Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

@clpd13

I have had great luck with a combo of humira and methotrexate. I’ve been in remission for a couple of years now so hang in there! Hopefully you’ll find the right drugs for you. I was excited to see the study you shared. I’m always looking for new research but must have missed that one. I’d also love to know if anyone is being treated. Thanks!

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I see you have RA.I am newly diagnosed.I live in Canada and the drug plan won't allow going to biologics right off the bat.How did you manage to do it/

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Hello @clpd13, Welcome to Mayo Clinic Connect. Thank you for sharing your experience. It sounds like you are doing great with your RA since it has been in remission a couple of years. Have you made any lifestyle or diet related changes that you feel have helped keep the RA in remission?

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I stay active and generally eat healthy but that’s really not any different than before the humira.

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@kanaazpereira

Hello @kozlo52 @blindeyepug @barneythe2nd @nanke99 @vickiekay @tbeckys @iman_im @lisa_sj99 @1825 @callyrae @jewel8888 @boomerexpert,

I’d like to invite you to this new discussion about rheumatoid arthritis, where it will be easier for you to meet other Connect members living with, and talking about RA. Pull up a chair and tell us a bit about yourself.

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I am 21 years old about to turn 22. I need other advice about ra. I was diagnosed last year and I also have tiezte syndrome.

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@anonoymous

I am 21 years old about to turn 22. I need other advice about ra. I was diagnosed last year and I also have tiezte syndrome.

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Hello – Welcome to Mayo Connect. We are a community of people living with a variety of life's challenges who help and support each other on our journeys. We are not medical professionals, and cannot provide medical advice, but we can talk about what steps we have taken to manage our health.

Can you tell us a little about your journey with RA so far? Symptoms, who diagnosed, specific type, etc? Then those with similar symptoms or diagnosis can jump in and chat. Also, here is some info about Tietze Syndrome, a specific form of costochondritis, a painful but not progressive or life-threatening condition.

Some things you will learn here is to learn as much as you can about your condition, to become your own advocate when seeking treatment, and above all, do everything you can to stay healthy and strong.
Sue

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Hi! I was recently diagnosed about 2 years ago in Oklahoma, but moved back to Alabama. I've been having a hard time finding a good doctor here. I got COVID last September and since then my RA has been unbearable. They had put me on Rinvoq because I had allergic reactions to the Humera I was taking. (both of which I take with methotrexate once a week as well) Before COVID the Rinvoq seemed to be doing okay. Since then I have been in nothing but pain. The doctors here are not doing anything to try to stop the pain to the point that I am now suicidal since I do not see an end in sight for the pain. My psychiatrist is hesitant to put me in a hospital because of COVID and I am at such a higher risk of getting it again. I am now waiting to hear from Mayo to set up my first appointment to see if they can figure out the cause of the increase in pain and hopefully try to make it better.

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@tigger1968

Hi! I was recently diagnosed about 2 years ago in Oklahoma, but moved back to Alabama. I've been having a hard time finding a good doctor here. I got COVID last September and since then my RA has been unbearable. They had put me on Rinvoq because I had allergic reactions to the Humera I was taking. (both of which I take with methotrexate once a week as well) Before COVID the Rinvoq seemed to be doing okay. Since then I have been in nothing but pain. The doctors here are not doing anything to try to stop the pain to the point that I am now suicidal since I do not see an end in sight for the pain. My psychiatrist is hesitant to put me in a hospital because of COVID and I am at such a higher risk of getting it again. I am now waiting to hear from Mayo to set up my first appointment to see if they can figure out the cause of the increase in pain and hopefully try to make it better.

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@tigger1968 Good morning and welcome to MayoClinicConnect. We all volunteer on Connect to get and give information so you’ve come to the right place. I’m so sorry to hear about your difficulties with increased pain following Covid. And finding a good doctor is so important in pain management. I included a link to the Arthritis Foundation in Birmingham below. You might want to contact them and ask for help and advice. Tell them that you need to find a doctor and a pain management specialist near you. Can you do that?
I really hope you feel better soon. Please stay in touch and let us know what you learn. Becky
https://www.nchpad.org/Directories/Organizations/2192/The~Arthritis~Foundation

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@becsbuddy

@tigger1968 Good morning and welcome to MayoClinicConnect. We all volunteer on Connect to get and give information so you’ve come to the right place. I’m so sorry to hear about your difficulties with increased pain following Covid. And finding a good doctor is so important in pain management. I included a link to the Arthritis Foundation in Birmingham below. You might want to contact them and ask for help and advice. Tell them that you need to find a doctor and a pain management specialist near you. Can you do that?
I really hope you feel better soon. Please stay in touch and let us know what you learn. Becky
https://www.nchpad.org/Directories/Organizations/2192/The~Arthritis~Foundation

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@tigger1968 hang in there…you're fortunate that you can get to Mayo…I have much pain but without that option. You will get the help you need there. Glad you're getting MH support.

