@miserablenissen

I had my first nissen done at mayo's in 2010. I had nothing but misery. Mayos didn't want to do anything to help me AT ALL and said it can't be taken down. My second was at johns Hopkins's after they said the first one failed. Again same problems. After 8 years of suffering I finally got it taken down successfully 10 days ago in Juarez Mexico of all places: The NIH (google their website since I cannot post the link here) recommends that failed nissens can be taken down for a Roux en y bypass and therefore acid reflex is also still eliminated. ( the link to their website is up top ) it's only been a week but I feel like a new woman! All the top hospitals in America couldn't help me. It seems in the bariatric world they take down nissens quite often and are very familiar with it. Thoracic surgeons and bypass surgeries need to combine their knowledge. Dr. Rodriguez is board certified in the US But obviously it is cheaper for American patients to do it in Mexico if your insurance will not cover. And he does more than anyone in the United States. higher numbers means less complications. Best of luck!

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That’s awesome. United States has a very terrible medical system.

@lisalucier

Hi, @mmax. Welcome to Mayo Clinic Connect. I'd like to invite @miserablenissen @darcy29 @link1030 @ed_85 @kozlo52 @myskye @katmandoo @peck1944 to share some of their experiences and any information they may have about possible change of a failed Nissen fundpolication to the LINX procedure.

@chrisone – will you share more about your story related to a failed Nissen fundpolication?

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I have NF fail. I don't know if it possible to switch over to Linx. Does anyone know if this is possible?
Thanks

Wow. Just read thru all these posts. I’m scared.
My surgeon who just did the 4th RFA on my Barrett’s esophagus yesterday says my Nissen fundiplication has come completely undone and he wants me to have it done again before my next RFA in December.
Most of the posts on this thread are very negative — and understandably so! I’m so sorry for everyone who has suffered from such terrible complications after having the Nissen fundiplication.
But there were a few positive posts.
My question is this: does anyone know what the success rate is for Nissen fundiplication? Or does anyone know where I could find that kind of information?

@pdilly

Wow. Just read thru all these posts. I’m scared.
My surgeon who just did the 4th RFA on my Barrett’s esophagus yesterday says my Nissen fundiplication has come completely undone and he wants me to have it done again before my next RFA in December.
Most of the posts on this thread are very negative — and understandably so! I’m so sorry for everyone who has suffered from such terrible complications after having the Nissen fundiplication.
But there were a few positive posts.
My question is this: does anyone know what the success rate is for Nissen fundiplication? Or does anyone know where I could find that kind of information?

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My Mayo doctor said 1 in 6 Nissen operations go bad and/ or have negitive complications.

Go to Mayo before you do anything else.. get an appointment as soon as possible.. My Nissen could not be reversed was the determination at Mayo.. 1 in 6 Nissen operations have complications

@pdilly

Wow. Just read thru all these posts. I’m scared.
My surgeon who just did the 4th RFA on my Barrett’s esophagus yesterday says my Nissen fundiplication has come completely undone and he wants me to have it done again before my next RFA in December.
Most of the posts on this thread are very negative — and understandably so! I’m so sorry for everyone who has suffered from such terrible complications after having the Nissen fundiplication.
But there were a few positive posts.
My question is this: does anyone know what the success rate is for Nissen fundiplication? Or does anyone know where I could find that kind of information?

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I would suggest to have an esophagram and barium swallow done to check the severity of reflux and to also have an esophageal motility study done to see if you swallow is normal. If it is have the LINX band placed.
I just went through all this last Dec. and had surgery in Jan 2019. I had a rerepair of a large hiatal hernia, the slipped wrap from a a 24 yr old Nissan was removed,so my stomach is normal now and LINX band placed. I'm reflux free for the first time in 30yrs.
If you get the LINX band you must eat every 2-3 hrs for at least 3 months to stretch the band while scar tissue forms around it so as to prevent the scar tissue from creating a stricture enveloping the band and making swallowing more difficult.
Once the reflux stops you can wean off the PPIs. I've weaned very slowly off my prevacid because I was double dosed for many many years. I've read that you can develop really bad rebound acid production if you don't. This week is my last week of prevacid where I am only taking 2 for the whole week. Yeah!
This month I am having my 1st Endo since surgery to see if the last 2cm of Barrett's just above the LES healed up. If not this will be RFA #6. Hopefully it will be the last. I use to have 8cm of Barrett's and medicated for over 24yrs with PPIs. This alone will depleat your B12 stores and cause Calcium loss in your bones.
Make sure you know what your bone density is and your B12 levels because your binding capacity will be low.
Good luck with everything 🙂

Thank you @ken82 and @sylvias – so 17% of Nissen fundiplications result in complications if I’m doing my math right. That means 83% go well — and that makes me feel better!
Mine won’t be a Nissen reversal actually. Sounds more like it will just be a second Nissen since my first one no longer exists! I’ll Confirm that after I talk to my gastro doc and Nissen surgeon.
I don’t think I’m a candidate for linx. When I had my first Nissen they said at least a third of my stomach was in my esophagus and the opening between the 2 was huge. But I will ask about it.
I am fortunate to have docs who keep very close tabs on all of my “levels” — B12, calcium, magnesium, etc.! So far so good even after over 20 years of Prevacid!
Congratulations on your last week of prevacid — that is soooooo amazing!