Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

Hi all, just trying to figure out what my problem is, I was diagnosed with Osteoporosis years ago around 2006 by a Rheumatologist, I also have degenerative Scoliosis. Now, my balance is off, my left hip gives me problems and I'm plagued with fatigue. I've had a workup at Mayo Clinic by a neurologist, Nothing shows. They told me "no medical reason", for my symptoms, so I came home. They also said the degenerative scoliosis wasn't the problem, so is it the Osteoporosis? I understand you can't legally tell me what is going on, but maybe some of you have had some of my symptoms.

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@rivergirl8243

Hi all, just trying to figure out what my problem is, I was diagnosed with Osteoporosis years ago around 2006 by a Rheumatologist, I also have degenerative Scoliosis. Now, my balance is off, my left hip gives me problems and I'm plagued with fatigue. I've had a workup at Mayo Clinic by a neurologist, Nothing shows. They told me "no medical reason", for my symptoms, so I came home. They also said the degenerative scoliosis wasn't the problem, so is it the Osteoporosis? I understand you can't legally tell me what is going on, but maybe some of you have had some of my symptoms.

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@rivergirl8243 Hi I have Osteoporosis , fibromyalgia ,2back fractures the one in my lower back gives me a lot of pain ,fatigue can't walk a lot The only way you can tell how bad your Osteoporosis is by a Dexa scan When did you have your last one? My L hip hip hurt me a lot of trouble but my Rheumatologist ordered a Reclast infusion 15 minutes and I was done my hip doesn't hurt now the infusion is only once a year

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Sounds like me … I live in southern Arizona. I don't have a rheumatologist, I think that will be my next step. Mayo did a bone density on me in June 2020 thanks for the feedback.

Liked by lioness

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@rivergirl8243

Sounds like me … I live in southern Arizona. I don't have a rheumatologist, I think that will be my next step. Mayo did a bone density on me in June 2020 thanks for the feedback.

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@rivergirl8243 Glad I could help I fought for awhile before I told her I would get it but now am glad I did I'm going n SoCal 106 today

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thanks, it is over 100 here

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@lioness

@rivergirl8243 Glad I could help I fought for awhile before I told her I would get it but now am glad I did I'm going n SoCal 106 today

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my daughter lives in Southern California

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@rivergirl8243

my daughter lives in Southern California

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@rivergirl8243 What part I'm so n Long Beach

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@lioness

@rivergirl8243 What part I'm so n Long Beach

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Laguna Hills

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@lioness

@rivergirl8243 What part I'm so n Long Beach

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107 today

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In reply to @rivergirl8243 "107 today" + (show)
@rivergirl8243

@rivergirl8243 HOT HOT HOT same here 106 indoors today

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@lioness

@rivergirl8243 Hi I have Osteoporosis , fibromyalgia ,2back fractures the one in my lower back gives me a lot of pain ,fatigue can't walk a lot The only way you can tell how bad your Osteoporosis is by a Dexa scan When did you have your last one? My L hip hip hurt me a lot of trouble but my Rheumatologist ordered a Reclast infusion 15 minutes and I was done my hip doesn't hurt now the infusion is only once a year

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Please, would anybody know if osteitis pubis would be associated with either Rheumatoid or Psoriatuc arthritis? Very, very painful.

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Went online to search, can't see that it's associated with arthritis. Can happen with childbirth.

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@lioness

@rivergirl8243 HOT HOT HOT same here 106 indoors today

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UGH UGH UGH!!! I would be whining nonstop!

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Recently diagnosed with PMR that was then changed to RA. Feeling nervous about this diagnosis and wonder what I'm looking at long term. I have been reading a lot of your stories and I can relate with some of the symptoms however I'm not having fatigue or really any side effects from my medication regime. I do feel that as my prednisone is tapered I am getting some of the pain back. Every day is different. Will I be on Methotrexate for the rest of my life? and then Prednisone for flares? Will I eventually have the hand disfiguring? Is there no prevention for that? Fears galore over here! I did purchase the RA Warriors book RA unmasked…it was helpful for things to look for going forward but it really scared me. I was surprised at how much we have to advocate for ourselves. I imagined the things she talked about would be common knowledge for providers to watch for but so far I have been told to take these medications and have blood work done. No mention of CAD, Lung disease etc. Anyone else with similar stories?
Julie

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@julieschiwal1972

Recently diagnosed with PMR that was then changed to RA. Feeling nervous about this diagnosis and wonder what I'm looking at long term. I have been reading a lot of your stories and I can relate with some of the symptoms however I'm not having fatigue or really any side effects from my medication regime. I do feel that as my prednisone is tapered I am getting some of the pain back. Every day is different. Will I be on Methotrexate for the rest of my life? and then Prednisone for flares? Will I eventually have the hand disfiguring? Is there no prevention for that? Fears galore over here! I did purchase the RA Warriors book RA unmasked…it was helpful for things to look for going forward but it really scared me. I was surprised at how much we have to advocate for ourselves. I imagined the things she talked about would be common knowledge for providers to watch for but so far I have been told to take these medications and have blood work done. No mention of CAD, Lung disease etc. Anyone else with similar stories?
Julie

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First, how old are you? Second, do you feel your inflammation is under control? Those answers will help me help you. If you' consider a biologic at any point (that's drugs like Humira and Xeljanz) don't settle for just the TB test to determine safety…also get a lung scan to rule out MAC (a non-tubercular lung infection that, like TB, worsens quickly with a suppressed immune system). Most Rheumies are completely I'll informed about it.

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