Reversal of a fundoplication

Posted by Pawsboy9 @pawsboy9, Aug 5, 2012

I had a hernia and the fundoplication done in February as post this my chest is on fire. Going back to see the surgeon who did it on Tuesday. Has anybody had the same experience? If this guy does not have a answer heading for Mayo.

Thanks
Dennis

@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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Yes, I had food poisoning and of course could not throw up. Gastroparesis is a terrible disease and it is very difficult to get a doctor to listen. If they can’t fix something surgically, they aren’t interested.

Liked by pdilly

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@deb1987

Hi my name is Deb.I had my Nissan done over 3 years ago .I have had nothing but pain ,in upper chest ,upper back ,terrible heartburn.Feel like i constantly have soar throats and something is stuck .Always bloated and whole body swollen .Food and drinks constantly get stuck .Takes almost 20 minutes of me feeling like i am choking and getting food with lots of flem to come back up .Since the wrap , I have been diagnosed with Bloating syndrome , IBS syndrome dumping syndrome, one doctor says I have a espogeal spasms one says no i don’t .I have had my esphogus dilated more times then i can count .
Gone back to my surgeon 4 times in last 3 years since .Last two times i went to him said we could loosen it but want second opinion .So of causecsends me to his partner.He does edg says yeah it’s to tight then does barium swollow ,which shows my esphogus closing up .But says on it’s not your wrap it’s espogeal spasms .Im like really .So go back to surgeon now he saying i really don’t want to do it “Go back to your GI Doctor see what she can do .I am getting so tired of all these doctors .I am in constant pain all the time .All i want is to either loosen the thing or up do it .Does any one in Colorado or close to Colorado know of any surgeons that will undo the wrap .I have not felt like my self since this thing .

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I’m kozlo52. I am still considering having a nissen reversal after 1 year. I have been getting heartburn again that does not respond to antacids, as well as bloating, lack of appetite. I finally had my post operative bravo 48 hour ph test and the rsults shocked me. My ph is normal. I asked my surgeon , where is the heartburn coming from? He said that i have a “hyperactive esophagus” and that i should get a hypnotist to hypnotize me into the point where this pain comes on after eating my brain will ignore sending out a pain message. Kelly dubois, have you ever heard of this? I In a search of literature it shows that this can be a phenoma for some people. it is treated with anti depressants like klonopin or hypnosis. Note after my gallbladder was removed 7/27/2017, i noticed an increase in “sensed heartburn” activity as well as nausea. The biopsies taken had shown that i had some bile in the stomach. The surgeon is prescribing something for this. If i take an atavan, the heartburn will diminish. any advice would be appreciated. thanks…..paul@kozlo52.

Liked by pdilly

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@kozlo52

kelly, since your fundo was very successful how long were you on the liquid diet; the semi solid diet; then the solid diet. I just had another endoscopy on march 16, 2017 and a esophagael manometry the same day. I meet with the surgeon on march 23, 2017 and we will discuss all the results. His other surgeon who did the above tests tell me that i am eating too large portions. That will cause the stomach to push on the diaphram and that is the pain i am experiencing. Now on sunday march 19 i ate smaller portions ( 3 meals per day) and had no problems with heartburn. i did get a migraine ( flashing lights and aura) and settled on tylenol for that. The next day to prevent continuance of the migraine i took one of my fioricets adn it did help the head but got terrible heartburn. The same thing happens if i use mobic (NSAID). I will request an esophagram to be done. After 4.5 months i should not get heartburn , even being on antacids. i do have a problem with headaches which the neurologist and neurosurgeon think is related to my C3-C7 stenosis, but i can’t get to the neurosurgeon because of all these post fundo problems. Any other advice would be appreciated…..thank you… kozlo52 (Paul).

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I have had Poem surgery and fundopliacation at Mayo Clinic in Phoenix. The fundopliacation was in March. It is still intact, but I have extreme bloating and quite a bit of pain. Eating small meals very slowly and rried many meds . Still going through treatment at Stanford now. I am in Northern California and rhe ezpense to Phoenix and hotels is difficult, but I am going to go back ro Mayo. Maybe dialation
Have had Stanford tell me to take down the fundopliacation but my symptoms were worse before it. They agree now but very frustrated have been dealing with stage 3 achalesia for 3 years. Keep going till you find an answer

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I am reaching out on here as I’ve run into many dead ends. I had a nissen 11/14/2016. Since that time it’s been nothing but problems. I’ve been dilated 4 times, lost 28% of my body weight, and most recent a 6 day hospital admission for erosive esophagitis. My wrap is too tight and I can feel it. My most recent test say everything is now “normal” but I’m still having issues daily. I’ve been turned down by the best hospital in my state and even received a letter that the Mayo cannot help either. What can I do? Has anyone experienced this? Is there anyone in the WORLD that will reverse/revise a nissen to provide a patient with relief?

Liked by miserablenissen

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Hello @ed_85,

My sincere apologies it took a while to reply to your post; you may notice that I moved your discussion and combined it with this existing discussion on Nissen Fundoplication. I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their or their loved ones' experiences.

