Radiation therapy for vulvar cancer

Posted by vsinn2000 @vsinn2000, Nov 5, 2017

I am trying to find information from others who have had this treatment. My apointment is soon but my anxiety needs information sooner.

@vsinn2000

Teresa,
I can hear hear it! It was happening right along with my mental happy dance that I was doing. Lol.
I was more weary than tired. I think it’s the emotional roller coaster that got me. Last night I was flat out tired. This morning isn’t terribly bad but I have a visit with the doc and radiation so we’ll see after that.
Hubby made a trip to the store for groceries that are tummy friendly and a few medical supplies to help comply with chemo safety guidelines. He even brought my dog, Justice, a new squeaky toy and a bag of his favorite treats. He fixed me BLT’s, one of my favorites and knows I’ll eat them. But he also wanted to get them fixed before any smell sensitivity kicked in and ruined them for me.
Dishes, favorite meals, special shopping, bedding changes in the middle of the night, dog duty during treatments- yes, he is one special guy!
Hugs back to you,
Vicky

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@vsinn2000

Hubby is definitely a keeper! You are both planning and preparing well for this experience. The past few days you have come to mind (often) and I’ve been praying for you. You are now one of my heroes!

Teresa

Liked by vsinn2000

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Care provider visit today, the radiation. Had a pain spike in between appointments that knocked the windividual out of me. But gutted it out, finished radiation and headed back to Centerstone. I took a nap while hubby ran some errands. He’s baking me a pie. I made him his favorite cookies yesterday.
I was not aware of all the chemo precautions so that was a big of a shock for us both. Adjusting all the time it seems.
My service dog has been rock solid. Perfectly behaved and showing up a couple other dogs not so well behaved, in that snooty, nose in the air, superior yorkie way! Lol
Hope you have a wonderful evening,
Vicky

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Stupid phone.
Then radiation
Knocked the wind out of me

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@vsinn2000

Care provider visit today, the radiation. Had a pain spike in between appointments that knocked the windividual out of me. But gutted it out, finished radiation and headed back to Centerstone. I took a nap while hubby ran some errands. He’s baking me a pie. I made him his favorite cookies yesterday.
I was not aware of all the chemo precautions so that was a big of a shock for us both. Adjusting all the time it seems.
My service dog has been rock solid. Perfectly behaved and showing up a couple other dogs not so well behaved, in that snooty, nose in the air, superior yorkie way! Lol
Hope you have a wonderful evening,
Vicky

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@vsinn2000

I’m glad that your service dog has “attitude.” Love your description of the “nose in the air.”

Teresa

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@vsinn2000

Stupid phone.
Then radiation
Knocked the wind out of me

Jump to this post

Hi Vicky, I appreciate getting your updates. Did you know that we have a discussion dedicated to animals, specifically service animals and the therapeutic powers of pets. Check it out here:
– What Pets Can Do: Health & Healing https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

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We will. Thank you!

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@vsinn2000

Teresa,
I can hear hear it! It was happening right along with my mental happy dance that I was doing. Lol.
I was more weary than tired. I think it’s the emotional roller coaster that got me. Last night I was flat out tired. This morning isn’t terribly bad but I have a visit with the doc and radiation so we’ll see after that.
Hubby made a trip to the store for groceries that are tummy friendly and a few medical supplies to help comply with chemo safety guidelines. He even brought my dog, Justice, a new squeaky toy and a bag of his favorite treats. He fixed me BLT’s, one of my favorites and knows I’ll eat them. But he also wanted to get them fixed before any smell sensitivity kicked in and ruined them for me.
Dishes, favorite meals, special shopping, bedding changes in the middle of the night, dog duty during treatments- yes, he is one special guy!
Hugs back to you,
Vicky

Jump to this post

Teresa,
Far from a hero! Just a gal trying to make it through crappy deal, figuring out she isn’t wonder woman, life goes on without lists, plan A always falls through, etc. And rediscovering what made me want to marry this guy almost 30 years ago! Finding out that a few great friends are a true gift and making some new friends that are absolutely amazing! I no longer control much of my life, when I’ve been a control freak for oh so long and that is a humbling experience. I have learned that I can trust, to a degree. That was a hard thing to rediscover. I learned that I can reach out, asking for help with things was also hard to relearn. Opening up to strangers, well, I no longer feel like we’re strangers so you have helped me tremendously with all your encouragement, kind words, and virtual support. I know I would not have been brave enough to speak up about things with my care team had I not joined this community and had the reassurance from you and Colleen that care at Mayo is so individualized. You have your struggles, yet you find time to prop me up. You, sweet lady, are a true hero!
Vicky

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@vsinn2000

I’m sure the NG tube was a struggle to anticipate and then actually experience. Seven days is a long stay! Given the location I know I have a snowballs chance of expecting privacy. But just thinking of becoming “public viewing ” is making me cry now. It’s the ugliest thing I’ve seen, I balk at my husband getting a glance, and my gyn is the same one I’ve had for 20 years so she totally understands my issues.

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I’ve been in similar situations. You have the right to as much privacy as you wish within what they are able to give you. That starts with your husband not being present. It use to be men were not expected to be in delivery rooms, nor did they want to. Now it seems unnatural if that is the case. One BIG thing people tend to forget under the stress of hospitalization is we can sign papers stating we don’t want students involved-even if it is a teaching hospital. If for some reason they insist perhaps you can limit it to one or two students with limited participation. Ask questions as to the extent of involvement students & others may have & express your concerns. Your health & blood pressure & rate of healing should be their number one concern. Oh! Sorry, I just realized I’m posting a month late! I’ve been away in hospital. Hope all is well. Take care.

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@vsinn2000

I’m sure the NG tube was a struggle to anticipate and then actually experience. Seven days is a long stay! Given the location I know I have a snowballs chance of expecting privacy. But just thinking of becoming “public viewing ” is making me cry now. It’s the ugliest thing I’ve seen, I balk at my husband getting a glance, and my gyn is the same one I’ve had for 20 years so she totally understands my issues.

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Thank you @lillyanne – you did provide some good information for us all.

How are you feeling after your hospitalization?

Teresa

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Colleen and Teresa
Hello my virtual tag team! Made it through week two of chemo and radiation so thought I would check in with you. I’ve adjusted much better than I would have guessed, with the help of you two and Angie at Mayo. My care team is amazing, just as you promised. I literally never could have dreamed the difference two weeks can make. I wish you and your families the merriest Christmas ever, and hope you enjoy some well deserved down time!
Hugs,
Vicky

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@vsinn2000

Hi Vicky:

So good to hear from you! I am so happy that you have made it through two chemo and radiation treatments and that you are doing OK. Your experience has been a great Christmas gift!

Blessings to you and your family this Christmas.

Teresa

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Teresa,
I was just crushed when I found out how remotely everyone is working on theseessay boards. I had so hoped to see you and Colleen while in rochester. Guess I should have realized it. But you two became so important to me so quickly. I told Colleen and I’m going to make you the same promise! If you have to go to rochester campus you gotta let me know! I will make the drive up and give you an actual hug and say say hi.
You have an amazing Christmas!
Vicky

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@vsinn2000 Hi Vicky:

Would love to meet you as well! When I’m in Rochester MN, I’ll let you know. (I live in SE Michigan.)

Teresa

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It’s a coffee date for sure! Don’t forget!

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Teresa and Vicky, I like lattes. A joyous and festive season to you and yours.

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