folks can't understand what you say, they become reluctant to engage in conversation with you. It's just too hard.

(2) The muscles you use for speaking are the same ones you use for swallowing. You may have noticed that the standard way of getting food into your belly involves your mouth and throat. And if those muscles atrophy you must find some other avenue for your food to get into your stomach. Eating a nice steak, a potato smothered in sour cream, and perhaps a lovely salad or dessert is a very nice way to gain sustenance.

But if the primary pathway doesn't work very well, you may aspirate food into your lungs and develop pneumonia. You may not mind the first hospitalization for penumonia, but by the time the number of hospitaliztions reaches a 2-digit number, you might not be too keen on it.

Then the alternative is to have a port into your belly, mix some nutritional but not particularly tasty substances into a blender and put a funnel into that port in your belly and have your food by-pass your mouth and throat entirely. You might be able to deal with that for a while, but I imagine that, particularly around the holiday season, you might wish you had been a tad more diligent with your speech therapy excercises.

I have had this discussion with myself fom time to time, but alas, I can be about the most obstinate of creatures to ever have walked the earth and as I hear my voice getting more and more hoarse, I grow increasingly anxious about the consequences of my lackadaisical approach to the whole thing.

One of the best exercises involves a water bottle and a tube. You fill the water bottle about three inches. The tube is maybe a foot or 18 inches long . it is roughly the diameter of my thumb. You must put the tube in the bottle and blow into it as you sing.

This brings back memories of family dinners every Sunday after church. We often went to the local cafeteria which had lucious fried chicken of fried fish, and Jello salads, fresh vegetables, and desserts to die for. Sometimes kids get bored even at a meal involving these delights, and they decide that putting a straw in their coke and blowing bubbles into it will help beguile the tediium of the meal that seems to be well on its way to the longest meal in all of Christendom. This behaviour would not be tolerated by the adults.

So this particular exercise brings back memories of the punishments that followed blowing bubbles in my coke in that long-defunct cateteria.

It also requires singing. If my life depended on it, I could not carry a tune in a wooden bucket. I'm certain that I could make a living by charging people to NOT sing at their weddings. And, while singing at a wedding requires your physical presence, not singing at that wedding can be done from anywhere and (theoreticallly) you could not sing at many weddings simultaneously.

Alas, that's another enterprise that didn't pan out for me. Since my singing caused others pain, and I didn't enjoy it mself and rarely do it, I have no lyrics. And, of course, there's the profound lack of will do to it

But, after having several conversations with myself regarding the possibility of having a port in my belly for whatevery remains of my lilfe, I've almost convinvced myself to work on it. My speech therapist is young, caring, charming and really commited to helping her clients develop ways to normalize their lives as much as they can, so I'm sure it pains her to hear me getting increasingly worse .

Having put myself in time-out numerous times, I think I have come up with a solution. It's a common song with very easy lyrics (Its lyrics are simple - 12 words.) And unlike the songs on American Bandstand, it's not necessary to be able to dance to it, nor are the lyrics reqired to be touching. So I think I'm going to surprise my sweet speech therapist Monday morning when she comes to endure yet again my recalcitrance and I surprise her by singing my song to her. I'm sure you'e heard of it and most likely have sung it s time or two yourself. The first line of lyrics go like this, "99 bottles of beer on the wall....." Do you think she'll like it?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

I really enjoyed reading this-your sense of humor makes a serious topic much easier to engage with.

You're absolutely right that speech therapy isn't just about having a stronger voice. For people with Parkinson's, it's also about protecting swallowing function, reducing the risk of aspiration, and maintaining quality of life. Those daily exercises can feel repetitive, but they really do add up over time.

And yes, I think your speech therapist will probably appreciate the effort more than the song itself! "99 Bottles of Beer" may not win any awards for lyrical brilliance, but if it gets you practicing consistently, that's a win. The best exercise is often the one you'll actually do.

For anyone looking for professional speech therapy support, Proactive Care offers speech therapy services with therapists who work on communication, swallowing, and personalized rehabilitation plans. You can learn more at proactivecare.ae

Thanks for sharing such an honest and entertaining post-it’s a great reminder that while Parkinson's presents challenges, a little humor and persistence can go a long way. Wishing you and your speech therapist a successful (and hopefully entertaining) session on Monday!

