Radiation therapy for vulvar cancer

Posted by vsinn2000 @vsinn2000, Nov 5, 2017

I am trying to find information from others who have had this treatment. My apointment is soon but my anxiety needs information sooner.

@vsinn2000

Thanks for sharing that wonderful news, you must feel relieved! I’ll be thinking about you as you go to Mayo on the 21st.

Please keep us posted as you can,

Teresa

REPLY

Will do! I am amazingly relieved. I can’t believe the difference it makes. Thank you!

REPLY

I am terrified to do this exam under sedation tomorrow morning. I realize it is a diagnostic step that has to be taken but the anxiety over having it done is physically sickening. For me it’s a violation of dignity I struggle with. The doctor not respecting my fears and pain and attempting to start the exam during the office visit was bad enough, and part of the reason I am going to Mayo. If they hadn’t advised me to keep the apointment I would not. I am on the edge of lose control panic. That doctor undid years of progress for me and I actually flinched away from my husband when he put his hand on my hip. It makes me angry that he took that from me, and devastated my husband. He’s done so much to help me overcome my fears and I flinched away from a simple gesture of comfort. I know it sounds irrational to anyone that hasn’t been there. I can’t help it. I really am afraid.
Thanks for giving me a place to voice my fears and know I won’t be judged. It helps keep me from going over the edge, a bit.

REPLY

@vsinn2000

My heart goes out to you, @vsinn2000. I am so sorry that you have to endure this type of diagnostic evaluation. For any of us who have been physically violated as a child, teen or adult, we understand the emotional ramifications of such medical procedures.

Do your best to take some deep breaths, do some tensing and relaxing of all of your muscle groups and realize that this will soon be over. If possible, put your mind in a safe place – a place with lovely scenery, something that soothes you.

Will you let us know how it goes after the procedure?

Teresa

REPLY

Thanks Theresa. I’ve come to rely on your calming, sincere advice a lot the last few weeks. I am in the car, feels like I’m heading to my execution. Crying all the way. I’m gonna hang onto your kind, supportive words to get through this!
Hugs,
Vicky

REPLY
@vsinn2000

Thanks Theresa. I’ve come to rely on your calming, sincere advice a lot the last few weeks. I am in the car, feels like I’m heading to my execution. Crying all the way. I’m gonna hang onto your kind, supportive words to get through this!
Hugs,
Vicky

Jump to this post

@vsinn2000

Bless you Vicky!

Teresa

REPLY

Hello Vicky, @vsinn2000

I’ve been thinking about you and yesterday’s appointment. I hope that all went well.

Teresa

REPLY
@hopeful33250

@vsinn2000

My heart goes out to you, @vsinn2000. I am so sorry that you have to endure this type of diagnostic evaluation. For any of us who have been physically violated as a child, teen or adult, we understand the emotional ramifications of such medical procedures.

Do your best to take some deep breaths, do some tensing and relaxing of all of your muscle groups and realize that this will soon be over. If possible, put your mind in a safe place – a place with lovely scenery, something that soothes you.

Will you let us know how it goes after the procedure?

Teresa

Jump to this post

Hi Teresa,
As expected, I lived through it. Not without a boatload of panic and a whole lot of understanding from my husband and an absolutely amazing nurse and anesthesiologist. I can’t remember the last time I actually trusted a hc worker. Yes, I can. November 2005. I suppose people have a hard time understanding the difference between seeing the doctor and trusting the doctor. It’s a giant step, surrendering total control to someone. I can’t make biofeedback work, not in a panic situation. I wish it would! I use it during a migraine or trying to sleep but anything where I’m amped up to panic it just won’t work. I’m just exhausted now. Short naps when it just makes me feel wiped out. Tomorrow will be better. Seems like any test day and the next day are just bottom of the barrel kid of days.
Take care,
Vicky

REPLY

Hi Teresa,
It’s over anyway. More waiting. I’m learning there is a lot of that. I’ll update you if they call me.
Vicky

REPLY

Hi Vicky, @vsinn2000

I’m glad that it is over – the waiting game is such a tough game to play, isn’t it?

I’m also pleased that you had such an amazing nurse and anesthesiologist, what a blessing that was for you! And of course, your husband was there to support you as well.

Rest well, Vicky, it takes me several days as well to recover from any type of anesthesia, so I understand the two days of sleepiness.

Teresa

Liked by Lisa Lucier

REPLY
@hopeful33250

Hi Vicky, @vsinn2000

I’m glad that it is over – the waiting game is such a tough game to play, isn’t it?

I’m also pleased that you had such an amazing nurse and anesthesiologist, what a blessing that was for you! And of course, your husband was there to support you as well.

Rest well, Vicky, it takes me several days as well to recover from any type of anesthesia, so I understand the two days of sleepiness.

Teresa

Jump to this post

Hey Teresa,
I am sleepy and sore. I’m hoping tomorrow I have a bit more energy. Thanks for your kind words. I think at this point my husband deserves kudos much more than I do! Lol. Hope you are doing well and have a great weekend.
Vicky

REPLY
@hopeful33250

Hi Vicky, @vsinn2000

I’m glad that it is over – the waiting game is such a tough game to play, isn’t it?

I’m also pleased that you had such an amazing nurse and anesthesiologist, what a blessing that was for you! And of course, your husband was there to support you as well.

