Sleep Apnea and CPAP machines

Posted by vickiw @vickiw, Sep 24, 2016

I’m confused on what to do on CPAP. I hate it and am trying to find a dentist that will take my insurance for a dental device. What would happen if I stop using my CPAP while I’m waiting for one?

Liked by jessl

@mollyb1968

I have used a CPAP for over three years and I love it. It may take some getting used to but it helps me breathe so much better. I think it is my best friend. I know it will get me breathing again when I stop in the night. I think you need to give it a chance. It is a life support to me. Hope you keep trying until you find something you feel more comfortable with.

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yes it is to try an correct my sleep apnea so I don’t have to use the machine an get my numbers way down

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@dawn_giacabazi

There is a new mask that works great and you do not have to worry about your mouth opening. It is fits over your mouth but under your nose. I love it. Best mask I’ve ever used.

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Hi @ dawn, Where did you get that type of mask? That sounds great! How long have you had it. I could be interested in that one! I just had my 3rd in hospital test. Now I will have a mask over the nose only, but I am a mouth breather and that showed up on the video that the doctor will receive. I don’t know what he will do. If only I could “keep my mouth shut”! Hosta

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@mollyb1968

I have used a CPAP for over three years and I love it. It may take some getting used to but it helps me breathe so much better. I think it is my best friend. I know it will get me breathing again when I stop in the night. I think you need to give it a chance. It is a life support to me. Hope you keep trying until you find something you feel more comfortable with.

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It is good that your Dr. said that to you my Dr. said I could have a heart attack or a stroke so I use it all the time. Hope the surgery works for you, best regards. Flor

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@dawn_giacabazi

There is a new mask that works great and you do not have to worry about your mouth opening. It is fits over your mouth but under your nose. I love it. Best mask I’ve ever used.

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I open my mouth some I use the tapeing method an nasal pillows I’m clatraphobic so I cant wear any type of mask an chin srraps hurt me an breaks ny skin out

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@mollyb1968

I have used a CPAP for over three years and I love it. It may take some getting used to but it helps me breathe so much better. I think it is my best friend. I know it will get me breathing again when I stop in the night. I think you need to give it a chance. It is a life support to me. Hope you keep trying until you find something you feel more comfortable with.

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@patreats5674, I have used cpap, then apap with heated humidifier and heated tube for 15 or more years. The only problem I have had is finding a good full face mask that worked for me. I’ve tried many and with many problems. I finally bought Fisher & Paykel Simplus full face cpap (and apap) mask with headgear. Once I got it fitted right, it is perfect for me and I’ve bought some more in case they stop making. It doesn’t leak, is light weight, fits better on the pillow (side sleeper) and gets a very high rating on the charts, is even cheaper than most ff masks. It runs a little larger and since my face is between a small and medium, a small fits me perfectly. If your provider can’t get for you, you can send doctors’ prescription to CPap.com and they will mail mask to you with insurance papers you’ll have to send to your insurance for reimbursement. It’s worth this extra effort to get a better mask. I always used the Pad A Cheek Pads to soften the straps. I’ve also for years used the RemZzs padded ff cpap mask liners to soften the mask on the face so it won’t hurt or leave marks on my face. These you can get from cpap.com if your provider can’t get them for you. I have very delicate skin and find these two products wonderful. Hope this helps.

Liked by Mattiemae

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@dawn_giacabazi

There is a new mask that works great and you do not have to worry about your mouth opening. It is fits over your mouth but under your nose. I love it. Best mask I’ve ever used.

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You can get a chin strap at your supplier where you get your face mask. A chin strap goes over your head and under your chin to keep your mouth closed. It does not work for me though as I am overweight and have a big double chin that causes the chin strap to just slide off. If you do not have a double chin this may very well work for you.

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@dawn_giacabazi

There is a new mask that works great and you do not have to worry about your mouth opening. It is fits over your mouth but under your nose. I love it. Best mask I’ve ever used.

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My hospital based DME provider but most Durable Medical Equipment providers have The Phillip products. They are the most used in sleep apnea patients.

I have had mine about a year now. I LOVE mine. I have tried about 5 others with much discomfort and leaks. Now I have an occasional 1 % leakage whet before I was at 50% nightly.

Mouth breathers will definitely love the comfort!!!
Dawn

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I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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Do you have a CPAP and not a Bi-PAP? That is a machine that automatically adjusts to the pressure you need. Have you been to your doctor that treats you for your sleep apnea to have the machine read to see how it is treating your sleep apnea? That should tell your doctor if the sleep apnea is really being treated. If so, then it has to be something else, which you need to talk to your doctor about. Be emphatic as this is a real problem for you. Have you been on your machine faithfully for a long time? It can take up to 6 months or more to catch up on your sleep after starting on a CPAP. I wish you the best in coming up with a solution for your problem.

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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don’t feel badim unable to use mine cause I cant handle anything on my face an the air blowing down my throat.im working with a ent for surgery for it

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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I had a cpap then switched docs an he put me on a apap my problem is mask I cant handle anything on my face an the air blowing down my throat I have not used mine in almost a month an half I sleep propted up an sleep real good an not tired during the day unless I had hard day at work im working with a ent rite now t see what surgery would help me

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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@mzzmimm

I’ve been using a CPAP faithfully for a long time – more than 15 years. My life was radically improved when I started using it. I don’t suppose the sleep doctor mentioned narcolepsy? I am tired a lot of the time, but not because of sleep issues. Several of my meds cause drowsiness, and drowsiness is a side effect of lots of illnesses. I sat down to write this note, and more than an hour later, I dragged myself awake.

Jim

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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Thank you for your reply. I have a CPAP. I haven’t seen a sleep apnea doctor for a year. I think I’m going to ask for a new doctor. I’ve used my machine faithfully for a couple months now. Previously, I’ve used it for months with no result.

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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I am changing doctors.

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@mzzmimm

I have had severe obstructive sleep apnea for over 20 years. It’s gotten especially worse in the last 3 or 4 years. I can easily fall asleep at a red light while driving. A couple weeks ago I had a fender bender because of it and many near misses. A year ago I was relieved of my duties at work because I was always tired and forgetful. I was passed up for a promotion. I’ve tried using many different CPAPs, masks, pressures, etc. but nothing works. Even when I use it faithfully, I’m still excessively tired during the day. The doctors I’ve seen have all said to keep using it, it’s the best treatment for this condition. I’m a 60-year-old female, 5′ and 150 pounds (I had bariatric surgery 6 months and lost 60 lbs). I was hoping the weight loss would help, but sadly, it has not. I’m desperate, I’d like to know if anyone else has this problem?

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My doctor has never mentioned Narcolepsy.  I used to take quite a bit of meds, but since I lost the weight, am on only a few.  Thanks for your response.

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