Mayo Clinic Connect
I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.
Liked by carolynlivingjaks
I’d like to add my welcome, and thank you for sharing your history; I can only imagine how very frustrating this must be.
We have a few other recent discussions on Nissen Fundoplication reversal, which I would sincerely encourage you to view:
Nissen Fundoplication reversal: http://mayocl.in/2pBIoLN
Failed Nissen w/gastroparesis & possible MALs: http://mayocl.in/2poaPBn
In the meantime, I’m tagging @myskye @cowboy1997 @peck1944 @kozlo52 @tgirl @robatk17 @gregoryd @katmandoo so that they may join in and share their experiences.
I’d also like to introduce you to one of our Mentors, @kdubois who can give you some valuable insights about her Nissen experience.
@brie87144 @pattitoo @squaredancer and others have posted about esophageal issues and dilation in this discussion, “Esophagus issues” http://mayocl.in/2pCGDyI. I wonder if they may have any suggestions?
@deb1987, I’d like to echo @hopeful33250‘s suggestion about getting a second opinion, perhaps at Mayo Clinic in Arizona; how are you coping with the pain and fatigue at present?
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Thank you for all the info.I am coping with it all .Been coping with it all for 3 1/2.years .Actually even before then .So what i was wondering .jas anyone had it loosened ? If so how did their surgery go and are the so much better now since having it done SK
Liked by pdilly
Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .
Thank you Kelly .It is so nice to be able to talk to someone that understands what i have been and am going through .Its so frustrating when for 3 years since this darn thing i keep explaining to every data doctor over and over what’s going on .I know that heir are risk but yeah i shouldn’t have to look vex like this anymore
Liked by Colleen Young, Connect Director, pdilly
That’s awesome your gastroparesis pacemaker is helping .Mine never helped .I still constantly couldn’t keep my food down .The only thing that helped me is this wrap .But i am in constant pain and discomfort.Always bloated up ,constraint ,heartburn ,pain,so on and so on .Its frustrating .
I had my fundoplication redone in Nov. 2016. It had come totally unwrapped from a surgery 15 years ago. The second surgery proved to be a very difficult recovery for me. A year later, I have symptoms back again. Pain in upper gastric area, it is very tender along my lowest ribs on both sides. I feel sick all the time. The pain gets worse after I eat and eases up a couple of hours later but never goes away. Today I found out that the fundoplication wrap is a little too tight. Trying meds and dilation of the wrap if the meds don’t work. All of this is so stressful. What if these things don’t work? I don’t know….
So sorry to hear the second time was worse .Hope you get relief soon .
I have gastroparesis as a result of the Nissen Fundoplication. I have considerable difficulty with gas and bloating as well as nausea. My diet is limited and even when I am careful I still have problems sometimes. Also, being on a very low fiber diet has created constant constipation problems. This disease has changed my life.
Liked by Teresa, Volunteer Mentor, Kanaaz Pereira, Connect Moderator, pdilly
Hi sorry to hear all issues since your wrap. I had gastroparesis and all those issues before he did my wrap . The wrap has made my gastroparesis even worse .The reason why we did the wrap was because I couldn’t keep Any of food down.we did put in nuero stimulator pacemaker it did nothing for me so we took it back out when he did the wrap. So ever since the wrap can’t throw up at all even when I had to food poison real bad twice twice and stomach virus place so I would have to go to the hospital and get IVs and everything . Stomach is constantly bloated and I’m the opposite I can’t lose weight I keep gaining weight and constantly bloated stomach and all over the body crashes all the time constantly paying everywhere especially upper back and chest between shoulder blades .has made my Aorta Arthoscoliosis really bad ..It sucks. You explain this all to the doctors and I look at you like you’re weird and then you get OK if you want to listen I’ll do it but I’ll never see you again and not happy to do it .so when do doctors start listening to patients?I hope you get some answers feeling better
Yes, I had food poisoning and of course could not throw up. Gastroparesis is a terrible disease and it is very difficult to get a doctor to listen. If they can’t fix something surgically, they aren’t interested.