It seems you are not alone in your frustrations; I'm tagging Mentor @kdubois and @carolynlivingjaks who have written extensively about Nissen Fundoplication, and I'm certain they will share their thoughts with you.

Another discussion on Connect that you may wish to view:
Nissen Fundoplication reversal https://connect.mayoclinic.org/discussion/nissen-fundoplication-reversal/ where @kozlo52 @myskye @katmandoo @peck1944 have also shared their experiences with this procedure.

@ed_85, have you asked your doctor if you could consider the LINX procedure, which is a great alternative to a Nissen Fundoplication? Here's some information about this device: http://www.linxforlife.com

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@kanaazpereira

Hello @ed_85,

My sincere apologies it took a while to reply to your post; you may notice that I moved your discussion and combined it with this existing discussion on Nissen Fundoplication. I thought it would be beneficial for you to be introduced to the many members who have discussed much of what you are experiencing.
If you are replying by email, I suggest clicking on VIEW & REPLY so that you can read through some of the earlier messages and meet some of our other members talking about their or their or their loved ones' experiences.

It seems you are not alone in your frustrations; I'm tagging Mentor @kdubois and @carolynlivingjaks who have written extensively about Nissen Fundoplication, and I'm certain they will share their thoughts with you.

Another discussion on Connect that you may wish to view:
Nissen Fundoplication reversal https://connect.mayoclinic.org/discussion/nissen-fundoplication-reversal/ where @kozlo52 @myskye @katmandoo @peck1944 have also shared their experiences with this procedure.

@ed_85, have you asked your doctor if you could consider the LINX procedure, which is a great alternative to a Nissen Fundoplication? Here's some information about this device: http://www.linxforlife.com

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Thank you for your reply. It’s been nothing but problems since having my Nissen. Unfortunately I cannot find a surgeon I’m my state who will reverse it. I’m willing to go anywhere to have it reversed. The link looks like an awesome device but not sure I would want one.

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give it some time. I had a very large hiatal hernia repair in nov., 2016 repaired and a 360 gree fundoplication . I have had heartburn like symptoms ever since. I have finally been disgnosed with a "hypersensitive esophagus" which means it is very susceptable to this heartburn feel although the bravo 48 hour test that was done indicates i am neutral on ph; there is no acid reflux. The link also has it's problems. My current solution is to be on atavan 4 times a day to relax the esophagus muscles. Go back to the original surgeon and tell him your problems. Maybe you have my condition. The AMA solution for my problem is hypnotism (which after 12 sessions and $1100 out of my pocket did not work); thus the atavan, even though i am not depressed. The dangers of staying on the antacids is : possible osteoporosis; kidney failure; dementia;altheimers disease. Have you had any food sticking? I had 7 incidences of this and had to have 3 dilations in 5 months. beast wishes….. kozlo52

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My son had a Nissan fundoliplication in 2014 and it started a living hell. The wrap was too tight and no matter how many dialitions were done (as it was explained when the wrap is too tight it's like trying to stretch a rubber band)! It won't work. He lost significant weight which has caused more health problems. I would encourage you to see if you can get to a Mayo clinic. My son's surgeon is awesome, Dr. Steven Bowers in Jacksonville. He undid the wrap and did the Linxs. You are able to eat and in fact must eat the day of surgery to keep the magnetic beads moving and not be taken over my scar tissue. My son due to losing so much weight now has a feeding tube and Dr. Bowers diagnosed with him SMA syrndorme. However, unbeknownst to any of us including Dr. Bowers. My 21 year old son's body makes very fibrous tough scar tissue. Therefore, only 2 out of 13 beads are currently moving and he still has difficulty swallowing and always will for the rest of his life. Which means he may have a feeding tube for the rest of his life too. But he's a different case. I would highly encourage you to find someone to talk with that knows intensive about the NF wrap and the augmentation of the Linxs. You can YouTube, Dr. Steven Bowers discussing the Linxs device.
Good luck!
Carolyn

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I had a Nissen fundaplication done in 2011. About 7 months later I was continuing to have many stomach issues and continuing to lose weight and had developed gastroparesis. As a result,I was referred to Mayo Clinic in Arizona. After extensive testing at Mayo, it was seen that the original fundaplication surgery was too tight and a redo laparoscopic fundaplication conversion to a Toupet was necessary. I continue to be most thankful for the excellent surgerical procedure performed byDr. Richard Schlinkert at Mayo Hospital in Arizona

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@mariann

I had a Nissen fundaplication done in 2011. About 7 months later I was continuing to have many stomach issues and continuing to lose weight and had developed gastroparesis. As a result,I was referred to Mayo Clinic in Arizona. After extensive testing at Mayo, it was seen that the original fundaplication surgery was too tight and a redo laparoscopic fundaplication conversion to a Toupet was necessary. I continue to be most thankful for the excellent surgerical procedure performed byDr. Richard Schlinkert at Mayo Hospital in Arizona

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I was referred to the clinic in Rochester but then I received a letter from Mayo stating there was nothing they could do. Has anyone experienced this? I feel that a reversal is necessary but I don’t expect it to fix all my problems. I’m willing to go anywhere to any doctor to get help. I live in the northwest and have yet to find a surgeon for reversal.