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Great comments and love the humor. You obviously live by my motto, I am not waiting for the storm to pass, I am going to learn to dance in the rain. You motivated me to schedule my speech therapy. Thanks, Joe

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My wife has begun to have swallowing difficulties.just looking into speech therapy options.
Does the process help measurably, maintain function; improve function or slow progress. ?
Is it necesssry to find a Dora h therapist that specializes in swallowing difficulty due to Parkinson’s symptoms?

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Profile picture for jackcol315 @jackcol315

My wife has begun to have swallowing difficulties.just looking into speech therapy options.
Does the process help measurably, maintain function; improve function or slow progress. ?
Is it necesssry to find a Dora h therapist that specializes in swallowing difficulty due to Parkinson’s symptoms?

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@jackcol315 I'm no expert on this topic, but I'm happpy to share my thoughts, in hopes that some of the words I stri ng together might actually have value, or perhaps spark some ideas in your head that will take you where you need to go 😉 Maybe the best person to ask might be a speech therapist. There is is a boatload of things that are extraordinarily complex that you never really think about when you're having a chat with someone while eating a sandwich, Like how the muscles do what they do and how you make them stronger to overcome thngs like speech defects or about just how the muscles do what tthey do to make all these things doable Most folks just take this for granted.... until youfind yourself taking 15 minutes to get a s single bit of food fom your mouth to your stomach. Some of the exercises the therapist may ask you to do may seem a tad strange. One of them that I found myself very averse to was where you take a water bottle and a piece of plasstic tubing about 10 inches long. You sing a song while blowing bubbbles in the bottle. I doubt that I'm the only person who did that as a child when we went to a cafeteria for lunch after church s who yielded into the temptation to blow bubbles in my CocaCola and remembers being soundly chastized, with threats of some dire punishment upon returning home if I didn't stop embarassing the entire family, so it's a bit hard to do that when you're expecting to have somebody pinch your arm really hard to get your attention without causinsg a scene in the cafeeria full of other people ,many of them fellow church-goers. But doing that exercize strengthens your throat muscles and helps you swallow and talk (although not at the same time),And when you can't carry a tune in a wooden bucket, singing while anyone is within 8.5 miles of you is something you try to avoid and the only thing I have aung as an adult were songs I sang to my son as a small lad (and he seemed to go to sleep really quickly and now I realize it was his only way to stop this horrible torture.) I don't know whether that was a clever strategy on my part or not, but it worked in any case.

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Profile picture for jackcol315 @jackcol315

My wife has begun to have swallowing difficulties.just looking into speech therapy options.
Does the process help measurably, maintain function; improve function or slow progress. ?
Is it necesssry to find a Dora h therapist that specializes in swallowing difficulty due to Parkinson’s symptoms?

Jump to this post

Hello @jackcol315

Speech therapists can usually help people with both swallowing and speech problems. Has your wife met with a speech therapist yet?

As background, what other PD symptoms are bothersome for your wife?

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She has only minor movement issues.
In recent weeks has become more prone to loosing balance. Has fallen .dementia like symptoms: very fogetful. Almost no ability to make a choice/decision.

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"99 bottles" would be a very long song to practice your singing, anf of course, very annoying to everyone else!

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Im being referred to a speech therapist by my ENT (swallowing expert). We're gonna try that next.

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Profile picture for barryl @barryl

"99 bottles" would be a very long song to practice your singing, anf of course, very annoying to everyone else!

