Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

@peach414144

Will RA inflame and swell your feet and legs so as to keep you in a wheelchair for two months until it slowly goes away and you can walk again? And as I also have Psoriatic arthritis who knows which one is doing this or is it the both of them together? Going through thus again off and on for three years. But the worst is: I now have carpel, tunnel trigger finger and the arthritis in my right hand so that without the use of this hand I go around in circles in the wheelchair. I am 83 years old and the doctor refuses to give a prescription for an electric wheelchair. The hand surgeons will not operate because of the Corona virus and my age. As the old song goes "Stuck in the middle again!" I need an Ombudsman to represent me but they only want me to go into assisted living. I want my freedom and to continue to live in my home that I have paid for these many years. I clean my house myself and take care of my precious dog and cat very well. Shame on them if they think this is the easy way. "GOING AROUND IN CIRCLES" Any ideas anyone? Please. Peach

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i have had ulner nerve trans position surgery 4 years ago. because the ulner nerve was being affected by spurs inmy right elbow. when the surgery was done the surgeon said i will have permanent numbness in the rightside of my hand and he was right. i wear a mueller brace for stabilizing my right hand for driving , cooking, etc. these can be bought at walmart. … relative to your need for an electric wheelchair, try your local state representative for help….. also i have been fighting RA for 31 years. i have had 20 operating procedures in 20 years. i am 68 yeas old. pain is a terrible thing to put up with….. also contact your local news station and tell them your problems. a little press may go a long way perhaps in some manufacture to donate a wheelchair to you…. god bless and do your best… kozlo52

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I have RA and OA since I was a kid and now I have it in every part of my body. I can hardly get around. I don’t go out of the house because it’s to painful. I can’t do hardly anything for myself. Mr arthritis takes a jump every few months and that means it gets worse. I am highly resistant to all medications so they don’t work. My doctor has tried dozens.I am now trying prednisone with little effect if any.

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@roeglo

I have RA and OA since I was a kid and now I have it in every part of my body. I can hardly get around. I don’t go out of the house because it’s to painful. I can’t do hardly anything for myself. Mr arthritis takes a jump every few months and that means it gets worse. I am highly resistant to all medications so they don’t work. My doctor has tried dozens.I am now trying prednisone with little effect if any.

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Hello @roeglo, Welcome to Connect. It sounds like you have struggled with RA for a long time with not much success. I've been on prednisone twice for polymyalgia rheumatica occurrences and it usually helps right away. Here's some information from the Arthritis Foundation that may be helpful… "Biologics are a special type of disease-modifying antirheumatic drug (DMARD). In most cases, they are prescribed when conventional DMARDs have not worked. These powerful drugs work very well for many people with rheumatoid arthritis, psoriatic arthritis, and other forms of inflammatory arthritis." — https://www.arthritis.org/drug-guide/biologics/biologics

Has your doctor tried any of the biologic drug treatments?

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@johnbishop

Hello @roeglo, Welcome to Connect. It sounds like you have struggled with RA for a long time with not much success. I've been on prednisone twice for polymyalgia rheumatica occurrences and it usually helps right away. Here's some information from the Arthritis Foundation that may be helpful… "Biologics are a special type of disease-modifying antirheumatic drug (DMARD). In most cases, they are prescribed when conventional DMARDs have not worked. These powerful drugs work very well for many people with rheumatoid arthritis, psoriatic arthritis, and other forms of inflammatory arthritis." — https://www.arthritis.org/drug-guide/biologics/biologics

Has your doctor tried any of the biologic drug treatments?

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Hi John, I have been on most of the biologic s and they work for a while and then stop. Currently on Xeljanz which is doing fine for now but seems to be getting less effective over time. I still struggle for 2 to 3 hour's every morning and it returns in the evening. I plan to stay with it until it stops working and go from there. Thanks for asking!

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@roeglo

I have RA and OA since I was a kid and now I have it in every part of my body. I can hardly get around. I don’t go out of the house because it’s to painful. I can’t do hardly anything for myself. Mr arthritis takes a jump every few months and that means it gets worse. I am highly resistant to all medications so they don’t work. My doctor has tried dozens.I am now trying prednisone with little effect if any.

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Have you tried any of the IL 6 inhibitors, i.e., Kineret?

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@roeglo

I have RA and OA since I was a kid and now I have it in every part of my body. I can hardly get around. I don’t go out of the house because it’s to painful. I can’t do hardly anything for myself. Mr arthritis takes a jump every few months and that means it gets worse. I am highly resistant to all medications so they don’t work. My doctor has tried dozens.I am now trying prednisone with little effect if any.

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Juvenile onset RA is the most damaging, with existing meds becoming less and less effective as you age. Perhaps one of the new ones coming out will help…have you any skin lesions that point to Psoriatic vs Rheumatoid arthritis?

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@boomerexpert

Juvenile onset RA is the most damaging, with existing meds becoming less and less effective as you age. Perhaps one of the new ones coming out will help…have you any skin lesions that point to Psoriatic vs Rheumatoid arthritis?

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No leasions. I already tried Otesla when you were supposed to have lessons. They would call and ask how they were doing.
My doctor was trying anything he could think of.
My resistance to meds has always been.

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@fighter

Have you tried any of the IL 6 inhibitors, i.e., Kineret?

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No, unless they come by another name. What. Are they?

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@fighter

Have you tried any of the IL 6 inhibitors, i.e., Kineret?

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Yes I have. I have bone on bone in some places like my knee. I tried to get an injection in my knee to put some cartilage like substance in but there was absolutely no spot to inject it into.

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I have tried everything on the market. I am very resistant to meds . So now I am on prednisone

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@roeglo

I have tried everything on the market. I am very resistant to meds . So now I am on prednisone

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Has this medicine done damage to your body? I am suffering with rheumatoid and psoriatic arthritis (plus other medical problems).

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@peach414144

Has this medicine done damage to your body? I am suffering with rheumatoid and psoriatic arthritis (plus other medical problems).

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No, I don’t get relief from medication and I don’t get side effects. In general they do nothing.

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