Does anyone have a solution to help manage Reclast side effects?

Posted by dingus @dingus, Aug 15, 2024

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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micheleroyalty7 | @micheleroyalty7 | 3 hours ago

I did clinical research on this drug years ago. For cancer patients we saw osteonecrosis of the jaw in patients with poor dental health. It was recommended not to use for those patients.
As the drug was approved for osteoporosis the dose and frequency was reduced.
I am 78 and my latest Dexa scan showed osteopenia in my femur. I was concerned as I live alone. After considerable research I decided to move forward. I have no other diseases, hydrated like crazy, requested a longer infusion of 30 minutes. I have no significant side effects after 5 days. I am staying at home, careful with food, continuing with drinking lots of water.
The research shows 3-10% of patients have flu symptoms. I didn’t have that.
Also, in cancer patients, they had bone pain initially as the drug does work within the bones to decrease bone loss. I had no bone pain at all.
I feel the need to rest, which I do. But I have 2 dogs to care for. Research shows a 50% decrease in bone fractures over 3 years. That was why I decided on Reclast. So far so good.
However any unusual side effects should be reported to the prescribing Doctor. I am a licensed pharmacist and did report the necrosis of the jaw to the FDA. I did that for about 30 patients, but over 100,000 were receiving the drug at high doses.