Radiation therapy for vulvar cancer

Posted by vsinn2000 @vsinn2000, Nov 5, 2017

I am trying to find information from others who have had this treatment. My apointment is soon but my anxiety needs information sooner.

Well then you make sure you bring yourself on down and we’ll do a girls day! I’m totally serious!

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I’m struggling. I suppose I slipped back into wonder woman mode and then just plain got knocked back down. I’ve been trying desperately to stay strong and positive but the last couple of days have just done me in. I have brain fog like never before in my life, can’t stay organized and constantly misplace things. Monday will probably be a nightmare for my care team. I have the feeling a massive meltdown is just around the corner. Rocky had to go home for the weekend to deal with a malfunction in the heating system at home so my foundation is extra shaky. My poor service dog is getting a workout this weekend. Tears are always ready to bust loose and every side effect I’ve avoided, or ignored, is chasing me around. I haven’t felt like this for weeks and now feel like it’s falling apart.
Is this normal or am I truly loosing g my mind?
Vicky

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@vsinn2000 Vicky,

I am so sorry to hear about your struggles right now. On Monday I feel sure that your care team will understand where you are and no one will think that you are losing your mind. The brain fog could be a response to the chemo. I have heard of this before. When you see your care team on Monday please tell them about it. They have probably seen this before in other patients.

Today, please try to rest, eat “comfort foods.” watch some comedies on TV, rest, and of course pet your therapy dog.

Will Rocky be back tomorrow? Please keep posting today as you need to – we are still here for you.

Teresa

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@vsinn2000

I’m struggling. I suppose I slipped back into wonder woman mode and then just plain got knocked back down. I’ve been trying desperately to stay strong and positive but the last couple of days have just done me in. I have brain fog like never before in my life, can’t stay organized and constantly misplace things. Monday will probably be a nightmare for my care team. I have the feeling a massive meltdown is just around the corner. Rocky had to go home for the weekend to deal with a malfunction in the heating system at home so my foundation is extra shaky. My poor service dog is getting a workout this weekend. Tears are always ready to bust loose and every side effect I’ve avoided, or ignored, is chasing me around. I haven’t felt like this for weeks and now feel like it’s falling apart.
Is this normal or am I truly loosing g my mind?
Vicky

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@vsinn2000, Vicky, I just read your post, and I want to tell you that you are indeed normal and not loosing your mind.

I am a organ transplant recipient and I have experienced what you are feeling. I want to say that none of us can be wonder woman all the time, even though we try and think we should be. Don’t be hard on yourself. And don’t plan to do anything, except follow any medical directions and simply focus on ‘breath in, breath out”. Forget the organization, and just pile the things you need regularly in a convenient place. Like you, my husband was my caregiver, and we were away from home. I can imagine your emptiness without him at your side temporarily.

And it is okay to cry! I think of a good cry as a stress relief, not as a failure or giving up. I cried a lot. My husband cried, too. And people always told me how brave I was – well that is not true.

Teresa has already given you good advice.
God bless you, your husband, and your service dog.
Rosemary

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@vsinn2000

I’m struggling. I suppose I slipped back into wonder woman mode and then just plain got knocked back down. I’ve been trying desperately to stay strong and positive but the last couple of days have just done me in. I have brain fog like never before in my life, can’t stay organized and constantly misplace things. Monday will probably be a nightmare for my care team. I have the feeling a massive meltdown is just around the corner. Rocky had to go home for the weekend to deal with a malfunction in the heating system at home so my foundation is extra shaky. My poor service dog is getting a workout this weekend. Tears are always ready to bust loose and every side effect I’ve avoided, or ignored, is chasing me around. I haven’t felt like this for weeks and now feel like it’s falling apart.
Is this normal or am I truly loosing g my mind?
Vicky

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Rosemary,
Thank you for your kind reassurance. I am just so out of sorts and those strong arms will be back today to put my world right again. I’m just trying to hold on!
Just gonna cuddle my dog and wait on him to get here!
Vicky

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@hopeful33250

@vsinn2000 Vicky,

I am so sorry to hear about your struggles right now. On Monday I feel sure that your care team will understand where you are and no one will think that you are losing your mind. The brain fog could be a response to the chemo. I have heard of this before. When you see your care team on Monday please tell them about it. They have probably seen this before in other patients.

