Reversal of a fundoplication

Posted by Pawsboy9 @pawsboy9, Aug 5, 2012

I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.

Thanks
Dennis

@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Hi @deb1987, here’s what’s concerning… so many differing opinions/explanations for the causes of your issues… and now if they feel that this is an esophageal motility issue, then I would think that they’d want to loosen the wrap (assuming that it’s a 360º wrap). (Prior to my surgery, Mayo was concerned about my esophageal motility based on my manometry results (plus knowing that my mom’s motility is lackluster), so they specifically scheduled an esophagram the day before my surgery to better-determine my motility. They determined that my motility was good, so that enabled them to decide to do the 360º wrap.)

Regardless, what you are experiencing isn’t a quality of life you should settle for. Sometimes, we patients just have to keep on advocating. You know your body best.

How much experience does your surgeon have with fixing / reversing these? I would definitely ask how many corrections and reversals s/he’s done. This might affect your choice to have it done elsewhere.

Mine wasn’t a redo; my brother’s was. I don’t think he was in any more pain than the first time, but he did have to have a larger incision. With that said, every person has different circumstances, so that may not be the case with you.

I’m glad you’re a teacher and can take the summer to perhaps do this. Having that amount of time to recover will certainly help!

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Yeah it is so frustrating .He is the top head of thoriatic surgeon in Denver .I understand his concerns and all but .When do you listen to your patient and not what you were taught .

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@kanaazpereira

Hello @deb1987,

I’d like to add my welcome, and thank you for sharing your history; I can only imagine how very frustrating this must be.

We have a few other recent discussions on Nissen Fundoplication reversal, which I would sincerely encourage you to view:
Nissen Fundoplication reversal: http://mayocl.in/2pBIoLN
Failed Nissen w/gastroparesis & possible MALs: http://mayocl.in/2poaPBn

In the meantime, I’m tagging @myskye @cowboy1997 @peck1944 @kozlo52 @tgirl @robatk17 @gregoryd @katmandoo so that they may join in and share their experiences.
I’d also like to introduce you to one of our Mentors, @kdubois who can give you some valuable insights about her Nissen experience.

@brie87144 @pattitoo @squaredancer and others have posted about esophageal issues and dilation in this discussion, “Esophagus issues” http://mayocl.in/2pCGDyI. I wonder if they may have any suggestions?

@deb1987, I’d like to echo @hopeful33250‘s suggestion about getting a second opinion, perhaps at Mayo Clinic in Arizona; how are you coping with the pain and fatigue at present?

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Thank you for all the info.I am coping with it all .Been coping with it all for 3 1/2.years .Actually even before then .So what i was wondering .jas anyone had it loosened ? If so how did their surgery go and are the so much better now since having it done SK

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Thank you Kelly .It is so nice to be able to talk to someone that understands what i have been and am going through .Its so frustrating when for 3 years since this darn thing i keep explaining to every data doctor over and over what’s going on .I know that heir are risk but yeah i shouldn’t have to look vex like this anymore

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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That’s awesome your gastroparesis pacemaker is helping .Mine never helped .I still constantly couldn’t keep my food down .The only thing that helped me is this wrap .But i am in constant pain and discomfort.Always bloated up ,constraint ,heartburn ,pain,so on and so on .Its frustrating .

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I had my fundoplication redone in Nov. 2016. It had come totally unwrapped from a surgery 15 years ago. The second surgery proved to be a very difficult recovery for me. A year later, I have symptoms back again. Pain in upper gastric area, it is very tender along my lowest ribs on both sides. I feel sick all the time. The pain gets worse after I eat and eases up a couple of hours later but never goes away. Today I found out that the fundoplication wrap is a little too tight. Trying meds and dilation of the wrap if the meds don’t work. All of this is so stressful. What if these things don’t work? I don’t know….

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So sorry to hear the second time was worse .Hope you get relief soon .

