Several Issues: Early onset Alzheimer's, neuropathy & RLS

Posted by Ginny @ginny1952, Aug 9, 2016

My spelling has gone out the window...I have complex partial seizure's, early onset Alzheimer's (just diagnosed) and preferial neurophy (sorry tried 10 times to get the spelling) and RLS. I am sick and tired of all the meds. they have me on. Its awful. any ideas where I can start to help me. Struck by lightning over 30 years ago and very thing is showing up in the last 5 years.

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Good morning @ginny1952.
Sounds like you have your hands full. I am not a physician but I can certainly relate to wanting to get off some medications. I to have complex partial seizures amongst other complications. It took many years to find the right medication. Here is some information that you and your physicians might find useful in weeding through medications that you might be able to eliminate or give you peace of mind that you are on all the right things.
http://mayoresearch.mayo.edu/center-for-individualized-medicine/pgx-profile-service.asp

Thanks
Dawn

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Not that I am a believer in acupuncture, but just wondering if you have ever tried it!!

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Hi @ginny1952,
I'd like to introduce you to a new Connect member who also has early onset Alzheimers. Please meet @nocaregiverneedednohelpavailable.

@nocaregiverneedednohelpavailable when were you diagnosed with early onset? Ginny was just recently diagnosed.

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You are not alone. I have a seizure disorder and neuropathic pain. A support group really has helped me. I hope you are able to find one. Good luck to you

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Just received additional diagnosis of Alzheimer's so is there a group you recommend, as I live in the country and driving is not allowed for me.

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Ginny, Here is a listing of local support groups from the Alzheimer's Association http://www.alz.org/apps/findusall.asp.
Additionally, I hope that Connect can be your online support group in addition to a local in-person support group or should there not be a support group in your area. You're not alone. We're listening.

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The diagnosis of Alzheimer's is scary. I can find lots of info or contacts for caretakers but what about us I would like to I there contact group in this chat if there is please I want to be a part of it. Please contact me.

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@ginny1952

The diagnosis of Alzheimer's is scary. I can find lots of info or contacts for caretakers but what about us I would like to I there contact group in this chat if there is please I want to be a part of it. Please contact me.

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Hello @ginny1952. Nice to meet you, at least electronically!

I am sorry to read of your medical challenges and, yes, a diagnosis of Alzheimer's disease must, indeed, be scary for you. While I do not have the disease, my mother-in-law had dementia for many years and my wife and I participated in her care. Also while I am not a medical professional at all, I did spend years as a fundraiser for the national Alzheimer's Association. Do not lose hope! There are new strides made in Alzheimer's disease research almost every day now!

There are several folks here who can help with a bit of advice, support, and perhaps more ideas for you. One of the best aspects of Connect is you can simply ask anything, come to talk, or simply read and listen in!

I find that sometimes just typing out my fears can help me cope with them better.

I wish you strength, courage, and peace.

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In reply to @ginny1952 "Thank you!" + (show)
@ginny1952

Thank you!

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I too am dealing with this with my Mom. I pray for discoveries to help her! <br><br>

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