Post-Covid dizziness/off-balance, as most troubling symptom

Sounds like you could have signed my name to your post. YES. Dizziness has and continues to be a concern. My cardiologist actually seemed to have figured it out, in a sense. He suggested I see a Neurologist whom after testing diagnosed me with “sensorimotor poly peripheral neuropathy in both legs. He put me on gabipentin, and vitamin B 12 and referred me to PT, telling me it was a progressive disease with no cure. PT has helped some. BUT, I still get dizzy that has resulted in 2 major falls. I had been seeing a couple of ENTs without any success. I finally came upon a “retired” ENT who was more or less “filling in”. Experience matters. After 15 minutes listening to my symptoms, he was on the phone to Mayo Clinic’s “Neuro-ENT” department and I am scheduled for a “day long” exam and testing appointment. He explained how much can be involved in “balance” including my neuropathy, moderately severe hearing loss in one ear (both are propioception killers).
So I have “hope” there are still answers not yet discovered. I know my future as to the neuropathy component. I will post after my visit with Mayo.
Best of wishes as you continue in your journey of discovery. I caution you as to the toll this might take on your emotional/mental health. I know I have started suffering from depression because of the unknowns. I suggest you have someone help you with proprioception and balance exercises. It can give you a goal or 2 to focus on while going through this and allow you to celebrate some small victories along the way.

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Sounds like you could have signed my name to your post. YES. Dizziness has and continues to be a concern. My cardiologist actually seemed to have figured it out, in a sense. He suggested I see a Neurologist whom after testing diagnosed me with “sensorimotor poly peripheral neuropathy in both legs. He put me on gabipentin, and vitamin B 12 and referred me to PT, telling me it was a progressive disease with no cure. PT has helped some. BUT, I still get dizzy that has resulted in 2 major falls. I had been seeing a couple of ENTs without any success. I finally came upon a “retired” ENT who was more or less “filling in”. Experience matters. After 15 minutes listening to my symptoms, he was on the phone to Mayo Clinic’s “Neuro-ENT” department and I am scheduled for a “day long” exam and testing appointment. He explained how much can be involved in “balance” including my neuropathy, moderately severe hearing loss in one ear (both are propioception killers).
So I have “hope” there are still answers not yet discovered. I know my future as to the neuropathy component. I will post after my visit with Mayo.
Best of wishes as you continue in your journey of discovery. I caution you as to the toll this might take on your emotional/mental health. I know I have started suffering from depression because of the unknowns. I suggest you have someone help you with proprioception and balance exercises. It can give you a goal or 2 to focus on while going through this and allow you to celebrate some small victories along the way.

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Sounds to me like you could be having sudden drops in blood pressure. I started a supplement regimen after 18 months of sitting alone in the silent dark room with a migraine that never ended, impossible to move without running out of air and feeling like I'm suffocating and severe chest pain so so painful, profuse sweating and exhaustion from just turning over in bed to look at the clock. Brain dog was bad and dizziness too. Many people suffer problems like these from simply just having too much ear wax in your ears. Earwax can even cause dementia like symptoms. Try light excersice if you can do a few minutes a day I have been having drops in blood pressure causing me to have symptoms like a narcoleptic please be sure your not taking anything that lowers blood pressure more. Your doctor's probably won't ever find this problem if it's a sudden drop. And just the movement and walking up to see the doctor will raise your blood pressure enough to mask any drop you had earlier. You all are lucky to be able to see doctors. Our medical centers refuse covid patients or anyone with the sniffles. I was turned away at the door when I answered yes I have difficulty breathing from long covid. Another time I had to walk their. It's always winter the walk was 15 minutes and my skin was too cold to read my temperature with their point and shoot thermometer they turned me away made me walk back home. Was all set to get my lungs checked cause the severe pain and suffocating whenever I move. It wasn't just hard to breath it is as if I was suffocating unable to get enough air in my lungs. After I started my own treatment plan with only a very small handful of companies that make supplements because the vast majority barely put any of the real medicine in them. I could tell with the oregano soft gels. Good oregano product causes slight flushing and sweating because oregano is actually a very very spicy and you'd never know it eating it as seasoning. I got no warm flashes and was on my plan for a month ish. I knew it should have worked by that point if at all. It cost me a bit of money and it's a tough schedule but working.. I have taste and smell back and energy and I bought this device you breath into it. Breath in normally breath out into the inhaler type thing which oscillates and breaks up all the mucus in the lungs I coughed stuff out for days chunks of hard stuff too. I'm scared of what came up. But the coffee enema saved me. I do one every day and every day makes me feel better. If I'm sore or feel a migraine I know that it's not gonna stay cause I can't believe but my regimen worked well enough to allow me to have raked my entire wrap around yard still full and uncut since the first day you could see the grass. 18 months sick. A week on these supplements and I raked the whole yard with just two short breaks and water and I didn't immediately need to rest for a few hours before I could even think about trying to crawl out of bed. I think too much damage has been done since they refused to see me for over a year. Their is no reversing it and hopefully any blood clots will just go away and not kill me. They can be the only explanation for pain like that in someone's lungs doctors have literally told me to go die somewhere else and make my body their problem before so I already know that when I do come into a life or death situation again and I had to rely on our hospitals I'd stay home and die, no point in even trying when they've made it clear that a junky like me isn't allowed the privilege of being healthy