Today, please try to rest, eat “comfort foods.” watch some comedies on TV, rest, and of course pet your therapy dog.

Will Rocky be back tomorrow? Please keep posting today as you need to – we are still here for you.

Teresa

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Theresa
I will definitely be asking some questions on Monday! The rock will be back today so me and the dog, My 7up and a box of cheese nips are snuggled in until he gets here!
Thanks for that virtual hand!
Vicky

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@vsinn2000

I’m struggling. I suppose I slipped back into wonder woman mode and then just plain got knocked back down. I’ve been trying desperately to stay strong and positive but the last couple of days have just done me in. I have brain fog like never before in my life, can’t stay organized and constantly misplace things. Monday will probably be a nightmare for my care team. I have the feeling a massive meltdown is just around the corner. Rocky had to go home for the weekend to deal with a malfunction in the heating system at home so my foundation is extra shaky. My poor service dog is getting a workout this weekend. Tears are always ready to bust loose and every side effect I’ve avoided, or ignored, is chasing me around. I haven’t felt like this for weeks and now feel like it’s falling apart.
Is this normal or am I truly loosing g my mind?
Vicky

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@vsinn2000, Vicky,I see a beautiful image in my mind. And I can feel the love.
Rosemary

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@hopeful33250

@vsinn2000 Vicky,

I am so sorry to hear about your struggles right now. On Monday I feel sure that your care team will understand where you are and no one will think that you are losing your mind. The brain fog could be a response to the chemo. I have heard of this before. When you see your care team on Monday please tell them about it. They have probably seen this before in other patients.

Today, please try to rest, eat “comfort foods.” watch some comedies on TV, rest, and of course pet your therapy dog.

Will Rocky be back tomorrow? Please keep posting today as you need to – we are still here for you.

Teresa

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Hi Vicky, @vsinn2000

The hand is always there, just squeeze it as you need to!

Praying that all goes well for you today and tomorrow.

Teresa

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Thanks hero! Rocky should be here in a couple hours so those hugs will help too. I think he got all the heating issues taken care of.

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@vsinn2000

Thanks hero! Rocky should be here in a couple hours so those hugs will help too. I think he got all the heating issues taken care of.

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Hi Vicky,
I’d like to add a message to tuck you in for the night. I’m sure your husband is with you now or will be very shortly. Breathe deep and sleep well. We’re with you tonight and tomorrow. One step at a time. One breath at a time.

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He finally made it safely! Reports that heating issue is fixed. But we’re still getting a spare part, just in case. Took him a while but he finally got me calmed back down. Thank you for the encouraging words!
Vicky

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Hi Vicky, @vsinn2000

How are you feeling these days? Thinking about you and wishing you well.

When is your next treatment?

Teresa

Liked by vsinn2000

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@hopeful33250

Hi Vicky, @vsinn2000

How are you feeling these days? Thinking about you and wishing you well.

When is your next treatment?

Teresa

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Hey lady! I feel incredibly bad for being out of contact for so long. I’m home and desperately trying to recovery from chemo and radiation. The level of fatigue is astounding and has had me pretty much just plain down and out. I go back in mid April for an evaluation and a decision on a surgical fix or more treatments to shrink things. So I’m in a recovery and hold pattern right now. I will stay in more frequent contact since I can now stay awake for more than a couple hours at a time. Miss you all,
Vicky

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@vsinn2000
Hi Vicky:

So good to hear from you! I am glad that you are in the recovery process right now. I’m sure that you must be extremely tired from all of your treatments. Keep resting and keep taking good care of yourself!

Teresa

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I lost the thread and finally found it again. I've been reading the replies from "talking frankly" and doing a whole lot of thinking. My birthday was a couple weeks ago and during one of those sleepless nights it hit me. Hard. How many more birthdays do I get? Wow. I went from there. It was hard to shake the train of thought but it still is a question we all think about. I guess I was blocking myself from going there. Not a very good thought to have but I need to be responsible about things and make sure my husband knows what needs to be taken care as far as running the house and where papers are, etc. Since I handle all of that. Time to put on the big girl britches!

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