Hello, I’m new to this group, but I can see that there is a lot of experience here. There are a lot of unhappy experiences out there and I might say that I’m one of them, but I naturally want to avoid making it worst. I’ve got a very unique situation and have encountered a variety of problems in getting diagnosed and establishing a path back to health. Since this group is focused on GI, I will also, but my issues actually involve neural and vascular as well. I’ll try to be as specific as possible, but I must apologize for such a long narration. It may not be obvious, but this is a highly condensed version of the issues that I have to navigate.
I have been motivated by an periodic abdominal just to the right of the solar plexus. It can wax and wane over months. It can also be a mild nusance or drop me to my knees gasping for breath. My gallbladder was deficient and was removed 2 years ago in the hope of relief, it did not help.
I had a nissen & highly selective vagotomy about 15 years ago. It was successful up to a couple of years ago and it has now “slipped” and appears to be hanging on the esophagus below an enlarged hiatal hernia. I’ve recently underwent the gastric emptying test that showed a delayed action on the first hour. i.e. gastroparesis. If this is a complication from the Nissen, I don’t know, but in my opinion a pyloroplasty will most likely make things worst. That leaves my main question. My options are 1) do nothing 2) Nissen redo 3) Nissen unwrap. I’m tempted to go with the unwrap, but I would like to find out what to expect.
Working out from that issue, right next door, just a inch or two away, I have a celiac stenosis, which fits the classical pattern for MALs (Median Arcuate Ligament syndrome). This can inhibit blood flow to the digestive system. Unfortunately, completely unrelated to me, there is an academic dispute regarding the legitimacy of the syndrome. It turns out that Stanford, where I have been evaluated, does not consider this to be valid condition. If being caught up in this argument wasn’t frustrating enough, their vascular surgeons have completely invalidated their “objectivity” on a unrelated matter.
About 10 years ago, I came down with a idiopathic peripheral neuropathy with a devastating fatigue. To control the pain, I’ve been seeing a pain specialist that has kept me on a moderate dose of methadone. At my first appointment with Stanford’s vascular department, they immediately classified me as a drug abuser and things went downhill from there. They concluded that methadone is only used for heroin addiction and could not understand why I was taking it since I never even tried heroin. That physician offered no help in any form, no testing, no useful referrals, and then wrote a false narrative that included some actual facts, but altered the context and sequence of events. Just to be sure, he phrased it to make me sound like the classical abuser, not an actual patient. In short, he did everything in his power to keep me from decent medical care.
Obviously, I’m still angry about this. Especially since that report has played out in following visits where I was subjected to very abusive treatment from the very doctors that are suppose to help. However, I persisted and finally got a bit of my message out, but even so, the bariatric surgeon that I’m presently talking too can only offer an opinion on the digestive side of my case. Obviously, however, the digestive tract cannot function properly without an adequate flow of blood. The laparoscopic entry is identical for both the Nissen and MALs. I’ve already had my gallbladder out in an attempt to alieviate the abdominal pain, so I don’t want to break this out into multiple surgeries. But, then Stanford does not subscribe to the MALs diagnosis and apparently doesn’t consider a celiac stenosis to be a serious condition because it is “widely patent”, meaning other vessels feed the organs. Except I’ve had GI troubles for over 35 years, at any rate, though, Stanford’s vascular department has lost all credibility for me. Which means my surgeon can only focus on half of my issue and leaves me in a position of having to go “shopping” for a diagnosis. It is a dilemma.
All this leaves me with a great deal of uncertainty as to how to find help. That is why I am considering to just have the Nissen unwrapped and learn to deal with the reflux. I already have the Barrett’s esophagus anyhow, which is what the original surgery was intended to prevent.
Well, thanks to anyone that can provide some insight into these problems. Hope to hear from you all soon.
