Patience

Posted by wctdoc1943 @wctdoc1943, 3 days ago

My wife is somewhere on the (advanced???) MCI spectrum (not advanced dementia) and spends a lot of time scrolling through her phone and iPad emails, texts and phone calls. Today she was trying to delete a long list of "recent" (and not so recent) phone calls on her iPad, which can be done either in bulk (she is clueless how to do this) or by swiping individual ones. In trying to swipe she was "tapping" the call and it initiate a "call back" each time. So she came to me and I tried to explain how to swipe without initiating a call, and/or offered to bulk delete them for her. She then got agitated that I might delete something she wanted to keep (why, why, why???). It frustrates me to no end and I end up making her more agitated, and then I'm mad at myself for having no patience. It is so difficult to realize that she is not capable of understanding what I'm showing her, yet she still wants to do it herself. So we both end up upset. I understand this is all on me because she can't help herself, but damn it's hard. Thanks for listening.

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Maybe we should start a music group, and call it Anger, Frustration and Loneliness, and we can all wail about these feelings and have a way to vent our strong emotions.
Tra la-la. 🎶 🎵

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Yes it is hard; we've been in a rental now since October 15, and my husband with MCI still has problems sequencing the steps on how to turn on the SMART TV. Last night on his computer was the same back and forth. It's so hard because they won't relinquish control and we walk a fine line in trying to help them and/or taking over and doing it. I suppose that's half the battle with this disease and the ways things will go, until they know longer even remember the TV or their boat at the boat dock. The challenge for me, and I'm sure other care givers, is what's going on when they're clicking things on their PC (or the phone) causing potentially being hacked. (which happened to us in 2024) and took 6 months to get it cleaned up. Oh well, the courage to face another day, clarity for grace under pressure, and God's light to shine his love on all of us throughout our day.

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