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Sounds like you could have signed my name to your post. YES. Dizziness has and continues to be a concern. My cardiologist actually seemed to have figured it out, in a sense. He suggested I see a Neurologist whom after testing diagnosed me with “sensorimotor poly peripheral neuropathy in both legs. He put me on gabipentin, and vitamin B 12 and referred me to PT, telling me it was a progressive disease with no cure. PT has helped some. BUT, I still get dizzy that has resulted in 2 major falls. I had been seeing a couple of ENTs without any success. I finally came upon a “retired” ENT who was more or less “filling in”. Experience matters. After 15 minutes listening to my symptoms, he was on the phone to Mayo Clinic’s “Neuro-ENT” department and I am scheduled for a “day long” exam and testing appointment. He explained how much can be involved in “balance” including my neuropathy, moderately severe hearing loss in one ear (both are propioception killers).
So I have “hope” there are still answers not yet discovered. I know my future as to the neuropathy component. I will post after my visit with Mayo.
Best of wishes as you continue in your journey of discovery. I caution you as to the toll this might take on your emotional/mental health. I know I have started suffering from depression because of the unknowns. I suggest you have someone help you with proprioception and balance exercises. It can give you a goal or 2 to focus on while going through this and allow you to celebrate some small victories along the way.

Jump to this post

I've had ringing in my ear every time I am moving I hear it. Ever since covid no stop ringing. At least the migraines gone but 18 months is enough and I'm getting real tired of saying I need help because the fire in my chest has got to be a blood clot or I got stabbed and didn't know it. They won't let you in for any reason covid related. Which everything is now. I can't understand how they claim to be too busy when they have refused all with any sign of a cold. I have severe allergies and a hospital that as a whole refuses to give me primary care emergency care nothing. It makes me sick because the facilities that aren't allowed to do whatever they want to the patients who were over run with covid because hospitals like mine refused us, they are the ones who are the heroes through all this. The ones that had to work morning noon and night around a new deady virus. I knew once we got covid it would be like herpes. In their causing damage forever sucks they won't even send me to someone else that will at least make sure I'm not in serious risk here. I just hope that I'm the only one. I don't care what happens to me but for all of you out their suffering no one deserves to be mistreated judged and called names while your worried for your life.

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Thank you. I was unable to be admitted at the peak of my Covid because my SpO2 was not low enough. Didn’t even qualify for home health care because you had to first be seen by a physician, and my physician’s office would not see me. Great system.
This is certainly a “journey back” to be as well as we can possibly be.
I am a retired oral surgeon, and have taken my BP on many “fatigue” episodes, but pretty much stays consistent. Early on, an echocardiogram revealed me to be in “congestive” heart failure and sinus tachycardia. No a-fib. My new cardiologist had changed the meds I had been taking successfully for years, next thing I knew I was in Baptist hospital coronary care unit for 3 days. Cardiac cath revealed arteries more healthy than the should have been. Discharged with cardiomyopathy diagnosis, that was reversed almost immediately when put back on my original meds. Heart failure subsided.
So much we don’t know.
Continue taking care of yourself.

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I found mental clarity rotating between ashwagandha, st John's wart, and CoQ10, clarity no fogginess regular speed of thinking not delayed able to get out of bed without wishing I couldn't I'm not telling you to try it or suggesting it will help I could have felt better by coincidence or placebo but I know I spent 18 months unable to move and the right combo has me working the yard again slowly and surely but only been a few weeks.

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I’m on day 20 since I was diagnosed with Covid. Tiredness and sometimes with balance that’s off. Started taking B12, 500 mcg. a few days ago and notice my balance is better, especially when getting out of bed in the morning. Could be a coincidence (or not).
Certainly worth a try.
All the best to you.

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