Hi,Debbie here.I just had my nissian Fundplication wrap redone on July 6,2017.I have been telling my surgeon and Gi doctor for 3 1/2 years it was too tight and ablot of issues .Well finally went in and reversed it to a loose wrap .So far everything has been going great .No more tight complctions and discomfort i had all time in chest .While he was doing it realize it was starting to colapse and that s why i was having more and more issues my food was getting stuck.I am keeping myself on liguid diet for at least 6 months to make sure all heals well and no issues.So pleased with the reverse …My surgeon was especially pleased with my results so far ……
Liked by John, Volunteer Mentor, Kelly, Alumna Mentor, Jim, Volunteer Mentor, Kanaaz Pereira, Connect Moderator
That’s wonderful to know! Thank you so much for the update.
Liked by John, Volunteer Mentor
Hi, @deb1987. It’s always good to hear positive reports. It’s unfortunate that the doctor didn’t listen to you 3 years ago. I feel blessed to have a team of doctors who listen to me and believe me, and who take action. The exception might be the neurologist, who tends to focus on one issue and not explore any possible related problems.
Liked by John, Volunteer Mentor, Kelly, Alumna Mentor
Thats exactly what my surgeon said .How he was very sorry didn’t listen to me in the first place .He extremly sorry he kept listening to
my GI doctor who would listen to her parrtner who kept saying no to going in and reversing it to a loose one .It was also cause he was so sorry cause he was told their was something else wrong .We found out from my surgeon referring me to his gi buddy that i have esphogus spasms and thats when he said ok lets go in and reverse it to a loose wrap.Keep fingers crossed keep this well .
Glad you have such good doctors ..
Liked by Kelly, Alumna Mentor, Jim, Volunteer Mentor
@deb1987, simply said… YAY! Thanks for the update!
I’m kozlo52. I am still considering having a nissen reversal after 1 year. I have been getting heartburn again that does not respond to antacids, as well as bloating, lack of appetite. I finally had my post operative bravo 48 hour ph test and the rsults shocked me. My ph is normal. I asked my surgeon , where is the heartburn coming from? He said that i have a “hyperactive esophagus” and that i should get a hypnotist to hypnotize me into the point where this pain comes on after eating my brain will ignore sending out a pain message. Kelly dubois, have you ever heard of this? I In a search of literature it shows that this can be a phenoma for some people. it is treated with anti depressants like klonopin or hypnosis. Note after my gallbladder was removed 7/27/2017, i noticed an increase in “sensed heartburn” activity as well as nausea. The biopsies taken had shown that i had some bile in the stomach. The surgeon is prescribing something for this. If i take an atavan, the heartburn will diminish. any advice would be appreciated. thanks…..paul@kozlo52.
kelly, since your fundo was very successful how long were you on the liquid diet; the semi solid diet; then the solid diet. I just had another endoscopy on march 16, 2017 and a esophagael manometry the same day. I meet with the surgeon on march 23, 2017 and we will discuss all the results. His other surgeon who did the above tests tell me that i am eating too large portions. That will cause the stomach to push on the diaphram and that is the pain i am experiencing. Now on sunday march 19 i ate smaller portions ( 3 meals per day) and had no problems with heartburn. i did get a migraine ( flashing lights and aura) and settled on tylenol for that. The next day to prevent continuance of the migraine i took one of my fioricets adn it did help the head but got terrible heartburn. The same thing happens if i use mobic (NSAID). I will request an esophagram to be done. After 4.5 months i should not get heartburn , even being on antacids. i do have a problem with headaches which the neurologist and neurosurgeon think is related to my C3-C7 stenosis, but i can’t get to the neurosurgeon because of all these post fundo problems. Any other advice would be appreciated…..thank you… kozlo52 (Paul).
I have had Poem surgery and fundopliacation at Mayo Clinic in Phoenix. The fundopliacation was in March. It is still intact, but I have extreme bloating and quite a bit of pain. Eating small meals very slowly and rried many meds . Still going through treatment at Stanford now. I am in Northern California and rhe ezpense to Phoenix and hotels is difficult, but I am going to go back ro Mayo. Maybe dialation
Have had Stanford tell me to take down the fundopliacation but my symptoms were worse before it. They agree now but very frustrated have been dealing with stage 3 achalesia for 3 years. Keep going till you find an answer
Liked by Kanaaz Pereira, Connect Moderator
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