Radiation therapy for vulvar cancer

Posted by vsinn2000 @vsinn2000, Nov 5, 2017

I am trying to find information from others who have had this treatment. My apointment is soon but my anxiety needs information sooner.

@hopeful33250

@vsinn2000 Oh Vicky,

I am so glad that the day is over! I’m sorry that it was so hard for you. We know that you are trying – and we also know how difficult it must be.

You said that “reality smacked me hard.” When you are feeling better and more rested, feel free to share, as you are comfortable doing so, what that means to you.

Rest well and take care,

Teresa

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Teresa,
I have never done anything as hard as this. Every single decision I make could literally be life altering.
I have made the process something I can handle, a list of requirements. Today the last item got checked off the list.
It hit hard, and all at once. I can’t even voice it. I fell apart, pulled myself back together and repeated that process several times over. I am getting radiation and chemo for cancer. Period. Not – I will be, or am deciding on, or exploring this option. I. Have. Cancer.
The simulation – designed to push a person like me over the edge so the only place to go is up. I’m sure of it. Had Colleen not gotten some information to me it would have been very bad.
The virtual hand holding got me through the CT. The girls there were very nice and did their best. Rachel went above and beyond!
I had no idea it would turn into a three apointment day. By the end of the first one I was reeling. Angie, from the cancer center, was there in the waiting room speaking with another patient. She came over right away, quickly helped sort some things out, and spent time explaining things and waiting until she was sure the mental fog was lifting and my feet were back under me again.
My husband was already in agreement with me, that Mayo is where I need to be. I’ve shared some posts with him, told him about others, and mentioned contacting or speaking with still others. But he truly saw the whole picture today.
We agree, if anyone can get me through this, it’s the Mayo “family”.
Thank you,
Vicky

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@hopeful33250

@vsinn2000 Oh Vicky,

I am so glad that the day is over! I’m sorry that it was so hard for you. We know that you are trying – and we also know how difficult it must be.

You said that “reality smacked me hard.” When you are feeling better and more rested, feel free to share, as you are comfortable doing so, what that means to you.

Rest well and take care,

Teresa

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Vicky, I simply can’t imagine what you powered through today. I knew it was going to be rough. I thought about you all day. I’m so proud that you are taking charge of the things you can control, telling people what they need to know to help you cope and letting your cancer team show they care. I realize that’s not easy.

Thank you Rachel and Angie. And give that dear husband of yours a special hug tonight from all of us who couldn’t be by your side physically. He’s a rock. I hope you both get a good night’s sleep tonight.

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@hopeful33250

@vsinn2000 Oh Vicky,

I am so glad that the day is over! I’m sorry that it was so hard for you. We know that you are trying – and we also know how difficult it must be.

You said that “reality smacked me hard.” When you are feeling better and more rested, feel free to share, as you are comfortable doing so, what that means to you.

Rest well and take care,

Teresa

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PS: I’m glad you had the Connect posts to show the team and that they helped.

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@hopeful33250

@vsinn2000 Oh Vicky,

I am so glad that the day is over! I’m sorry that it was so hard for you. We know that you are trying – and we also know how difficult it must be.

You said that “reality smacked me hard.” When you are feeling better and more rested, feel free to share, as you are comfortable doing so, what that means to you.

Rest well and take care,

Teresa

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Colleen,
Believe me, it was truly a group effort. The support from everyone gave me the strength to gut through it.
I will certainly pass that on. He fully has my back and couldn’t be more supportive.
My rock, the team and my virtual pillars of support. I’ve got this!
Thank you!
Vicky

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@hopeful33250

@vsinn2000 Oh Vicky,

I am so glad that the day is over! I’m sorry that it was so hard for you. We know that you are trying – and we also know how difficult it must be.

You said that “reality smacked me hard.” When you are feeling better and more rested, feel free to share, as you are comfortable doing so, what that means to you.

Rest well and take care,

Teresa

Jump to this post

@vsinn2000 Vicky,

Please know that we are all incredibly proud of you and happy that you can “power through” this experience. I am glad that you have the “Mayo family” in your corner. We are all pulling for you.

Blessings and rest well,

Teresa

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Thanks to both of you! We will both be ready for some sleep. About an hour to go before we get home.
Hugs!

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A special thank you to Colleen and Teresa passed on from my rock. I’m to let you know how very much he appreciates you both and the support you give me.

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Well, here we go. 15 hours till my first radiation treatment. I guess I’m ready. We’re driving up in the morning, so I’ll be busy fussing with last minute stuff until late. The ride up I want to sleep through. Labs and chemo evaluation after radiation so I’ll update later in the afternoon.
Vicky

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@vsinn2000

Well, here we go. 15 hours till my first radiation treatment. I guess I’m ready. We’re driving up in the morning, so I’ll be busy fussing with last minute stuff until late. The ride up I want to sleep through. Labs and chemo evaluation after radiation so I’ll update later in the afternoon.
Vicky

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Safe travels. I’ve got my virtual hand ready for squeezing. 🙂

Liked by vsinn2000

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Thank goodness for that! Is it gonna be available for labs and the chemo evaluation I have after that? You’re going to need some PT for that hand by the time I get through this! I really need to give you a hugeneral hug and tell you thank you in person. You have no idea how big a part you’ve been to get me through this!
Hugs,
Vicky

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@vsinn2000

Thank goodness for that! Is it gonna be available for labs and the chemo evaluation I have after that? You’re going to need some PT for that hand by the time I get through this! I really need to give you a hugeneral hug and tell you thank you in person. You have no idea how big a part you’ve been to get me through this!
Hugs,
Vicky

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@vsinn2000

Wishing you well and saying a prayer for you!

Teresa

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Thanks ladies!

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I did it! Almost no tears through radiation. The gel conducting square is very painful so that still makes tears roll when they snug it up and then peel it off. Chemo, well, I’m working on that. They are working very hard to head off side effects and keep them from getting started at all! Very much appreciated! Tonight has been ok. Still exhausted but everyone is very sup portobello and hubby did dishes for the first time in 28 years! Centerstone is taking good care of us. Thank you both again, very much,
Vicky Sinn

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@vsinn2000

I did it! Almost no tears through radiation. The gel conducting square is very painful so that still makes tears roll when they snug it up and then peel it off. Chemo, well, I’m working on that. They are working very hard to head off side effects and keep them from getting started at all! Very much appreciated! Tonight has been ok. Still exhausted but everyone is very sup portobello and hubby did dishes for the first time in 28 years! Centerstone is taking good care of us. Thank you both again, very much,
Vicky Sinn

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@vsinn2000 Hello Vicky:

I’m so pleased to hear that you got through it! I applaud you for your courage. (Can you hear the applause?)

I’m sure you are tired – I hope you rest well – tell hubby we said thanks for doing the dishes!

Teresa

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Teresa,
I can hear hear it! It was happening right along with my mental happy dance that I was doing. Lol.
I was more weary than tired. I think it’s the emotional roller coaster that got me. Last night I was flat out tired. This morning isn’t terribly bad but I have a visit with the doc and radiation so we’ll see after that.
Hubby made a trip to the store for groceries that are tummy friendly and a few medical supplies to help comply with chemo safety guidelines. He even brought my dog, Justice, a new squeaky toy and a bag of his favorite treats. He fixed me BLT’s, one of my favorites and knows I’ll eat them. But he also wanted to get them fixed before any smell sensitivity kicked in and ruined them for me.
Dishes, favorite meals, special shopping, bedding changes in the middle of the night, dog duty during treatments- yes, he is one special guy!
Hugs back to you,
Vicky

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