Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Let’s talk about living with rheumatoid arthritis.
As moderator of the Autoimmune Diseases group, I noticed that several people were talking about RA, but those conversations were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Let’s grab a cup of tea, or beverage of choice, and let’s chat. Why not start by introducing yourself?

@kanaazpereira

Hello @kozlo52 @blindeyepug @barneythe2nd @nanke99 @vickiekay @tbeckys @iman_im @lisa_sj99 @1825 @callyrae @jewel8888 @boomerexpert,

I’d like to invite you to this new discussion about rheumatoid arthritis, where it will be easier for you to meet other Connect members living with, and talking about RA. Pull up a chair and tell us a bit about yourself.

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I'd be happy to connect with other people who have RA.

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@ellens

I'd be happy to connect with other people who have RA.

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I developed RA in 2001 after severe psychological stress. I tried hydroxychloroquine for a year and it did nothing. I was also taking 10 mg of prednisone which helped a little. Then I was put on methotrexate and it helped. I asked permission to quit that med and was told I could but to return if I started having symptoms. Then my rheumatologist died. I was in Montana at the time and the closest rheumatologist was about 90 miles away. I took nothing for many years. Recently, I was sent to a rheumatologist (I'm in Duluth) because I had a very high sed rate but a normal CRP. I took methotrexate for a month and then COVID-19 started up and I decided I didn't want to go through a pandemic with a depressed immune system. I told my rheumatologist that I'd be back after the COVID-19 cooled down. Now I am thinking that I'll wait for a vaccine, take that, and return to my Dr. It was not the RA pain that was bothering me; it was the high inflammation marker. I am not stiff in the AM. I have had the knuckles on my right hand replaced since I couldn't fully open it.

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@peach414144

Has this medicine done damage to your body? I am suffering with rheumatoid and psoriatic arthritis (plus other medical problems).

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Have your RA meds done any damage to your body? Are you taking anything right now?

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If they come out with a COVID vaccine will it be a live or dead vaccine. My rheumatologist won't let me have a live vaccine fear of getting it from the vaccine because of the live virus in it.

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That is certainly worth taking into consideration. Let's hope there will be a dead vaccine option.

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I am afraid that they will put it on the market before they are sure it is safe. Vaccines don’t totally protect you from the disease. They only make it less likely that you will catch it.

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Yeah, that is true. Sometimes, probably due to wishful thinking, I forget.

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@roeglo

I am afraid that they will put it on the market before they are sure it is safe. Vaccines don’t totally protect you from the disease. They only make it less likely that you will catch it.

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There is some hope in that, I think. I have had influenza 3 times during my adult life and when I started getting annual flu shots I'm glad to say I haven't had the flu since.

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I'm with you on that also!!!!!!!

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Hi, my name is Susan. Thanks for having me in the group. I have RA so badly I have severe mobility issues, cannot hold a pen correctly anymore, severe fatigue and incredible never ending pain … I feel like my joints and bones are being stabbed at all the time. I don’t sleep most nights from the pain. My RA doc has told me to increase my exercise. I’m a farmer. I possibly cannot do anymore “ exercises “ my pain and fatigue are awful.

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Hi. I’m Susan. I am 50 years old with severe RA.

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There are several sites apparently dedicated to RA and it’s consequences but generally they only represent superficial situations as oppose to potential solutions.
I hope your meeting point will be of greater assistance.
Good luck
John

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