Mayo Clinic Connect
I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.
Liked by carolynlivingjaks
My son had a Nissan fundoliplication in 2014 and it started a living hell. The wrap was too tight and no matter how many dialitions were done (as it was explained when the wrap is too tight it's like trying to stretch a rubber band)! It won't work. He lost significant weight which has caused more health problems. I would encourage you to see if you can get to a Mayo clinic. My son's surgeon is awesome, Dr. Steven Bowers in Jacksonville. He undid the wrap and did the Linxs. You are able to eat and in fact must eat the day of surgery to keep the magnetic beads moving and not be taken over my scar tissue. My son due to losing so much weight now has a feeding tube and Dr. Bowers diagnosed with him SMA syrndorme. However, unbeknownst to any of us including Dr. Bowers. My 21 year old son's body makes very fibrous tough scar tissue. Therefore, only 2 out of 13 beads are currently moving and he still has difficulty swallowing and always will for the rest of his life. Which means he may have a feeding tube for the rest of his life too. But he's a different case. I would highly encourage you to find someone to talk with that knows intensive about the NF wrap and the augmentation of the Linxs. You can YouTube, Dr. Steven Bowers discussing the Linxs device.
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Thanks. I will have to look into Dr. Bowers. My original surgeon said he “doesn’t do” reversals or revisions. I’m glad to know there is a Dr that can help
I had a Nissen fundaplication done in 2011. About 7 months later I was continuing to have many stomach issues and continuing to lose weight and had developed gastroparesis. As a result,I was referred to Mayo Clinic in Arizona. After extensive testing at Mayo, it was seen that the original fundaplication surgery was too tight and a redo laparoscopic fundaplication conversion to a Toupet was necessary. I continue to be most thankful for the excellent surgerical procedure performed byDr. Richard Schlinkert at Mayo Hospital in Arizona
Thanks. I have an appointment with the last surgeon I can think of in my area to help that does many revisions
Looks like I will have to contact Dr Bowers office. Thanks. Hopefully I get a response.
If your calling Central appointments it can be a long wait. However, tell them you were referred and need to get in to see Dr. Bowers. (Baratric surgery)
Good luck and please keep me posted!
Liked by Kanaaz Pereira, Connect Moderator
Thanks. I’m not looking for a quick fix but my original surgeon said he “doesn’t do” reversals and I’m going to be like this the rest of my life. Have to try and fight.
@ed_85 Did they say why there was nothing they could do? Are there other problems besides the wrap?
Hello I am Belgian and I am 27 years old today I had a nissen in 2015 and my life has been destroyed since this operation. I started having undigested food and an accelerated transit the drain test was normal but it was an omelette with water. I only had problems since
in 2017 I asked that we remove the nissen! they have withdrawn but I still have dumping the transit expedited. I had gallbladder removal after octreotide treatment
after the withdrawal of the nissen. the symptoms were identical. the gastros concluded to an anterior truncal vaogotmia. the posterior vagus nerve is intact and has been verified. I am angry I no longer have social life. the surgeon says he always checks the nerve before the operation.
has anyone ever tried a transplant with the crural nerve?
You might wish to scroll through this discussion, https://connect.mayoclinic.org/discussion/failed-nissen-wgastroparesis-possible-mals/ where Connect member @robatk17 has written about vagotomy. I'm tagging Mentor @kdubois as she has much experience with the Nissen procedure, and may perhaps have more insight for you.
I had the Nissan fundiplication about a year and a half ago. I felt amazing for nine-months. Then, one day my stomach was burning, aching, you name it. I went back to the mayo clinic and got scoped to check the wrap. Well, the GI said the wrap was good and that he also checked me for SIBO. Sure enough, I have it. Along with two ulcers. I was also wondering about a reversal of the surgery. I still have GURDS, and recently found out from a GI in Texas that two-thirds of people who have had this surgery still require acid blockers. So I think I wasted a lot of money, but am not sure if the surgery caused the SIBO. if it did, I will definitely have it reversed. I am worse than I was pre-procedure. So maybe see if you have developed SIBO as well. Good Luck in your quest.
@myskye I am in Maine. I think I read you were in Maine as well. Who is the surgeon you were going to see for a reversal. I'm trying to get in to see one in Augusta now.
I am reaching out on here as I’ve run into many dead ends. I had a nissen 11/14/2016. Since that time it’s been nothing but problems. I’ve been dilated 4 times, lost 28% of my body weight, and most recent a 6 day hospital admission for erosive esophagitis. My wrap is too tight and I can feel it. My most recent test say everything is now “normal” but I’m still having issues daily. I’ve been turned down by the best hospital in my state and even received a letter that the Mayo cannot help either. What can I do? Has anyone experienced this? Is there anyone in the WORLD that will reverse/revise a nissen to provide a patient with relief?
I had my first nissen done at mayo's in 2010. I had nothing but misery. Mayos didn't want to do anything to help me AT ALL and said it can't be taken down. My second was at johns Hopkins's after they said the first one failed. Again same problems. After 8 years of suffering I finally got it taken down successfully 10 days ago in Juarez Mexico of all places: The NIH (google their website since I cannot post the link here) recommends that failed nissens can be taken down for a Roux en y bypass and therefore acid reflex is also still eliminated. ( the link to their website is up top ) it's only been a week but I feel like a new woman! All the top hospitals in America couldn't help me. It seems in the bariatric world they take down nissens quite often and are very familiar with it. Thoracic surgeons and bypass surgeries need to combine their knowledge. Dr. Rodriguez is board certified in the US But obviously it is cheaper for American patients to do it in Mexico if your insurance will not cover. And he does more than anyone in the United States. higher numbers means less complications. Best of luck!
Dennis, My 20 year old son (who was born with a congenital problem of his stomach) He had his 2nd NF of his life in 2014. That surgeon did the wrap too tight and too high up on his esophagus. He lost 30 pounds and currently has a feeding tube due to other health problems because of the too tight NF. Please go online and look up on youtube. Steven P Bowers MD – Jacksonville Mayo. Instead of doing yet another NF on my son he inserted and performed augmentation of the linxs device. magnetic beads form to close and open with food. It is a fairly new procedure hopefully it will take over as the standard not many surgeons know of it. I would highly recommend it. The evening of surgery you are able to eat real food. In fact it’s encouraged to eat to keep the beads moving so not to fuse over. Good luck.
I am Chris. I am glad your son is doing well with the linx procedure by Dr. Steven P. Bowers. Can Nissen Fundoplication be taking down and change it to Linx?
Does anyone know if failed Nissen Fundpolication can be change to Linx?
Hi, @mmax. Welcome to Mayo Clinic Connect. I'd like to invite @miserablenissen @darcy29 @link1030 @ed_85 @kozlo52 @myskye @katmandoo @peck1944 to share some of their experiences and any information they may have about possible change of a failed Nissen fundpolication to the LINX procedure.
@chrisone – will you share more about your story related to a failed Nissen fundpolication?
I finally had my Nissen reversed after years of fighting. When my surgeon went in my original wrap was flipped and attached to my liver by scar tissue. My first surgeon refused to reverse it and offered me a feeding tube. Don’t give up. There is such thing as a bad surgeon. Nobody is perfect. The linx isn’t even an option in my
Liked by Lisa Lucier, Connect Moderator
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