Does anyone have a solution to help manage Reclast side effects?
Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?
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@dannyandebbie its tough. Im allergic to so many meds. This forteo was bad...all statins make me very sick
Onward upward! Thanks
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1 Reaction@alenef one thing to do remember! Your endocrinologist is Lacking a lot if they tell you your symptoms are not related to your Reclast infusion. There is far too much ligature available to support your symptoms and then some! I honestly do not know why the FDA has not pulled it from the market. I know many have reported the side effects that they have experienced; including myself. Two years later, still same symptoms along with new ones. I fear the loss of eye sight as I keep experiencing inflammation in my left eye and very light sensitive; going to Eye doctor this coming Tuesday! I had none of these symptoms prior to infusion. Best of Luck to you!
@dannyandebbie the symptoms i had were.from.the Forteo...OMG
I feel so badly for all those on this site who have experienced reactions to the Reclast infusions. I had my first one in 2022 at James Lovell in Chicago area. I had no issues at all. I moved to New Mexico and had a DEXA scan and my new endocrinologist recommended a holiday and with no discussion as to why a holiday after one infusion, but who was I to question her. In November of 2024 I was given another Zoledronic Acid infusion. Things were fine for about six weeks. I got up to use the restroom and fell because my left leg had excruciating pain and I collapsed. For months I was in the most horrible pain I had ever felt. I went from being a very active 74 year old to practically house bound. I had extreme pain in my left leg from lower back at waistline down into my buttock, or down the inside and/or outside of thigh. The tingling of nerves and pain always stopped at above my knee. I had to use a cane for the first time in my life. This went on until right after Thanksgiving about a year later. The pain suddenly stopped. I had made up my mind not to have another infusion. However, my endocrinologist was very insistent that my pain Was Not from the Reclast and I needed to continue. Because I was feeling back to my old self, I succumbed to her suggestions and in January 2026 had another infusion. Right about two months I was hit with horrible pain in same area but this time in my groin as well as back of right leg to where I cannot bend my leg along with the other pains. I find it interesting that this pain is so intense and no matter the medications I have been given including Diclofenac, Meloxicam and Tramadol it does not touch the pain. It is so bad when I wake up I cry out. My poor dog. Needless to say I take Vitamin D3 and Calcium religiously. I am sorry for writing so much, but I have had three major joint replacements and even the total reverse was a walk in the park. I don’t understand why we aren’t getting any good answers. I have learned more from the internet than my doctor. I had to strongly request X-rays and MRIs to make certain I had no fractures. All I know is I will never have another infusion.
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2 Reactions@cathymal
just had my first reclast infusion 5 days ago - within 24 hours pain was also absolutely unbearable from toes to ears - nothing touched or relieved it! I was moved from T;ylmos to Fortero with significant side effects and was encouraged to do Reclast. My bad that I did not research - As of today 5 days after infusion am still in significan pain and can barely move my neck - grateful that body bone pain is gone but terrified it may return - I will not get this done again. If they they call this reaction flu like symptoms it is NOT and it appears enough of us have similar experience.
Share this with as many as possible before they get an infusion! I am 81 and no sissy with pain - just saying we are not being fully informed.
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8 ReactionsI had the Reclast infusion over a year ago and, my side effects still to this day is: a rash and blisters that itch from morning to night. I am so tired of it and yes, it is a small percentage of people who have this problem, and my dermatologist told me that it might take a year to a year and a half to two years to get out of my system.
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3 Reactions