Rest well, Vicky, it takes me several days as well to recover from any type of anesthesia, so I understand the two days of sleepiness.

Teresa

Jump to this post

Thanks, Vicky. Yes, I’m looking forward to the weekend. There are some good movies out now, I might see one.

I hope you and your hubby have a good weekend as well.

Teresa

Liked by Lisa Lucier

REPLY

Teresa,
Did you make it out to a movie? I’m not sure if weather changes affect how you feel? It was windy but fairly warm here. I made it through pool league. They are a great group of folks that sent me off with bunches of well wishes and prayers. Every bit of support helps! I’m learning that I don’t have to try and be wonder woman! I should be sleeping but I’m on yet another search for more information. I got a phone call directly from the Dr. I will be seeing tomorrow. I am pleasantly surprised by that and it does reinforce that Mayo is going to be the right choice for me. It seems this tumor size is extraordinarily large and won’t be a radiation and surgical fix. Now terms like chemo and colostomy are thrown in. That I did not see coming so my positive attitude has taken a hit. I have a lot of questions. I’m going to grab a quick shower and a snack, then try to get a couple hours sleep before we head out. Its about four and a half hours so I’ll nap in the car. Sent my husband off to bed about 11. I’ll update tomorrow when I’ve asked my questions and have some idea of what’s going to have to happen.
Vicky

REPLY
@vsinn2000

Teresa,
Did you make it out to a movie? I’m not sure if weather changes affect how you feel? It was windy but fairly warm here. I made it through pool league. They are a great group of folks that sent me off with bunches of well wishes and prayers. Every bit of support helps! I’m learning that I don’t have to try and be wonder woman! I should be sleeping but I’m on yet another search for more information. I got a phone call directly from the Dr. I will be seeing tomorrow. I am pleasantly surprised by that and it does reinforce that Mayo is going to be the right choice for me. It seems this tumor size is extraordinarily large and won’t be a radiation and surgical fix. Now terms like chemo and colostomy are thrown in. That I did not see coming so my positive attitude has taken a hit. I have a lot of questions. I’m going to grab a quick shower and a snack, then try to get a couple hours sleep before we head out. Its about four and a half hours so I’ll nap in the car. Sent my husband off to bed about 11. I’ll update tomorrow when I’ve asked my questions and have some idea of what’s going to have to happen.
Vicky

Jump to this post

Hello Vicky @vsinn2000

I’m so pleased to hear from you! I’m especially pleased that you heard personally from the doctor at Mayo who you will be seeing. How nice that he took the time to talk with you prior to your appointment. That does show a very gracious quality! Also, it was good that you had a group of friends to send you off with well wishes and prayers! You deserve good wishes and supportive people in your life.

Your comment that you don’t feel like you have to be (as you say) “wonder woman” is a big step in the right direction. That is a bit too much responsibility for any of us to carry out.

I can understand your concern about the discussion of chemo and colostomy, but I’m so glad that Mayo will be directing your treatment. I will be praying for the next steps you will be taking.

No, I didn’t make it out to a movie this weekend – perhaps after Thanksgiving dinner – I’m not much of a football fan 🙂 I’m feeling OK, I’ve been going to physical therapy for some pain and movement problems and it is making a difference – so I’m grateful for that.

I’m looking forward to hearing from you tomorrow. As much as possible, keep up a positive attitude. We are all in your corner!

Blessings,

Teresa

REPLY
@vsinn2000

Teresa,
Did you make it out to a movie? I’m not sure if weather changes affect how you feel? It was windy but fairly warm here. I made it through pool league. They are a great group of folks that sent me off with bunches of well wishes and prayers. Every bit of support helps! I’m learning that I don’t have to try and be wonder woman! I should be sleeping but I’m on yet another search for more information. I got a phone call directly from the Dr. I will be seeing tomorrow. I am pleasantly surprised by that and it does reinforce that Mayo is going to be the right choice for me. It seems this tumor size is extraordinarily large and won’t be a radiation and surgical fix. Now terms like chemo and colostomy are thrown in. That I did not see coming so my positive attitude has taken a hit. I have a lot of questions. I’m going to grab a quick shower and a snack, then try to get a couple hours sleep before we head out. Its about four and a half hours so I’ll nap in the car. Sent my husband off to bed about 11. I’ll update tomorrow when I’ve asked my questions and have some idea of what’s going to have to happen.
Vicky

Jump to this post

Hi Vicky, perhaps you’ll read this as your driving to your appointment today. I’ll be thinking of you. Be sure to take time to visit the Cancer Education Center (CEC) in the Gonda Building. It is a very peaceful place to wait between appointments. The staff there are super helpful and very nice. Tell them Colleen and Teresa from Connect say hi. They’ll be thrilled to know about the support you’ve been getting and giving here.

Here is the blog from the CEC https://connect.mayoclinic.org/page/cancer-education-center/. Interestingly the latest blog post is about “Combatting Negative Thoughts with Mindfulness”. I bet you have some tips or thoughts that you could add to the comments: https://connect.mayoclinic.org/newsfeed-post/being-mindful-in-the-moment/

We’re virtually by your side today and thankful that you have your chauffeur and biggest supporter by your side.

REPLY
Please login or register to post a reply.