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@kozlo52

give it some time. I had a very large hiatal hernia repair in nov., 2016 repaired and a 360 gree fundoplication . I have had heartburn like symptoms ever since. I have finally been disgnosed with a "hypersensitive esophagus" which means it is very susceptable to this heartburn feel although the bravo 48 hour test that was done indicates i am neutral on ph; there is no acid reflux. The link also has it's problems. My current solution is to be on atavan 4 times a day to relax the esophagus muscles. Go back to the original surgeon and tell him your problems. Maybe you have my condition. The AMA solution for my problem is hypnotism (which after 12 sessions and $1100 out of my pocket did not work); thus the atavan, even though i am not depressed. The dangers of staying on the antacids is : possible osteoporosis; kidney failure; dementia;altheimers disease. Have you had any food sticking? I had 7 incidences of this and had to have 3 dilations in 5 months. beast wishes….. kozlo52

Jump to this post

I’ve had food get caught leading to an emergent egd with dilation. I’ve been dilated 4 times in 6 months. I too had a 360 Nissen and nothing but problems since. However, my ph impedance and swallow study were normal. I was told by the physician to just learn how to deal with it.

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@carolynlivingjaks

My son had a Nissan fundoliplication in 2014 and it started a living hell. The wrap was too tight and no matter how many dialitions were done (as it was explained when the wrap is too tight it's like trying to stretch a rubber band)! It won't work. He lost significant weight which has caused more health problems. I would encourage you to see if you can get to a Mayo clinic. My son's surgeon is awesome, Dr. Steven Bowers in Jacksonville. He undid the wrap and did the Linxs. You are able to eat and in fact must eat the day of surgery to keep the magnetic beads moving and not be taken over my scar tissue. My son due to losing so much weight now has a feeding tube and Dr. Bowers diagnosed with him SMA syrndorme. However, unbeknownst to any of us including Dr. Bowers. My 21 year old son's body makes very fibrous tough scar tissue. Therefore, only 2 out of 13 beads are currently moving and he still has difficulty swallowing and always will for the rest of his life. Which means he may have a feeding tube for the rest of his life too. But he's a different case. I would highly encourage you to find someone to talk with that knows intensive about the NF wrap and the augmentation of the Linxs. You can YouTube, Dr. Steven Bowers discussing the Linxs device.
Good luck!
Carolyn

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@carolynlivingjaks Dr Bowers did two surgeries on me ( another surgeon did a nissen fundoplication undo). Dr Bowers is an awesome planner and surgeon and tries for the best solution for you or your family member. The nurses, techs, ect are pretty good there too. I had a paraesophageal hernia from hell.. just would not stay repaired. It kept pulling my stomach into my chest. I was on a feeding tube for over a year… for most of the time 24 hours a day and toting the bag around sucked.. propping 30° angle at night sucked. I still has esophagus problems from the damage of the years of acid. I see Dr Dawn Francis, gastroenterologist, and her NP for them.

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I would highly recommend Mayo Jacksonville. Dr. Steven Bowers, bariatric surgery.

Liked by ed_85

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@carolynlivingjaks

My son had a Nissan fundoliplication in 2014 and it started a living hell. The wrap was too tight and no matter how many dialitions were done (as it was explained when the wrap is too tight it's like trying to stretch a rubber band)! It won't work. He lost significant weight which has caused more health problems. I would encourage you to see if you can get to a Mayo clinic. My son's surgeon is awesome, Dr. Steven Bowers in Jacksonville. He undid the wrap and did the Linxs. You are able to eat and in fact must eat the day of surgery to keep the magnetic beads moving and not be taken over my scar tissue. My son due to losing so much weight now has a feeding tube and Dr. Bowers diagnosed with him SMA syrndorme. However, unbeknownst to any of us including Dr. Bowers. My 21 year old son's body makes very fibrous tough scar tissue. Therefore, only 2 out of 13 beads are currently moving and he still has difficulty swallowing and always will for the rest of his life. Which means he may have a feeding tube for the rest of his life too. But he's a different case. I would highly encourage you to find someone to talk with that knows intensive about the NF wrap and the augmentation of the Linxs. You can YouTube, Dr. Steven Bowers discussing the Linxs device.
Good luck!
Carolyn

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Yes he is. When I saw him last August 2017. He said he was with my son until he's 100 percent well. Not many surgeon's care as much as he does. And Jenna his nurse! The best ever!

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@mariann

I had a Nissen fundaplication done in 2011. About 7 months later I was continuing to have many stomach issues and continuing to lose weight and had developed gastroparesis. As a result,I was referred to Mayo Clinic in Arizona. After extensive testing at Mayo, it was seen that the original fundaplication surgery was too tight and a redo laparoscopic fundaplication conversion to a Toupet was necessary. I continue to be most thankful for the excellent surgerical procedure performed byDr. Richard Schlinkert at Mayo Hospital in Arizona

Jump to this post

I would try to get in to see Dr. Bowers in Jacksonville, Mayo.
He is cutting edge surgeon. It's worth the trip.

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