NPH Sophysa valve near Kansas City

Hi friends! My grandma is searching for a neurologist (neurosurgeon?) Anywhere near Kansas City Who knows how to manage a Sophysa valve shunt. She had it placed in Arizona, but recently moved to Kansas City, and none of the Physicians know how to manage it.

A bit scary to walk into a neurologist's office and have the head of the department say that they have no idea how to help you!