Late Stage Primary Sjogren's Syndrome
I have advanced autoimmune disease , particularly Sjogren’s syndrome (about 30 years) Most doctors have never seen anyone like me, so most of the ones I am sent to, study me mostly. My Sjogrens’ has advanced to affect every muscle, connective tissue, lungs, heart and more. I am in the middle a new look at things.About 2 months ago I began to have unbearable pain. I cannot use my arms without extreme pain;deep in muscle tissue. my right is worse than my left. The pain is like nothing that I have had before. The doc says my muscles have hardened and become stiff. I already knew that, but this new pain is incredibly hard to take. .It affects the arms and shoulders, the back, thighs and calves.I can walk but it is difficult. I have developed ventricular hypertrophy; (the left ventricular wall thickens and then is unable to function normally) I have also developed a new case of interstitial lung disease, skin problems, rashes that don't go away. I also have Type 2 Diabetes. These are very serious problems. I have in the past couple of months read the doctor's update on Sjogren’s. I did not expect this sudden change. I am disabled and the pain is almost unbearable. The docs are looking really closely at the addition to my problems of MS.