Mayo Clinic Connect
I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.
Liked by carolynlivingjaks
I am reaching out on here as I’ve run into many dead ends. I had a nissen 11/14/2016. Since that time it’s been nothing but problems. I’ve been dilated 4 times, lost 28% of my body weight, and most recent a 6 day hospital admission for erosive esophagitis. My wrap is too tight and I can feel it. My most recent test say everything is now “normal” but I’m still having issues daily. I’ve been turned down by the best hospital in my state and even received a letter that the Mayo cannot help either. What can I do? Has anyone experienced this? Is there anyone in the WORLD that will reverse/revise a nissen to provide a patient with relief?
Liked by miserablenissen
My sincere apologies it took a while to reply to your post; you may notice that I moved your discussion and combined it with this existing discussion on Nissen Fundoplication. I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their or their loved ones' experiences.
It seems you are not alone in your frustrations; I'm tagging Mentor @kdubois and @carolynlivingjaks who have written extensively about Nissen Fundoplication, and I'm certain they will share their thoughts with you.
Another discussion on Connect that you may wish to view:
Nissen Fundoplication reversal https://connect.mayoclinic.org/discussion/nissen-fundoplication-reversal/ where @kozlo52 @myskye @katmandoo @peck1944 have also shared their experiences with this procedure.
@ed_85, have you asked your doctor if you could consider the LINX procedure, which is a great alternative to a Nissen Fundoplication? Here's some information about this device: http://www.linxforlife.com
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Thank you for your reply. It’s been nothing but problems since having my Nissen. Unfortunately I cannot find a surgeon I’m my state who will reverse it. I’m willing to go anywhere to have it reversed. The link looks like an awesome device but not sure I would want one.
give it some time. I had a very large hiatal hernia repair in nov., 2016 repaired and a 360 gree fundoplication . I have had heartburn like symptoms ever since. I have finally been disgnosed with a "hypersensitive esophagus" which means it is very susceptable to this heartburn feel although the bravo 48 hour test that was done indicates i am neutral on ph; there is no acid reflux. The link also has it's problems. My current solution is to be on atavan 4 times a day to relax the esophagus muscles. Go back to the original surgeon and tell him your problems. Maybe you have my condition. The AMA solution for my problem is hypnotism (which after 12 sessions and $1100 out of my pocket did not work); thus the atavan, even though i am not depressed. The dangers of staying on the antacids is : possible osteoporosis; kidney failure; dementia;altheimers disease. Have you had any food sticking? I had 7 incidences of this and had to have 3 dilations in 5 months. beast wishes….. kozlo52
Liked by Kanaaz Pereira, Connect Moderator
My son had a Nissan fundoliplication in 2014 and it started a living hell. The wrap was too tight and no matter how many dialitions were done (as it was explained when the wrap is too tight it's like trying to stretch a rubber band)! It won't work. He lost significant weight which has caused more health problems. I would encourage you to see if you can get to a Mayo clinic. My son's surgeon is awesome, Dr. Steven Bowers in Jacksonville. He undid the wrap and did the Linxs. You are able to eat and in fact must eat the day of surgery to keep the magnetic beads moving and not be taken over my scar tissue. My son due to losing so much weight now has a feeding tube and Dr. Bowers diagnosed with him SMA syrndorme. However, unbeknownst to any of us including Dr. Bowers. My 21 year old son's body makes very fibrous tough scar tissue. Therefore, only 2 out of 13 beads are currently moving and he still has difficulty swallowing and always will for the rest of his life. Which means he may have a feeding tube for the rest of his life too. But he's a different case. I would highly encourage you to find someone to talk with that knows intensive about the NF wrap and the augmentation of the Linxs. You can YouTube, Dr. Steven Bowers discussing the Linxs device.
I had a Nissen fundaplication done in 2011. About 7 months later I was continuing to have many stomach issues and continuing to lose weight and had developed gastroparesis. As a result,I was referred to Mayo Clinic in Arizona. After extensive testing at Mayo, it was seen that the original fundaplication surgery was too tight and a redo laparoscopic fundaplication conversion to a Toupet was necessary. I continue to be most thankful for the excellent surgerical procedure performed byDr. Richard Schlinkert at Mayo Hospital in Arizona
I was referred to the clinic in Rochester but then I received a letter from Mayo stating there was nothing they could do. Has anyone experienced this? I feel that a reversal is necessary but I don’t expect it to fix all my problems. I’m willing to go anywhere to any doctor to get help. I live in the northwest and have yet to find a surgeon for reversal.
I’ve had food get caught leading to an emergent egd with dilation. I’ve been dilated 4 times in 6 months. I too had a 360 Nissen and nothing but problems since. However, my ph impedance and swallow study were normal. I was told by the physician to just learn how to deal with it.
@carolynlivingjaks Dr Bowers did two surgeries on me ( another surgeon did a nissen fundoplication undo). Dr Bowers is an awesome planner and surgeon and tries for the best solution for you or your family member. The nurses, techs, ect are pretty good there too. I had a paraesophageal hernia from hell.. just would not stay repaired. It kept pulling my stomach into my chest. I was on a feeding tube for over a year… for most of the time 24 hours a day and toting the bag around sucked.. propping 30° angle at night sucked. I still has esophagus problems from the damage of the years of acid. I see Dr Dawn Francis, gastroenterologist, and her NP for them.
I would highly recommend Mayo Jacksonville. Dr. Steven Bowers, bariatric surgery.
Liked by ed_85
Yes he is. When I saw him last August 2017. He said he was with my son until he's 100 percent well. Not many surgeon's care as much as he does. And Jenna his nurse! The best ever!
I would try to get in to see Dr. Bowers in Jacksonville, Mayo.
He is cutting edge surgeon. It's worth the trip.
Thanks. I will have to look into Dr. Bowers. My original surgeon said he “doesn’t do” reversals or revisions. I’m glad to know there is a Dr that can help
Thanks. I have an appointment with the last surgeon I can think of in my area to help that does many revisions
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