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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I have gastroparesis as a result of the Nissen Fundoplication. I have considerable difficulty with gas and bloating as well as nausea. My diet is limited and even when I am careful I still have problems sometimes. Also, being on a very low fiber diet has created constant constipation problems. This disease has changed my life.

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Hi sorry to hear all issues since your wrap. I had gastroparesis and all those issues before he did my wrap . The wrap has made my gastroparesis even worse .The reason why we did the wrap was because I couldn’t keep Any of food down.we did put in nuero stimulator pacemaker it did nothing for me so we took it back out when he did the wrap. So ever since the wrap can’t throw up at all even when I had to food poison real bad twice twice and stomach virus place so I would have to go to the hospital and get IVs and everything . Stomach is constantly bloated and I’m the opposite I can’t lose weight I keep gaining weight and constantly bloated stomach and all over the body crashes all the time constantly paying everywhere especially upper back and chest between shoulder blades .has made my Aorta Arthoscoliosis really bad ..It sucks. You explain this all to the doctors and I look at you like you’re weird and then you get OK if you want to listen I’ll do it but I’ll never see you again and not happy to do it .so when do doctors start listening to patients?I hope you get some answers feeling better

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Yes, I had food poisoning and of course could not throw up. Gastroparesis is a terrible disease and it is very difficult to get a doctor to listen. If they can’t fix something surgically, they aren’t interested.

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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I’m kozlo52. I am still considering having a nissen reversal after 1 year. I have been getting heartburn again that does not respond to antacids, as well as bloating, lack of appetite. I finally had my post operative bravo 48 hour ph test and the rsults shocked me. My ph is normal. I asked my surgeon , where is the heartburn coming from? He said that i have a “hyperactive esophagus” and that i should get a hypnotist to hypnotize me into the point where this pain comes on after eating my brain will ignore sending out a pain message. Kelly dubois, have you ever heard of this? I In a search of literature it shows that this can be a phenoma for some people. it is treated with anti depressants like klonopin or hypnosis. Note after my gallbladder was removed 7/27/2017, i noticed an increase in “sensed heartburn” activity as well as nausea. The biopsies taken had shown that i had some bile in the stomach. The surgeon is prescribing something for this. If i take an atavan, the heartburn will diminish. any advice would be appreciated. thanks…..paul@kozlo52.

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@kozlo52

kelly, since your fundo was very successful how long were you on the liquid diet; the semi solid diet; then the solid diet. I just had another endoscopy on march 16, 2017 and a esophagael manometry the same day. I meet with the surgeon on march 23, 2017 and we will discuss all the results. His other surgeon who did the above tests tell me that i am eating too large portions. That will cause the stomach to push on the diaphram and that is the pain i am experiencing. Now on sunday march 19 i ate smaller portions ( 3 meals per day) and had no problems with heartburn. i did get a migraine ( flashing lights and aura) and settled on tylenol for that. The next day to prevent continuance of the migraine i took one of my fioricets adn it did help the head but got terrible heartburn. The same thing happens if i use mobic (NSAID). I will request an esophagram to be done. After 4.5 months i should not get heartburn , even being on antacids. i do have a problem with headaches which the neurologist and neurosurgeon think is related to my C3-C7 stenosis, but i can’t get to the neurosurgeon because of all these post fundo problems. Any other advice would be appreciated…..thank you… kozlo52 (Paul).

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I have had Poem surgery and fundopliacation at Mayo Clinic in Phoenix. The fundopliacation was in March. It is still intact, but I have extreme bloating and quite a bit of pain. Eating small meals very slowly and rried many meds . Still going through treatment at Stanford now. I am in Northern California and rhe ezpense to Phoenix and hotels is difficult, but I am going to go back ro Mayo. Maybe dialation
Have had Stanford tell me to take down the fundopliacation but my symptoms were worse before it. They agree now but very frustrated have been dealing with stage 3 achalesia for 3 years. Keep going till you find an answer

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