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Does anyone have a solution to help manage Reclast side effects?
Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?
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I broke 2 vertebrae’s by picking up a pack of water. Thats when I found out I had Osteoporosis. After surgery my lower back hurts, if I reach for anything I get sharp pain in my upper back . I recently did a little painting in my grandson room and my back where ribs end and front are so sore to touch. I went to my Dr he said it might be a UTI. But I don’t think it would be so hard to breathe in or even get up out of bed. It hurts so bad to even cough.
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3 Reactions@margaret3363 - I'm so sorry to hear that. So frustrating! Like you, I will keep trying to get better, and I agree that no amount of money will make the symptoms go away. Still, maybe it will protect others from these debilitating side effects. Thank you for keeping us posted.
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2 Reactions@micheleroyalty7 This approach of stopping bone loss is counterproductive! The normal bone modeling process involves losing old bone and building new bone. This medication stops the process and leaves you with old brittle bones, more likely to fracture. I don't think you did as much research as you needed to. My dentist said they will refuse to do dental work on patients taking those kinds of drugs. And it can take years to get out of your system once you stop too. Building strong bones is making sure you get the right minerals, which is the right kind of Calcium, Vit D3, Vit K2/MK-7, Vit C, and Magnesium 1:2. It's hard to get it all through food, so a supplement like BoneUp is essential, along with weight-bearing exercise; walking, aerobics, basically any weight-bearing activity, even washing the car. Just be consistent. Drugs had side effects and are in a class of bisphosphonates.
Bisphosphonates, such as etidronic acid (HEDP), are used in cleaning products primarily for their corrosion inhibition and chelating properties. They help prevent scale and corrosion in various industrial applications, including cooling water systems and detergents.
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2 ReactionsRecast decreases bone brakes by 50% over 3 years. Bone brakes in women
over 65 is very common and at that age bone loss is very common. Hip
replacement is not possible so nursing home care is common. Most insurance
doesn't cover this unless the person is so poor they can get Medicaid. The
pain level is high and many cannot walk.
This drug has been studied in cancer patients too, which I research.
If a patient has dental problems this drug is not recommended.
The side effect are low. I had no side effects.
As I am 78 years old I figure I have 8 years left to live. I moved to a 1
story home with space for home care.
This is FDA approved and the figures I quote are from clinical trials
conducted 20 years ago. Medicare has a high database that proves the
reduction in bone loss is true after all these years. They keep track of
all doctor visits and hospitalizations.
There are many databases and ongoing research in this country and
worldwide. The National Library of Medicine has a Hugh database as well.
The Mayo Clinic also recommends this treatment.
Michele Wilson PharmD MPH
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4 ReactionsThanks
Michele
@diddlyd
I suggest you look up zoledronic acid on Wikipedia.
You don’t have a medical background, but Wikipedia is pretty thorough.
Zoledronic acid does increase cell mass in bone marrow, and reduces cell death in the bone marrow.
Your conclusion that its use is counterproductive in contradicted by the hundreds of thousands of patient data available.
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3 Reactions@mtgrl2561d
You may have experienced another vertebra fracture or the fracture of a rib. Are you seeing a endocrinologist or taking osteoporosis medication. What surgery was done fusion, kyphoplasty
I'd want imaging. Our risk additional fracture rises after a fracture, but fractures can cause pain for a long while. And sometimes the muscles are sore from the new configuration of the spine.
Did your doctor test for the possible UTI?
@micheleroyalty7 I sure regret getting the Reclast injection. Have never hurt so bad. Back surgery was a piece of cake compared to the pain I now have.
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3 Reactions@micheleroyalty7 I don't know where those statistics come from, but I doubt you can just credit a drug just based on the number of fractures at a given period of time or from a control group for that matter. Bone that is not remodeled is poor brittle bone, as in you become more like to fracture when having a fall, not the other way around. In a Dex Scan, bone strength will look better because it fills the porous areas in the bones, but that's it; long-term use of these drugs becomes the problem.
"Patients on long-term bisphosphonate therapy may experience atypical fractures, particularly in the femur.
These fractures occur in areas of the bone that are not typically prone to breaks, indicating a change in bone quality."
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1 ReactionThe FDA approves a lot of things. "Risks of side effects outweighed by the benefits" is a good one, and they recall things after approving them, too. This is a government organization that relies on party testing; they are not scientists nor make guarantees, which is why you get this long piece of paper inside the box of drugs! No doubt many of these statistics are coming from the Dex Bone Scans, which, of course, show the porosity of the bones has improved, but that they can claim that these bisphosphonates have reduced fractures is questionable. And not everyone knows they need dental work before taking this stuff. I would compare the quality to the crusty, hard water deposits that accumulate around your faucets.
The problem as we age is the balance of remodeling bone gets out of balance, and we lose more than we build and that can be attributed to being less active, not eating or taking in enough calcium to build bones. Calcium is used for all sorts of other things in the body besides bones, where it is stored. If the rest of the body needs calcium and there isn't enough in the blood, then it pulls it from the bones. Drinking a lot of sodas is a big culprit as it contains phosphoric acid and is said to contribute to bone loss in women.
I had a Dr prescribe Forteo injections, which is the opposite of these bisphosphonate approaches; it works on building bone. The thing is I did some research, and the scientific testing on rats for two years showed it built bone, but the bones developed bone cancer. Testing on humans was only done for two years as a result, therefore the FDA only approved the drug could be taken for two years, how about that. And after taking that risk and stopping it, you don't retain the bone, you gradually lose it what you gained. Same with HRT, the pharmaceutical companies played with all kinds of concoctions of synthetic hormones, from pure estrogen, to combo progesterone and estrogen, until it was finally pulled off the market because of women getting uterine cancer and breast cancer. We then become statistics! But as long as they put the warnings in with these drugs, they're off the hook.