Radiation therapy for vulvar cancer

Posted by vsinn2000 @vsinn2000, Nov 5, 2017

I am trying to find information from others who have had this treatment. My apointment is soon but my anxiety needs information sooner.

@vsinn2000

I lost the thread and finally found it again. I've been reading the replies from "talking frankly" and doing a whole lot of thinking. My birthday was a couple weeks ago and during one of those sleepless nights it hit me. Hard. How many more birthdays do I get? Wow. I went from there. It was hard to shake the train of thought but it still is a question we all think about. I guess I was blocking myself from going there. Not a very good thought to have but I need to be responsible about things and make sure my husband knows what needs to be taken care as far as running the house and where papers are, etc. Since I handle all of that. Time to put on the big girl britches!

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Happy belated birthday, Vicky. You are smart to think ahead and plan, especially for your husband. But I can see where the thoughts about "how many more?" can lead to a downward spiral. Just a gentle reminder to think of the teachings of mindfulness and living in the moment. Each day is a blessing. Enjoy the hear and now. While these are tired clichés, they ring true. Don't they?

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@vsinn2000 Hello Vicky,

You have been on my mind. How are you doing these days?

I would love to hear from you when you have an opportunity to drop a post my way.

Teresa

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Teresa,
I've been laying low, just trying to regain my strength and get ready for the next round of diagnostic tests that happen on May 1st. It's a full day of PET/CT, labs, radiology apointment and oncology apointment. I'm not looking forward to it at all and thank goodness my team is awesome enough that they've scheduled it to be done under sedation. I had no clue that recovering from chemo and radiation would be so much work. My rock is still standing tall and doing an amazing job, while having his own issues. He had cataract surgery yesterday. All went well and it kind of forces him to slow down for a few days, which I consider an added bonus as he does too much as far as I'm concerned. It's great to hear from you and I hope you are doing well. I know I've slacked off on reading and responding, mainly because I'm just plain tired all the time. I will try and make time to get back here more often when I'm actually awake and functional.
Vicky

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@vsinn2000 Vicky:

It is so good to hear from you! Laying low is very appropriate given the chemo and radiation treatments. I am glad that you are taking good care of yourself. When you begin to get your strength back you can rejoin us.

I'm glad to hear that your husband's cataract surgery went well and he is taking it easy. It sounds like you are giving him some good recovery advice!

Take care of yourselves and post when you feel stronger. I'll be praying for your May 1 diagnostic tests.

Teresa

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@vsinn2000

I’m sure the NG tube was a struggle to anticipate and then actually experience. Seven days is a long stay! Given the location I know I have a snowballs chance of expecting privacy. But just thinking of becoming “public viewing ” is making me cry now. It’s the ugliest thing I’ve seen, I balk at my husband getting a glance, and my gyn is the same one I’ve had for 20 years so she totally understands my issues.

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Late or not, a reply is always welcome. Here this one is, months later. Lol. But it's ok. I go for awhile in between posts, longer than I should but I don't have a lot of good days. Maybe after the re-testing and whatever comes after that. It's thought consuming and terrifying right now and will get worse as it gets closer. I'm extremely fortune to have an absolute rock for a husband, as most who read my posts know. He does not hesitate to step in when I'm overwhelmed and outside my comfort zone to the point I'm ready to flip out. My care team during radiation and procedures were fantastic and I learned to trust them enough to tell them when it was enough. And they were very good at learning ahead of time and during treatment what my limits were. Hopefully your stay in hospital went well. Take care,
Vicky

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Teresa,
So good to get back to you and everyone. It's been good to focus on doing something for him after all he's done for me. He's very happy to see clearly again, even better than before the cataract developed. Being just two weeks out of course I'm turning into a neurotic bundle of nerves, but not unusual for me. Lol. The scans being done under sedation make a huge difference, but gotta get through the sedation part without a nervous breakdown. Is there any part of this that's easy? I know there really isn't but I can dream, right? I'll try to get on here more often. Hope all is going well with you and still looking forward to that coffee date!
Vicky

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Just checking back in. I've commented on other boards but have been horribly lazy about checking in, period. No excuses. My days run together it seems and chemo brain makes it even worse. I do wonder how you are Teresa and Colleen. I cannot thank you both enough for all the support. I read back through some posts and they still bring tears to my eyes. I made it through my last PET/CT on May 1st without sending my virtual SOS out to you so I'm claiming personal growth. Lol. Of course, hubby was there being my rock, as usual. This recovery business is no joke, and I had to complicate things with pneumonia. The details of the first 6 weeks after chemo and radiation are best left unsaid. I had no warning about chemo brain. I also did not let myself think about the long term effects of both treatments. I am sure thinking about them now. But on the other, I'm alive to deal with them so that is what I will do.
Please let me know how you are,
Vicky

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@vsinn2000

Just checking back in. I've commented on other boards but have been horribly lazy about checking in, period. No excuses. My days run together it seems and chemo brain makes it even worse. I do wonder how you are Teresa and Colleen. I cannot thank you both enough for all the support. I read back through some posts and they still bring tears to my eyes. I made it through my last PET/CT on May 1st without sending my virtual SOS out to you so I'm claiming personal growth. Lol. Of course, hubby was there being my rock, as usual. This recovery business is no joke, and I had to complicate things with pneumonia. The details of the first 6 weeks after chemo and radiation are best left unsaid. I had no warning about chemo brain. I also did not let myself think about the long term effects of both treatments. I am sure thinking about them now. But on the other, I'm alive to deal with them so that is what I will do.
Please let me know how you are,
Vicky

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@vsinn2000 Vicky,

I'm so pleased that you checked in with an update. I too, am glad that you are alive to tell us your story. When I stop to think how far you have come from your first couple of posts I realize the tremendous strength that you have always had. I am glad that Colleen and I had the opportunity to help you bring forth that inner strength that was there all the time. I know the "virtual hand-holding" was important at that time.

I am sorry to hear about your pneumonia that must have been difficult to deal with in combination with everything else that was going on.

Kudos to your hubby, also known as your Rock, he certainly provided that personal support when you needed it most. Yes, I have heard about the chemo-brain phenomenon from others. I hope you can deal with it effectively (get lots of post-it-notes!).

I am doing OK, thanks for asking. I have some chronic health problems, and have developed a few new ones, but I'm dealing with them (you know all about that).

I always enjoy hearing from you, take care and keep in touch.

Teresa

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@vsinn2000

Just checking back in. I've commented on other boards but have been horribly lazy about checking in, period. No excuses. My days run together it seems and chemo brain makes it even worse. I do wonder how you are Teresa and Colleen. I cannot thank you both enough for all the support. I read back through some posts and they still bring tears to my eyes. I made it through my last PET/CT on May 1st without sending my virtual SOS out to you so I'm claiming personal growth. Lol. Of course, hubby was there being my rock, as usual. This recovery business is no joke, and I had to complicate things with pneumonia. The details of the first 6 weeks after chemo and radiation are best left unsaid. I had no warning about chemo brain. I also did not let myself think about the long term effects of both treatments. I am sure thinking about them now. But on the other, I'm alive to deal with them so that is what I will do.
Please let me know how you are,
Vicky

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@vsinn2000 Hi Vicky,

As it has been a while since you have posted I was wondering how you are feeling these days. I hope that you are adjusting to your "new normal" and feeling somewhat better from the after affects of the chemo.

When you have a moment, I would enjoy hearing from you.

All my best wishes to you and to "your rock."

Teresa

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