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I’m wondering if anyone else has experienced cognitive impairment due to RA. I know it is rare, but my Neurologist is convinced it’s the cause of my memory loss, etc. I’m heading to Mayo next month, so hope to get some answers or at least a plan.

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@nana75165

I’m wondering if anyone else has experienced cognitive impairment due to RA. I know it is rare, but my Neurologist is convinced it’s the cause of my memory loss, etc. I’m heading to Mayo next month, so hope to get some answers or at least a plan.

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@nana75165 I'll believe when Mayo says it's so….

Liked by nana75165

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@nana75165

I’m wondering if anyone else has experienced cognitive impairment due to RA. I know it is rare, but my Neurologist is convinced it’s the cause of my memory loss, etc. I’m heading to Mayo next month, so hope to get some answers or at least a plan.

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My first inclination was to reply – well, age plus pain plus fatigue (poor sleep) plus medications affect cognition in just about anyone. Then I did some reading, and this article seems to summarize what the few studies out there concluded. Pain, depression (common with pain), cardio-vascular disease (common with inflammation), medication and lack of exercise all contribute to "brain fog" or apparent cognition. But RA patients tested alongside their age-mates are about the same… https://www.arthritis.org/diseases/more-about/ra-effect-on-the-brain
Here is one thing I do know – steroids are a big problem for me – when I am on them for my breathing, my mind is worthless for as long as a month or more afterward – my asthmatic daughter says the same. And when my Mom was living, I knew within 48 hours if a new doc was trying a steroid med on her again. They are very common in treating RA flares too, so if you have been using them it could be part of the issue.
Sue

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@boomerexpert

@nana75165 I'll believe when Mayo says it's so….

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My current train of thought…..hence the reason we are moving mountains to travel to Rochester in March!

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Hi, I have RA and have had it for 10 years. Been doing tons of research and going to medical lectures. There is a direct correlation between gut and mouth bacteria and autoimmune diseases .

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I have had RA for 12 years diagnosed but longer undiagnosed. I agree on the gut, mouth bacteria and steroid views. It is frustrating to be brain fogged in flares. My hope is that stem cell research will find a way to control our issues in the future. I'm down to one or two biologics left having tried so many. Now that I am paying out thousands a month for them along with my thyroid,asthma and dry eye meds I am forced to do half dose every other day to make ends meet. Something in this picture is wrong. How can drug companies be allowed to charge so much to people on medicare with supplemental drug and medical insurances ?Having who worked all their lives , these patients now are simply making a few wealthy company owners wealthier on the back of our disease. Its mind boggling.ok I'm done ranting. I apologize. Once again I agree with the gut,mouth bacteria connection and the steroid brain fog. Stay well.

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@doloridicorpo65

I have had RA for 12 years diagnosed but longer undiagnosed. I agree on the gut, mouth bacteria and steroid views. It is frustrating to be brain fogged in flares. My hope is that stem cell research will find a way to control our issues in the future. I'm down to one or two biologics left having tried so many. Now that I am paying out thousands a month for them along with my thyroid,asthma and dry eye meds I am forced to do half dose every other day to make ends meet. Something in this picture is wrong. How can drug companies be allowed to charge so much to people on medicare with supplemental drug and medical insurances ?Having who worked all their lives , these patients now are simply making a few wealthy company owners wealthier on the back of our disease. Its mind boggling.ok I'm done ranting. I apologize. Once again I agree with the gut,mouth bacteria connection and the steroid brain fog. Stay well.

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@doloridicorpo65 Welcome to Mayo Clinic Connect, a place to give and get support.

It looks like you've been a member for awhile but this is your first post.

It sounds like you are in a tough place. I agree, you should be able to have the medications you need. Have you ever considered contacting the company? I've heard of that working on occasion.

May I ask if this is the main discussion that you follow or do you follow others. I ask because I'm wondering if you'd like help connecting with other members and/or discussions?

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