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@barryl I suppose the good news is that my jusband is half deaf and most of the time at home he doesn't wear his hearing aides. our dear cat passed away a few weeks ago so it won't be botheri g him either. (although he may have decided that as long as I was singing that song, he would just punch out - he was 16 years old, (about 80 for people age,) And we live in a 100-year-old house that has been divided into 2 flats. oour neighbors are also old and deaf and they are retired and spend lots of time going hither and thither for weks at a time, so it doesn't trouble them much. In fact, our entire little piece of Heaven in Berlin is mostly old folks who have hearing issues and live in these really old buildings with 14 inch walls, so the chances of somebody being bothered -is -pretty slim, and even if they are, by the time they've looked up the number to call for such nuisances, they will only remember that they were mildy annoyed at something, but can't remeber what it was. (By the way, we actually have 'Quiet hours" in Germany. The bins where you can drop off glass ottles, jsrs etv. have a signe that says you can't put bottles in them betweeen 12 noon and 3 pm. (nap time for kids and old folks. You ccan't mow your grass on a Sunday and you can' be loud after 10 pm. Of course, the smart folks just invite their neighbotss to their parties so they aren't likely to complain . They likely will foget they they were re botherd within 3o minutes after it bothered them, And I 've got my act of "I'm just a poor old half deaf octogenarian with Parkinson's and Mild Cognitive Insufficiency so I'm really sorry if I upset anyone." down pretty good now. I may take it to Broadway, or the Johnny Carson show, but he quit doing it after he died.. But surely there's some other show with those attractive young lads like Trevor Noah (or is it Noalh Treavor?)_I could even get my speech therapist to intervene if necessary. But most of our friends and neighbors are in the same boat as we are in figure that we've got so much more we wanna do and we're running out of time and energy to do it, that wasting it on on complaining about the smal lstuff doesn't seem to be a good invesstment of our time. And every day 1 live an hour is becoming a bigger percentage of the time I have left on the planeet and I'm disinclin,ed to use it on the little stuff. Maybe I shoul survey the neighbors and see if they have any sons that accomplish the same thing (the younger folks who have small children migh sugest "The Wheelss on the bus fo round and round". Maybe I should googlel the lyrics and see if it's any easiser on others than than 99 bottles - Or I could alternate the songs. but I'm not sure whether alternating 2 bad choices is the equivalent of 1 good choice. But I never have understoood that busines where 2 negative numbers multiplied uield a a e posistive number. - sounds like a flim-flam to me.so what was it I was talking about?

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Profile picture for jatonlouise @jatonlouise

@barryl I suppose the good news is that my jusband is half deaf and most of the time at home he doesn't wear his hearing aides. our dear cat passed away a few weeks ago so it won't be botheri g him either. (although he may have decided that as long as I was singing that song, he would just punch out - he was 16 years old, (about 80 for people age,) And we live in a 100-year-old house that has been divided into 2 flats. oour neighbors are also old and deaf and they are retired and spend lots of time going hither and thither for weks at a time, so it doesn't trouble them much. In fact, our entire little piece of Heaven in Berlin is mostly old folks who have hearing issues and live in these really old buildings with 14 inch walls, so the chances of somebody being bothered -is -pretty slim, and even if they are, by the time they've looked up the number to call for such nuisances, they will only remember that they were mildy annoyed at something, but can't remeber what it was. (By the way, we actually have 'Quiet hours" in Germany. The bins where you can drop off glass ottles, jsrs etv. have a signe that says you can't put bottles in them betweeen 12 noon and 3 pm. (nap time for kids and old folks. You ccan't mow your grass on a Sunday and you can' be loud after 10 pm. Of course, the smart folks just invite their neighbotss to their parties so they aren't likely to complain . They likely will foget they they were re botherd within 3o minutes after it bothered them, And I 've got my act of "I'm just a poor old half deaf octogenarian with Parkinson's and Mild Cognitive Insufficiency so I'm really sorry if I upset anyone." down pretty good now. I may take it to Broadway, or the Johnny Carson show, but he quit doing it after he died.. But surely there's some other show with those attractive young lads like Trevor Noah (or is it Noalh Treavor?)_I could even get my speech therapist to intervene if necessary. But most of our friends and neighbors are in the same boat as we are in figure that we've got so much more we wanna do and we're running out of time and energy to do it, that wasting it on on complaining about the smal lstuff doesn't seem to be a good invesstment of our time. And every day 1 live an hour is becoming a bigger percentage of the time I have left on the planeet and I'm disinclin,ed to use it on the little stuff. Maybe I shoul survey the neighbors and see if they have any sons that accomplish the same thing (the younger folks who have small children migh sugest "The Wheelss on the bus fo round and round". Maybe I should googlel the lyrics and see if it's any easiser on others than than 99 bottles - Or I could alternate the songs. but I'm not sure whether alternating 2 bad choices is the equivalent of 1 good choice. But I never have understoood that busines where 2 negative numbers multiplied uield a a e posistive number. - sounds like a flim-flam to me.so what was it I was talking about?

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@jatonlouise- The 'minor' inconveniences seem to add up to to 'MAJOR issues for me. I try to not complain about the long 'on hold' on the phone with horrible music or continually reminding me that 'they'll be right with me, or advertising stuff I have no invest in. Or the worst.... hanging up on me after about 30 min on hold, forcing me to start over.
These just keep happening way too frequently. THEN THEY ARE MAJOR ISSUES for me.

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