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pammettee
@pammettee

Posts: 4
Joined: Apr 24, 2018

Parkinson's Plus MSA

Posted by @pammettee, Thu, Apr 26 10:24pm

Is anyone one discussing this diagnosis ?

REPLY

Hello @pammettee

Welcome to Mayo Connect. My name is Teresa and I am a volunteer mentor on Connect. I appreciate you bringing up this topic.

I have not seen anyone talk about this on a post, however, I did look up some information on this PD related disorder on the WebMD website. Here is the link, https://www.webmd.com/parkinsons-disease/tc/parkinson-plus-syndromes-topic-overview#1. As WebMD tends to give user-friendly explanations this might help explain to our Members what Parkinson's Plus MSA is all about.

If you are comfortable sharing more, could you tell us if this was a recent diagnosis for yourself or for a family member/friend? If so, please share with us how this diagnosis came about and what symptoms were experienced.

At Mayo Connect we all learn from each other. I look forward to hearing from you again.

Teresa

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What is MSA???

@lsdempsey

What is MSA???

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Hello @lsdemspey

Here is the link I provided in the above post that will explain it a little, https://www.webmd.com/parkinsons-disease/tc/parkinson-plus-syndromes-topic-overview#1

Teresa

Looks like a Parkinson's-plus syndrome with multiple system atrophy. Thanks for the link you've shared, @hopeful33250 Teresa. Hoping some of our other members you've tagged might have some experience or knowledge of this particular syndrome.

I'd be interested to hear more about what you or someone you know might be experiencing with this, @pammettee.

Hello @pammettee

I was noticing that other Members have not joined this conversation which must mean that we don't have anyone in our group who has this diagnosis.

I have been thinking about you, though and wondering how you are doing.

Please feel free to let us know if you have acquired any information regarding Parkinson's Plus MSA from a doctor other professional.

I look forward to hearing from you again.

Teresa

Hello @pammettee

I was wondering if you have received any more information about Parkinson's Plus MSA. If so, I would like to hear from you.

I hope you are doing well. If you are comfortable doing so, can you share more about yourself or this disorder?

Teresa

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